California

Suggest a Resource

 

Achondroplasia
Contact: Jon Welch
Email: welchparty@comcast.net
Website: http://www.lpad12.org

 

Angelman syndrome
Early Intervention
Part C Coordinator
Children and Family Services Branch
Department of Developmental Services
1600 9th Street, Room 330, MS 3-8
Sacramento, CA, 95814
Phone: (800) 515-2229, (916) 654-2773
Email: ringraha@dds.ca.gov
Website: http://www.dds.ca.gov/EarlyStart/Home.cfm

Epilepsy Foundation of San Diego County
2055 El Cajon Blvd
San Diego, CA, 92104
Phone: (619) 296-0161
Speech, Language, and Hearing
California Speech-Language-Hearing Association
(CSHA)
825 University Avenue
Sacramento, CA, 95825-6724
Phone: (916) 921-1568

Autism
Arc Fresno

4567 N. Marty Avenue

FresnoCA 93722

Phone: (559) 226-6268

Autism & Behavioral Learning and Education LA

1575 Westwood Blvd.

Los AngelesCA 90024

Phone: (310) 477-8833, 310-923-0181
Contact: Gelsah De Damas
Support:
A2Z Behavioral Interventions & Services
2481 Irvine Blvd

TustinCA 92872

Phone: (800) 908-4464
Contact: Arlene Baghjajian

All in Need, Family Support

1025 Hook Ave.

Pleasant HillCA 94523

Phone: (925) 451-9269, (925) 451-9269
Contact: Autumn Green
Email: info@allinneed.org
Blind
Educational Services:
California Department of Education: Special Education Division
California Department of Education
Special Education Division
Programs for the Visually Impaired
1430 N Street
Sacramento, CA 95814
Phone: (916) 327-0842
Fax: (916) 445-4550
Toll-Free: (800) 926-0648
TDD/TTY: (916) 323-9779
School for the Blind
Blind Children’s Center
4120 Marathon Street
Los Angeles, CA 90029
Phone: (323) 664-2153
Fax: (323) 665-3828
Toll-Free: (800) 222-3566
California School for the Blind
500 Walnut Avenue
Fremont, CA 94536
Phone: (510) 794-3800
Fax: (510) 794-3813
Junior Blind of America
5300 Angeles Vista Boulevard
Los Angeles, CA 90043
Phone: (323) 295-4555
Fax: (323) 296-0424
Toll-Free: (800) 352-2290
Rehabilitation Services:
California Department of Rehabilitation: Blind Field Services Division
721 Capitol Mall
Sacramento, CA 95814
Phone: (916) 558-5480
Fax: (916) 558-5481
NLS Library:
Braille and Talking Book Library, California State Library
900 N Street
Sacramento, CA 95814
Phone: (916) 654-0640
Fax: (916) 654-1119
Braille Institute Library Services
741 N. Vermont Avenue
Los Angeles, CA 90029-3594
Phone: (323) 660-3880
Fax: (323) 662-2440
Toll-Free: (800) 808-2555
TDD/TTY: (323) 660-3880
Library for the Blind and Print Disabled, San Francisco Public Library
Civic Center
100 Larkin Street
San Francisco, CA 94102
Phone: (415) 557-4253
Fax: (415) 557-4375
Talking Book Library for the Blind, Fresno County Public Library
Ted Wills Community Center
770 North San Pablo
Fresno, CA 93728-3640
Phone: (559) 600-3217
Fax: (559) 442-4036
Toll-Free: (800) 742-1011
Other Agencies:
Academy of Music for the Blind
911 Norumbega Drive
Monrovia, CA 91016
Phone: (626) 358-5379
Fax: (626) 359-3625
Audio Internet Reading Service – Los Angeles
5507 Vanalden Avenue
Tarzana, CA 91356
Phone: (818) 705-6434
Fax: (818) 705-6434
Blind Babies Foundation, A Program of Junior Blind
1814 Franklin Street, Suite 300
Oakland, CA 94612
Phone: (510) 446-2229
Fax: (510) 446-2262 ]
Blind Children’s Learning Center
18542-B Vanderlip Avenue
Santa Ana, CA 92705
Phone: (714) 573-8888
Fax: (714) 573-4944
Blind Community Center of San Diego
1805 Upas Street
San Diego, CA 92103
Blindness Support Services, Inc.
3696 Beatty Drive
Riverside, CA 92506
Phone: (951) 341-9244
