Resources Results
Grandparent Support Group
Facebook Group: https://www.facebook.com/groups/522940914436945/
Contacts
Donna Grasso: grassoparis@yahoo.com
Gloria Griffin: flyinggigi@icloud.net
Fran & Jim Bodle: jp2592@aol.com
Cri Du Chat Syndrome Support Group
PO Box 3408
Norwich, NR3 3WE United Kingdom
Phone: 845-094-2725
Email: office@criduchat.org.uk
Website: http://www.criduchat.org.uk/
Unique
The Stables, Station Rd W
Oxted RH8 9EE
United Kingdom
Email: info@rarechromo.org
Website: https://rarechromo.org/
Clinic for Special Children
535 Bunker Hill Road
PO Box 128
Strasburg, PA 17579
Phone: (717) 687-9407
Email: queries@clinicforspecialchildren.org
Website: https://clinicforspecialchildren.org/
DDX3X Support Group
Faceboook: https://www.facebook.com/groups/geneddx3x/
DDX3X Foundation
Website: https://ddx3x.org/
International FOXG1 Foundation
Website: https://foxg1.org/
The Menkes Foundation
23210 Daffodil Drive
California, MD 20619
Website: https://themenkesfoundation.org/
The Rare Disease Film Festival
Community for Permanent Supported Housing
2306 Lawndale Pl.
Plano, TX 75023-7716
Phone: (214) 632-8115
Email: admin@txcpsh.org
Website: https://www.txcpsh.org/
National Autism Association
National Autism Association
One Park Avenue, Suite 1
Portsmouth, RI 02871
Phone: (877) 622-2884
Email: naa@nationalautism.org
Website: http://nationalautismassociation.org/
Friendship Circle
Meer Center
6892 West Maple Rd.
West Bloomfield, MI 48322
Phone: (248) 788-7878
Farber Center
5586 Drake Rd.
West Bloomfield, MI 48322
Phone: (248) 788-8600
Website: https://www.friendshipcircle.org/
Community for Permanent Supported Housing
2306 Lawndale Pl.
Plano, TX 75023-7716
Phone: (214) 632-8115
Email: admin@txcpsh.org
Website: https://www.txcpsh.org/
Autism Housing Network
15201 Shady Grove Road
Rockville, Maryland 20850
Phone: (786) 546-6311
Website: http://www.autismhousingnetwork.org/
“Hiya Moriah” by Victoria Nelson
Rare Gems Blog
Website: https://www.raregemsblog.com
Share and Care Cockayne Syndrome Network
Share and Care
P.O. Box 282
Waterford, VA 20197
Phone: (703) 727-0404
Contact: Jackie Clark, President and Executive Director
Email: cockaynesyndrome@gmail.com
Website: http://cockaynesyndrome.org
Human Growth Foundation
997 Glencove Ave, Suite 5
Glenhead, NY 11545
Phone: (800) 451-6434
Email: hgf1@hgfound.org
Website: http://hgfound.org
Amy and Friends
World Craniofacial Foundation
7777 Forest Lane
Suite C-616
Dallas, Texas 75230 USA
Phone: +1 (972) 566-6669
Toll Free: (800) 533-3315
Email: info@worldcf.org
Website: http://worldcf.org/index.html
AmeriFace
Post Office Box 751112
Las Vegas, NV 89136
Phone: (702) 769-9264
Toll Free: (888) 486-1209
Contact: Debbie Oliver, Executive Director
Email: info@ameriface.org
Website: http://www.ameriface.org/index.html
SADS Foundation
Sudden Arrhythmia Death Syndromes Foundation
4527 South 2300 East, Suite 104
Salt Lake City, UT 84117-4448
Phone: (801) 948-0654
Website: https://www.sads.org
Osteogenesis Imperfecta Clinic
Shriners Hospital for Children
911 W. 5th Ave.
Spokane, WA 99204
Phone: (888) 895-5951
Contact: Glen Baird, MD
Website: https://www.shrinershospitalsforchildren.org/spokane
Osteogenesis Imperfecta Clinic
Seattle Children’s Hospital
4800 Sand Point Way NE
Seattle, WA 98105
Phone: (206) 987-2109
Contacts: Kathryn Ness, MD and Klane White, MD
Website: https://www.seattlechildrens.org