Pierre Robin Sequence

National Organization for Rare Disorders: https://rarediseases.org/rare-diseases/pierre-robin-sequence/

Support Groups

Facebook:
Parents of children with disabilities
beautifully disabled
Disability Actions Group
Reframing Disability

National Organization on Disability

Website: https://www.nod.org/

AAPD

American Association of People with Disabilities: http://www.aapd.com/

Support Groups for Patau syndrome

Facebook:
Trisomy 13 LIFE – Living with Patau Syndrome
Patau Syndrome/Trisomy 13 – raising awareness
Treasured Memories – Trisomy 13 Patau Syndrome LWT13 Grief Support
Rare Trisomy Parents (was T18 Mommies)

Trisomy 13 syndrome

National Organization for Rare Disorders: https://rarediseases.org/rare-diseases/trisomy-13-syndrome/

Ohdo syndrome (SSBYS)

Genetics Homes Reference: https://ghr.nlm.nih.gov/condition/ohdo-syndrome-say-barber-biesecker-young-simpson-variant

Support Groups for Ohdo syndrome

Facebook:
ohdo syndrome awareness
My son has ohdo syndrome and am proud of him every minute of every day

Learning Disabilities Association of America

Website: https://ldaamerica.org/types-of-learning-disabilities/non-verbal-learning-disabilities/

Support Groups

Facebook:
NLD Non Verbal Learning Disability-Support for Parents
Non Verbal Learning Disorder support Group
Support and Discussion Group for Families of Non Verbal ASD’s
Non-Verbal Learning Disability Support Group

Support Groups for Nager syndrome

Facebook:
Nager Syndrome

Foundation for Nager & Miller syndromes

Website: http://fnms.org/

Nager syndrome

National Organization for Rare Disorders: https://rarediseases.org/rare-diseases/nager-syndrome/

Support Groups for Moebius syndrome

Facebook:
Moebius Friends
Moebius Ladies
Moebius Syndrome Global Ambassadors

Moebius syndrome Foundation

Website: http://moebiussyndrome.org/

Support Groups for Microgastria

Blog:
This Little Miggy Stayed Home

New England PWSA

Phone: (978) 207-1185
Contact: Mary Raymond
Email: murphyno7@aol.com
Facebook: Prader-Willi Association of New England

Microgastria

Genetic and Rare Disease Information Center: https://rarediseases.info.nih.gov/diseases/3640/microgastria-limb-reduction-defect

Support Groups

Forum:
Babies and Kids with Microcephaly

Facebook:
MICROCEPHALY SUPPORT GROUP
Parents of Children with Microcephaly Support Group

PWSA of Iowa

15130 Holcomb Avenue
Clive, IA 50325
Phone: (515) 770-5297
Contact: Edie Bogaczyk
Email: edieiowa@gmail.com
Website: http://www.pwsaiowa.org

Foundation for Children with Microcephaly

Website: http://www.childrenwithmicro.org/

Support Groups for McCune-Albright syndrome

Website:
The Mighty

Facebook:
MAS/FD McCune-Albright Syndrome / Fibrous Dysplasia -The MAGIC Foundation
McCune Albright Syndrome and Fibrous Dysplasia

McCune Albright syndrome

National Organization for Rare Disorders: https://rarediseases.org/rare-diseases/mccune-albright-syndrome/
MAGIC Foundation: https://www.magicfoundation.org/Growth-Disorders/McCune-Albright-Syndrome-or-Fibrous-Dysplasia/

Georgia PWSA

505 Lakeland Plaza, #327
Cumming GA 30040
Phone: (770) 886-2334
Contact: Debbie Lange
Email: pwsaga@earthlink.net
Website: http://www.pwsaga.org