Fax: (951) 341-6335
Books Aloud
150 E. San Fernando Street
San Jose, CA 95112-3580
Phone: (408) 808-2613
Fax: (408) 808-4625
Bookshare, A Benetech Inititative
480 California Avenue
Suite 201
Palo Alto, CA 94306
Phone: (650) 644-3400
Fax: (650) 475-1066
Braille Institute of America, Inc.
741 North Vermont Avenue
Los Angeles, CA 90029
Phone: (323) 663-1111
Fax: (323) 663-0867
Toll-Free: (800) 272-4553
Braille Transcribers of Humboldt
10 West Seventh Street
Suite D
Eureka, CA 95502
Phone: (707) 442-4048
California Deaf-Blind Services
San Francisco State University/Pacific Plaza
1600 Holloway Avenue
San Francisco, CA 94132-4201
Fax: (415) 405-7562
TDD/TTY: (415) 405-7560
Toll-Free TDD/TTY: (800) 822-7884
California Department of Education: Clearinghouse for Specialized Media and Translations
1430 N Street
Room 3207
Sacramento, CA 95814
California Early Start Program
California Department of Developmental Services
1600 Ninth Street
Room 330
Sacramento, CA 95814
Phone: (916) 654-1690
TDD/TTY: (916) 654-2054
California Pacific Medical Center: Frank Stein and Paul S. May Center for Low Vision Rehabilitation
2340 Clay Street
Fifth Floor
San Francisco, CA 94115
Phone: (415) 600-3901
Fax: (415) 600-3949
Castro Valley School District
PO BOX 2146
Castro Valley, CA 94546
Phone: (510) 537-3000 1256
Fax: (510) 537-4754
Center for the Blind & Visually Impaired
1721 Westwind Drive
Suite B
Bakersfield, CA 93301
Phone: (661) 322-5234
Fax: (661) 322-1176
Contra Costa Braille Transcribers
1139 Westmoreland Circle
Walnut Creek, CA 94596
Phone: (925) 937-9413
EmpowerTech
9100 S. Sepulveda Blvd. Suite 204
Los Angeles, CA 90045
Phone: (310) 338-1597
Fax: (310) 338-9318
Extreme Mobility Camps
3578 Claridge Court
Simi Valley, CA 93063
Phone: (805) 501-7231
Fax: (805) 539-6039
Eye Care Center at Western University of Health Sciences
795 E. Second Street
1st Floor, Suite 2
Pomona, CA 91766-2007
Phone: (909) 706-3899
EyeCare America
655 Beach Street
San Francisco, CA 94109-1336
Phone: (877) 887-6327
Fax: (415) 561-8567
Glaucoma Research Foundation
251 Post St Ste 600
San Francisco, CA 94108
Phone: (415) 986-3162
Fax: (415) 986-3763
Toll-Free: (800) 826-6693
Guide Dogs for the Blind
350 Los Ranchitos Road
San Rafael, CA 94903
Phone: (415) 499-4000
Fax: (415) 499-4035
Toll-Free: (800) 295-4050
Guide Dogs of America
13445 Glenoaks Boulevard
Sylmar, CA 91342
Phone: (818) 362-5834
Fax: (818) 362-6870
Toll-Free: (800) 459-4843
Helen Keller National Center for Deaf-Blind Youths and Adults
9939 Hibert Street, #108
San Diego, CA 92131
Phone: (858) 578-1600
Fax: (858) 578-3800
TDD/TTY: (858) 578-1600
Hope Infant Family Support Program
6401 Linda Vista Road
c/o San Diego County Office of Education
San Diego, CA 92111-7399
Phone: (858) 292-3835
Fax: (858) 569-5394
Institute for Families
1300 N. Vermont Avenue
Suite 1004
Los Angeles, CA 90027
Phone: (323) 361-4649
Fax: (323) 361-7869
Jules Stein Eye Institute
Jules Stein Eye Institute at UCLA
100 Stein Plaza
Los Angeles, CA 90095-7000
Phone: (310) 825-5000
Lighthouse for the Blind and Visually Impaired
1155 Market St. Floor #10
San Francisco, CA 94103
Phone: (415) 431-1481
Fax: (415) 863-7568
Toll-Free: (888) 400-8933
TDD/TTY: (415) 431-4572
Optometric Center of Los Angeles
Southern California College of Optometry
Optometric Center of Los Angeles
3916 South Broadway
Los Angeles, CA 90037
Phone: (323) 234-9137
Fax: (323) 235-6203
Parents Helping Parents
Sobrato Center for Nonprofits – San Jose
1400 Parkmoor Avenue
Suite 100
