Resources Results
Little People of America District 3
Director: Jennifer Edwards
E-Mail: jedwards@d3lpa.org
Website: http://www.d3lpa.org/
https://www.facebook.com/groups/D3LPA/
Little People of America District 1
Director: Gary Smyrlian
E-mail: lpa.districtone@gmail.com
Website: www.lpadistrict1.org
https://www.facebook.com/groups/133711083398373/
Little People of America District 10
Director: Mark Trombino
E-mail: District10LPA@gmail.com
Website: http://lpadistrict10.org/
Facebook Page: https://www.facebook.com/lpaDistrict10/
Facebook Group: https://www.facebook.com/groups/lpaDistrict10
Little People of America District 12
Director: Julio Maldonado
E-mail: lpadistrict12@gmail.com
https://www.facebook.com/groups/lpad12/
Little People of America District 7
Director: Mark Trombino
E-mail: District10LPA@gmail.com
Website: http://lpadistrict10.org/
Facebook Page: https://www.facebook.com/lpaDistrict10/
Facebook Group: https://www.facebook.com/groups/lpaDistrict10
Little People of America District 10
Director: Mark Trombino
E-mail: District10LPA@gmail.com
Website: http://lpadistrict10.org/
Facebook Page: https://www.facebook.com/lpaDistrict10/
Facebook Group: https://www.facebook.com/groups/lpaDistrict10
Little People of America District 11
Director: Bridgette “Sam” Graham
E-mail: grahamsbridgette@gmail.com
Little People of America District 13
Director: Brandy Mugford
E-mail: lpadistrict13@gmail.com
Rare Disease Clinical Research Network
Phone: 1(888) 205-2311
Email: GARDinfo@nih.gov
Website: https://www.rarediseasesnetwork.org/resources-for-patients-and-families
DDX3X Foundation
Website: https://ddx3x.org/
Facebook: https://www.facebook.com/groups/geneddx3x/
MAGIC Foundation
4200 Cantera Dr. #106
Warrenville, IL 60555
Phone: (800) 362-4423
Email: contactus@magicfoundation.org
Website: https://www.magicfoundation.org/
Human Growth Foundation
997 Glen Cove Ave, Suite 5
Glen Head, NY 11545
Phone: (800) 451-6434
Email: hgf1@hgfound.org
Website: https://www.hgfound.org/
SMA Foundation
PO Box 9214
Jackson, WY 83002
Phone: (646) 253-7100
Email: info@smafoundation.org
Website: https://smafoundation.org/
Muscular Dystrophy Association
161 N. Clark, Suite 3550
Chicago, Illinois 60601
Phone: (800) 572-1717
Email: ResourceCenter@mdausa.org
Website: https://www.mda.org/
Global Genes
28 Argonaut, Suite 150
Aliso Viejo, CA 92656
Phone: 1(941) 248-7273
Email: careaboutrare@globalgenes.org
Website: https://globalgenes.org/
Never Give Up
27 W. Anapamu, Suite 177
Santa Barbara, CA 93101
Phone: (805) 203-0334
Email: info@nevergiveup.org
Website: https://nevergiveup.org/
EveryLife Foundation for Rare Diseases
1012 14th Street, NW, Suite 500
Washington, DC 20005
Phone: (202) 697-7273
Contact: Lindsey
Email: lcundiff@everylifefoundation.org
Website: https://everylifefoundation.org/
Cure SMA
925 Busse Road
Elk Grove Village, IL 60007
Phone: (800) 886-1762
Email: info@curesma.org
Website: https://www.curesma.org/
Together in SMA
The Bonnell Foundation
P. O. Box 1215
Royal Oak, Michigan 48068
Phone: 1(844) 297-8423
Email: info@thebonnellfoundation.org
Website: https://thebonnellfoundation.org/
Cystic Fibrosis Foundation
4550 Montgomery Ave.
Suite 1100 N
Bethesda, MD 20814
Phone: (301) 951-4422
Toll Free: (800) 344-4823
Website: https://www.cff.org/
Everyday CF
Website: https://www.everyday-cf.com/
The Medical College of Wisconsin BPD Collaborative
Neonatology, MCW Dept. of Pediatrics
Children’s Corporate Center, Suite C410
999 N. 92nd St.
P.O. Box 1997
Milwaukee, WI 53226
Phone: (414) 266-6820
Website: https://www.mcw.edu/departments/pediatrics/divisions/neonatology
Lurie Children’s Hospital of Chicago BPD Collaborative
225 E. Chicago Ave.
Chicago, IL 60611
Phone: (312) 227-1400
Email: BPDprogram@luriechildrens.org
Website: https://www.luriechildrens.org/en/specialties-conditions/bronchopulmonary-dysplasia-program/