Santa Jose, CA 95126-3429
Phone: (408) 727-5775
Fax: (408) 717-0182
Prevent Blindness Northern California
550 Kearny Street, Suite 1000
San Francisco, CA 94108
Phone: (415) 567-7500
Fax: (415) 567-7600
Toll-Free: (800) 338-3041
RP International
P.O. Box 900
Woodland Hills, CA 91365
Phone: (818) 992-0500
Fax: (818) 992-3265
Sequoia Braille Transcribers
19372 Avenue 218
Lindsay, CA 93247
Phone: (559) 744-3044
Society for the Blind
1238 S Street
Sacramento, CA 95811
Phone: (916) 452-8271
Fax: (916) 492-2487
St. Mary Low Vision Center
1055 Linden Avenue
Long Beach, CA 90813
Phone: (562) 491-9275
Fax: (562) 491-9934
The Hatlen Center, A Program of Junior Blind
2430 Road 20 #B112
San Pablo, CA 94806-5005
Phone: (510) 234-4984
Fax: (510) 234-4986
Therapeutic Living Centers for the Blind
7915 Lindley Avenue
Reseda, CA 91335
Phone: (818) 708-1740
Fax: (818) 708-7899
University of California, San Francisco: Beckman Vision Center
ACC Building
400 Parnassus Avenue
Seventh Floor
San Francisco, CA 94143
Phone: (415) 353-2800
Valley Center for the Blind
3417 W. Shaw Avenue
Fresno, CA 93711
Phone: (559) 222-4447
Fax: (559) 222-4844
Ventura County Braille Transcribers Association
2299 Newquist Ct.
Camarillo, CA 93010
Vista Center for the Blind and Visually Impaired
3200 Hillview Avenue
Suite 120
Palo Alto, CA 94304
Phone: (650) 858-0202
Fax: (650) 858-0214
WestEd Center for Prevention and Early Intervention
730 Harrison Street
Sacramento, CA 94107
Phone: (415) 565-3000
Fax: (415) 565-3012
Cerebral Palsy
UCP of Central California
4224 N Cedar Ave.
Fresno, CA 93726
Phone: (559) 221-8272
UCP of Los Angeles, Ventura & Santa Barbara Counties
6430 Independence Ave.
Woodland Hills, CA 91367
Phone: (818) 782-2211
Twitter: @UCPLA
Website: http://www.ucpla.org
 UCP of Orange County
980 Roosevelt Suite 100
Irvine, CA 92620
Phone: (949) 333-6400
UCP of Sacramento and Northern California
4350 Auburn Blvd.
Sacramento, CA 95841
Phone: (916) 565-7700
Twitter: @UCPsacramento
UCP of San Diego County
8525 Gibbs Dr. Suite 209
San Diego, CA 92123
Phone: (858) 571-7803
Website: http://www.ucpsd.org
UCP of San Joaquin, Calaveras & Amador Counties
333 W Benjamin Holt Dr. Suite 1
Stockton, CA 95207
Phone: (209) 956-0290
UCP of San Luis Obispo
3620 Sacramento Dr. Suite 201
San Luis Obispo, CA 93401
Phone: (805) 543-2039
Twitter: @UCPSLO
 UCP of Stanislaus and Tuolumne Counties
4265 Spyres Way Suite 2
Modesto, CA 95356
Phone: (209) 577-2122
Twitter: @UCP_Stanislaus
Website: http://ucpstan.org
UCP of the Golden Gate
1521 Webster St.
Oakland, CA 94612
Phone: (510) 832-7430
Twitter: @UCPGG
UCP of the Inland Empire
35-325 Date Palm Dr. Suite 139
Cathedral City, CA 92234
Phone: (760) 321-8184
UCP of the North Bay
3835 Cypress Dr.
Petaluma, CA 94954
Phone: (707) 766-9990
Congenital Heart Defect
Adult Congenital Cardiology Program at UC San Francisco
University of California Medical Center
San Francisco, CA
Phone: (415) 353-2873
Medical Director: Ian S. Harris, MD
Adult Congenital Heart Clinic
Sutter Medical Center, Sacramento
Sacramento, CA
Phone: (916) 887-4242 X5
Medical Director: Pei-Hsiu Huang, MD
Adult Congenital Heart Disease Care Program at Keck Medical Center
Keck Hospital of USC
Los Angeles, CA
Phone: (323) 442-7669
Medical Director: Philip Chang, MD, FHRS
Adult Congenital Heart Disease Center
Loma Linda University Medical Center
Loma Linda, CA
Phone: (844) 440-2243
Adult Congenital Heart Disease Program, Division of Cardiovascular Diseases, Scripps Clinic
Scripps Green Hospital
La Jolla, CA
Phone: (858) 554-8836
Medical Director: Allen D. Johnson, MD
Adult Congenital Heart Program at Stanford
Stanford Health Care
Stanford, CA
Phone: (650) 724-9220
Medical Director: George Lui, MD
Adult Congenital Heart Program, Northern California Kaiser Permanente
Kaiser Permanente San Francisco
San Francisco, CA
Phone: (415) 833-2240
Medical Director: Alison Knauth Meadows, MD, PhD
Ahmanson/UCLA Adult Congenital Heart Disease Center
UCLA Cardiovascular Center, Ronald Reagan
Los Angeles, CA
Phone: (310) 825-9011
Medical Director: Jamil Aboulhosn, MD, FACC, FSAI
Guerin Family Congenital Heart Program
Cedars-Sinai Medical Center
Los Angeles, CA
Phone: (310) 423-1153
Medical Director: Evan M. Zahn, MD
Harbor-UCLA Structural/Adult Congenital Heart Disease Clinic
Harbor-UCLA Medical Center
Torrance, CA
Phone: (310) 222-5146
Medical Director: Priya Pillutla, MD
Kaiser Permanente Southern California Adult Congenital Heart Disease Program
Kaiser Permanente – Los Angeles Medical Center
Los Angeles, CA
Phone: (323) 783-4585
Medical Director: Daniel R. Sanchez, MD
Rady Children’s Hospital/UC San Diego Adult Congenital Heart Program
Rady Children’s Hospital San Diego
San Diego, CA
Phone: (858) 966-8888
Medical Director: James C. Perry, MD
St. Joseph Adult Congenital Heart Disease Program
St. Joseph Hospital
Orange, CA
Phone: (714) 547-0900
Medical Director: Farhouch Berdjis, MD
University of California, Davis Adult Congenital Heart Disease Program
University of California, Davis Ambulatory Clinic
Sacramento, CA
Phone: (916) 734-3761
Medical Director: William J. Bommer, MD
Cleft Lip and/or Cleft Palete
Children’s Hospital of Los Angeles, Craniofacial and Cleft Center – CPT, CFT
4650 W Sunset Blvd
Ms# #96
Los Angeles, CA 90027-6062
Phone: (323) 361-4068
Fax: (323) 361.4106
Patient Age Range: 0-21
Team Leader: Mark M. Urata, MD, DDS
Coordinator: Noreen Clarke, RN, MSN, CNS
Craniofacial/Cleft Palate Program – CPT
403 W Adams Blvd
Los Angeles, CA 90007-2664
Phone: (213) 742-1433
Fax: (213) 742-1496
Patient Age Range: 0-99
Team Leader: Libby Wilson, MD
Coordinator: Cynthia Costello
Email: ccostello@mednet.ucla.edu
Southern California Kaiser Permanente Craniofacial Team – CPT, CFT
Plastic Surgery/Craniofacial Services
Kaiser West Los Angeles
6041 Cadillac Ave
Los Angeles, CA 90034
Phone: (323) 857-2368
Fax: (323) 900-7536
Patient Age Range: 0-99
Team Leader: Andrew M. Wexler, MD, FAC
Coordinator: Lisa Andiarena, BSN, PHN, RN
Email: lisa.andiarena@kp.org
UCLA Craniofacial Team – CPT, CFT
UCLA Department of Pediatrics
10833 Le Conte Ave # 951752
Los Angeles, CA 90095-3075
Phone: (310) 825-5904
Fax: (310) 206-8616
Patient Age Range: 0-21
Team Leaders: Reza Jarrahy, MD; Wayne Ozaki, MD, DDS, FACS; Marinda Tu, MDCoordinator: Marisol Osorio
White Memorial Medical Center Cleft Palate Program – CPT
1803 Pennsylvania Ave
2nd Floor Rainbow Center
Los Angeles, CA 90033-2422
Phone: (323) 268-5000 x4677
Fax: (323) 260-5787
Patient Age Range: 0-21
Coordinator: Irmina C. Flores, RN, BSN
Craniofacial Team – CPT, CFT
Valley Children’s Hospital
9300 Valley Childrens Pl
Plastic Surgery Clinic
Madera, CA 93636-8761
Phone: (559) 353-6405
Fax: (559) 353-8370
Patient Age Range: 0-21
Team Leader: Angela M. Rodriguez, MD
Coordinator: Carol Falk, RN
Northern California Kaiser Permanente Craniofacial Program – CPT, CFT
275 W MacArthur Blvd
Department of Genetics
Oakland, CA 94611-5641
Phone: (510) 752-6779
Fax: (510) 752-7836
Patient Age Range: 0-60
Team Leaders: Katherine Dawson, MD; Robert M. Menard, MD
Coordinator: Ellen T. Peterson, MSN, PNP
Email: Ellen.Peterson@kp.org
UCSF Benioff Children’s Hospital Oakland – CPT
747 52nd St
Oakland, CA 94609-1809
Phone: (510) 428-3150
Fax: (510) 601-3989
Patient Age Range: 0-21
Team Leader: Bryant A. Toth, MD
Coordinator: Carole A. Reilly, RN, BSN
CHOC Craniofacial Team – CPT, CFT
Children’s Hospital of Orange County
1201 W La Veta Ave
Orange, CA 92868-4203
Phone: (714) 509-8763
Fax: (714) 509-4062
Patient Age Range: 0-21
Team Leader: Touran M. Zadeh, MD
Coordinator: Sharon Vargas, RN, BSN
Stanford Cleft and Craniofacial Center – CPT, CFT
730 Welch Rd
Palo Alto, CA 94304-1503
Phone: (650) 497-8654
Fax: (650) 497-8874
Patient Age Range: 0-21
Team Leaders: Jon Bernstein, PhD, MD; Rohit K. Khosla, MD
Coordinator: Elena M. Hopkins, RN, MS, PNP
Email: ehopkins@stanfordchildrens.org
Sacramento Kaiser Cleft Palate Team – CPT
1650 Response Rd
Sacramento, CA 95815-4807
Phone: (916) 614-4787
Fax: (916) 614-4768
Patient Age Range: 0-99
Team Leader: Brian Rubinstein, MD, MS
Coordinator: Robin S. Imagire, MS
Email: robin.s.imagire@kp.org
Sutter Cleft and Craniofacial Team – CPT, CFT
1625 Stockton Blvd Ste 112
Sacramento, CA 95816-7098
Phone: (916) 262-9163
Fax: (916) 262-9135
Patient Age Range: 0-21
Team Leader: Laura A. Workman, MD
Coordinator: Kathryn A. Hanson, RN Website: http://www.checksutterfirst.org/children/services/cleftpalate
U.C. Davis Cleft and Craniofacial Program – CPT
2521 Stockton Blvd Ste 7200
Sacramento, CA 95817-2207
Phone: (916) 734-2452
Fax: (916) 703-5011
Patient Age Range: 0-99
Team Leader: Craig W. Senders, MD
Coordinator: Christina T. Roth, MS
Craniofacial Team Center – CPT, CFT
Loma Linda University Children’s Hospital
2195 Club Center Dr Ste G
Specialty Team Centers
San Bernardino, CA 92408-4162
Phone: (909) 835-1818
Fax: (909) 835-1858
Patient Age Range: 0-21
Team Leaders: Stephen Hamra, MD; William Hamra, MD
Coordinator: Holly Bernardi, RN, PHN, BSN
Craniofacial Cleft Lip and Palate Team – CPT
Naval Medical Center San Diego
34800 Bob Wilson Dr
San Diego, CA 92134-1098
Phone: (619) 532-6950
Fax: (619) 532-5501
Patient Age Range: 0-21
Team Leader: Trent Douglas, MD
Coordinator: Julie Youngquist
Email: julie.m.youngquist.civ@mail.mil
Kaiser Permante San Diego Cleft Palate and Craniofacial Team – CPT
4405 Vandever Ave
Department of Pediatrics
San Diego, CA 92120-3315
Phone: (619) 516-6137
Fax: (619) 516-6145
Patient Age Range: 0-21
Team Leader: Michael S. Nelson, MD
Coordinator: Michael DuBois, RN
Email: michael.x.dubois@kp.org
Rady Children’s Hospital Cleft Palate and Craniofacial Teams – CPT, CFT
Rady Children’s Hospital
3020 Childrens Way # MC5031
San Diego, CA 92123-4223
Phone: (858) 966-5954
Fax: (858) 966-8550
Patient Age Range: 0-25
Team Leader: Marilyn C. Jones, MD
Coordinator: Peggy Dugas, RN, BSN, PHN
UCSF Craniofacial Center – CPT, CFT
1825 4th St
5th Floor, 5B
Gateway Medical Building
San Francisco, CA 94143-2350
Phone: (415) 476-9136
Fax: (415) 476-9513
Patient Age Range: 0-21
Team Leaders: Ophir D. Klein, MD, PhD; Jason H. Pomerantz, MD
Coordinator: Margaret Langham, PNP
Cleft Palate Center at Saint John’s Health Center – CPT
Providence Saint John’s Health Center
2121 Santa Monica Blvd
Santa Monica, CA 90404-2303
Phone: (310) 829-8150
Fax: (310) 829-8660
Patient Age Range: 0-99
Team Leader: Mark M. Urata, MD, DDS
Coordinator: Ann B. Masson, BSN
Crouzon syndrome
Children’s Hospital of Los Angeles
Craniofacial and Cleft Center
4650 Sunset Boulevard
MS #96
Los Angeles, CA 90027
Director: Mark Urata, MD,DDS
Phone: (323) 361-2154
Email: murata@chla.usc.edu
Coordinator: Blanca San Doval
Phone: (323) 361-4543
Website: www.chla.org
UCLA Craniofacial Clinic
10833 Le Conte Avenue
200 UCLA Medical Plaza, Suite 465
Los Angeles, CA 90095-6960
Phone: 310-825-5904
Team Leaders: Reza Jarrahy, MD, Katrina Ripple, MD, PhD
Coordinator: Marisol Osorio
University of California – San Francisco
Center for Craniofacial Anomalies
Ron Conway Family Gateway Medical Building
1825 Fourth St., Fifth Floor, 5C
San Francisco, CA 94158
Phone: (415) 476-2271
Directors: William Hoffman, MD; Jason Pomerantz, MD
Coordinator: Margaret Langham
Lucille Packard Children’s Hospital
at Stanford University
Cleft and Craniofacial Center
730 Welch Road
Palo Alto, CA 94304
Phone: (650) 497-8265
Director: H. Peter Lorenz, MD
Coordinator: Elena M. Hopkins RN, MS, PNP
The Hemangioma and Vascular Birthmark
Center of Los Angeles
425 N. Bedford Drive, Suite 203
Beverly Hills, CA 90210
Phone: (610) 301-4522
Contact: Gregory Levitin, MD, FACS
Dubowitz syndrome
California State Association
Contact: Zina Jawadi  
Email: zjawadi@hearinglossca.org
North Chapter
Coordinator: Bob Zastrow  
Email: bzastrow@hearinglossca.org
South Chapter
Coordinator: Toni Barrient
Email: tbarrient@hearinglossca.org
The Villages of San Luis Obispo
55 Broad St.
San Luis Obispo, CA 93405
Phone: (805) 543-6955
Contact: Noni Smyth   
UCI Medical Center Bldg 56
Rm 113-115
101 City Drive
Orange, CA 92868
Phone: (714) 400-7992
Chairperson: Marla Peoples
Email: marlapeoples@live.com 
Phone: (714) 771-2397
Chairperson: Robert Rennie
Email: bobrennie757@gmail.com 
Walnut Creek United Methodist Church
Education Building, Wesley Room
1543 Sunnyvale Avenue
Walnut Creek, CA 94597-1903
Phone: (925) 264-1199
Contact: Ann Thomas   
Kaiser Permanente Medical Center
Fabiola Building
3801 Howe Street
Oakland, CA 94611
Phone: (510) 886-4717
Contact: Kay Athos
Weingart Senior Center
5220 Oliva Ave.
Lakewood, CA 90712
Phone: (323) 205-6794
Contact: Katie Wright  
Email: katiewri@gmail.com
Phone: (310) 540-6322
Contact: Bill Busch      
Email: billbusch@ieee.org 
HEAR Center
301 E. Del Mar Blvd
Pasadena, CA  91101
Contact: Heather Lehr
Email: heatherlehr101@gmail.com
Contact: Jennifer Nelson
Norman P. Murrey Community Center
24932 Veterans Way
Juniper Room
Mission Viejo, CA 92692
Contact: Priscilla Kirkeby
Email: pwkirkeby@cox.net
Napa Valley Chapter
Contact:Jeannine Scott
Email: jneen@napanet.net
Veterans Memorial Senior Center
Goldstar Room
1455 Madison Ave
Redwood City, CA 94061
Phone: (650) 365-4848
Contact: Sally Edwards  
Email: sallyedwards888@gmail.com 
Phone: (650) 867-5256
Contact: Robert Hall  
Email: rhall@hearinglosspen.org 
San Diego Chapter
Contact: Charlene Sivertson
Phone: (858) 278-9630
San Francisco Chapter
The Sequoias
1400 Geary Blvd – California Room
San Francisco, CA 94108
Phone: (707) 291-0709
Contact: Kenneth Andrews   
Email: kennyandrews6@gmail.com
Phone: (415) 567-5377
Contact: Josephine Schallehn
Santa Barbara Chapter
Wood Glen Hall
3010 Foothill Road
Santa Barbara, CA 93105
Phone: (805) 584-2010
President: Cherie Alvarez, President  
Email: CherieA@hlaa-sbc.org 
Phone: (805) 563-1097
Contact: Anne Szymanski
Santa Monica Chapter
Phone: (310) 829-3884
Contact: Nanci Linke-Ellis
San Jose Masonic Center
2500 Masonic Drive
San Jose, CA 95125
President: Lynne Kinsey
Email: lkinsey@hearinglossca.org
 
Developmental Disabilities 
The Arc of California
1225 8th St Ste 350
Sacramento, CA 95815
Phone: (916) 552-6619
Diaphragmatic Hernia
Contact: Amy Schlueter
Email: California@cherubs.org
DiGeorge syndrome
Northern California 22q Family Support Group
Phone: (916) 759-9281
Parent Coordinator: Carrie Heran
Southern California 22q Family Support Group
Parent Coordinator: Livia Benjamin
Down Syndrome
Down Syndrome Association of Orange County
Costa Mesa, CA
Phone: (714) 540-5794
Website: www.dsaoc.org
Down Syndrome Connection of the Bay Area
Danville, CA
Phone: (925) 362-8660
Down Syndrome Association of Central California
Fresno, CA
Phone: (559) 228-0411
Email: om@dsacc.org
Website: www.dsacc.org
Down Syndrome Association of Hemet
Hemet, CA
Phone: (951) 852-1054
Website: www.dsaie.org
Tulips and Triumphs
Newbury Park, CA
Down Syndrome Foundation of Orange County
Newport Beach, CA
Phone: (949) 757-1177
Website: www.dsfoc.org
Club 21
Pasadena, CA
Phone: (626) 844-1821
Down Syndrome Information Alliance
Sacramento, CA
Phone: (916) 658-1686
Down Syndrome Association of San Diego
San Diego, CA
Phone: (619) 594-7389
DS Action
San Diego, CA
Phone: (619) 694-4615
Silicon Valley Down Syndrome Network
San Jose, CA
Phone: (408) 771-4796
Website: www.svdsn.org
Down Syndrome Special Needs Network
Santa Maria, CA
Phone: (805) 937-9458
Down Syndrome Association North Bay
Santa Rosa, CA
Phone: (707) 537-8001
The Arc Solano /Solano Parents United for Down Syndrome
Vallejo, CA
Phone: (707) 552-2935
Down Syndrome
Association of Los Angeles
Van Nuys, CA
Phone: (818) 786-0001
Website: www.dsala.org
Dwarfism
Contact: Jon Welch
Edwards syndrome
Robert and Linda Ely
Fremont, CA
Phone: (510) 797-7158
Kathy Piazza
Lodi, CA
Phone: (209) 712-0903
Epilepsy
Epilepsy Foundation Greater Los Angeles
5777 W Century Blvd #820
Los Angeles, California 90045-5659
United States
Phone: (310) 670-2870
Toll Free: (800) 564-0445
Epilepsy Foundation Northern California
1736 Franklin Street, Suite 450
Oakland, California 94612
United States
Phone: (510) 922-8687
Toll Free: (800) 632-3532
Epilepsy Foundation San Diego County
2055 El Cajon Blvd
San Diego, California 92104-1091
United States
Phone: (619) 296-0161
Hydrocephalous 
Bakersfield Area
Contact: Linda O’Hotto
San Diego Area
Contact: Krishna Jagannathan
Los Angeles Area
Intellectual Disabilities
The Arc of California
1225 8th St Ste 350
Sacramento, CA 95815

Phone: (916) 552-6619

Microcephaly
Contact: Bill & Melissa Middleton
Email: mbmiddleton@childrenwithmicro.org
Patau syndrome
Robert and Linda Ely
Fremont, CA
Phone: (510) 797-7158
Lodi, CA
Contact: Kathy Piazza
Phone: (209) 712-0903
Pierre Robin Sequence
Children’s Hospital of Los Angeles, Craniofacial and Cleft Center – CPT, CFT
4650 W Sunset Blvd
Ms# #96
Los Angeles, CA 90027-6062
Phone: (323) 361-4068
Fax: (323) 361-4106
Patient Age Range: 0-21
Team Leader: Mark M. Urata, MD, DDS

Coordinator: Noreen Clarke, RN, MSN, CNS

Craniofacial/Cleft Palate Program – CPT
403 W Adams Blvd
Los Angeles, CA 90007-2664
Phone: (213) 742-1433
Fax: (213) 742-1496
Patient Age Range: 0-99
Team Leader: Libby Wilson, MD

Coordinator: Cynthia Costello, PNP

Southern California Kaiser Permanente Craniofacial Team – CPT, CFT
Plastic Surgery/Craniofacial Services
Kaiser West Los Angeles
6041 Cadillac Ave
Los Angeles, CA 90034
Phone: (323) 857-2368
Fax: (323) 900-7536
Patient Age Range: 0-99
Team Leader: Andrew M. Wexler, MD, FACS
Coordinator: Lisa Andiarena, BSN, PHN, RN
Email: lisa.andiarena@kp.org
UCLA Craniofacial Team – CPT, CFT
UCLA Department of Pediatrics
10833 Le Conte Ave # 951752
Los Angeles, CA 90095-3075
Phone: (310) 825-5904
Fax: (310) 206-8616
Patient Age Range: 0-21
Team Leaders: Reza Jarrahy, MD; Wayne Ozaki, MD, DDS, FACS; Marinda Tu, MD
White Memorial Medical Center Cleft Palate Program – CPT
1803 Pennsylvania Ave
2nd Floor Rainbow Center
Los Angeles, CA 90033-2422
Phone: (323) 268-5000 x4677
Fax: (323) 260-5787
Patient Age Range: 0-21
Team Leader: Allan Perry Jr., MD

Coordinator: Irmina C. Flores, RN, BSN

Craniofacial Team – CPT, CFT
Valley Children’s Hospital
9300 Valley Childrens Pl
Plastic Surgery Clinic
Madera, CA 93636-8761
Team Phone: (559) 353-6405
Team Fax: (559) 353-8370
Patient Age Range: 0-21
Team Leader: Angela M. Rodriguez, MD

Coordinator: Carol Falk, RN

Northern California Kaiser Permanente Craniofacial Program – CPT, CFT
275 W MacArthur Blvd
Department of Genetics
Oakland, CA 94611-5641
Phone: (510) 752-6779
Fax: (510) 752-7836
Patient Age Range: 0-60
Team Leader: Katherine Dawson, MD; Robert M. Menard, MD
Coordinator: Ellen T. Peterson, MSN, PNP
Email: Ellen.Peterson@kp.org
UCSF Benioff Children’s Hospital Oakland – CPT
747 52nd St
Oakland, CA 94609-1809
Phone: (510) 428-3150
Fax: (510) 601-3989
Patient Age Range: 0-21
Team Leader: Bryant A. Toth, MD

Coordinator: Carole A. Reilly, RN, BSN

CHOC Craniofacial Team – CPT, CFT
Children’s Hospital of Orange County
1201 W La Veta Ave
Orange, CA 92868-4203
Phone: (714) 509-8763
Fax: (714) 509-4062
 Patient Age Range: 0-21
Team Leader: Touran M. Zadeh, MD
Stanford Cleft and Craniofacial Center – CPT, CFT
730 Welch Rd
Palo Alto, CA 94304-1503
Phone: (650) 497.8654
Fax: (650) 497.8874
Patient Age Range: 0-21
Team Leaders: Jon Bernstein, PhD, MD; Rohit K. Khosla, MD
Sacramento Kaiser Cleft Palate Team – CPT
1650 Response Rd
Sacramento, CA 95815-4807
Phone: (916) 614-4787
Fax: (916) 614-4768
Patient Age Range: 0-99
Team Leader: Brian Rubinstein, MD, MS
Coordinator: Robin S. Imagire, MS
Email: robin.s.imagire@kp.org
Sutter Cleft and Craniofacial Team – CPT, CFT
1625 Stockton Blvd Ste 112
Sacramento, CA 95816-7098
Phone: (916) 262-9163
Fax: (916) 262-9135
Patient Age Range: 0-21
Team Leader: Laura A. Workman, MD
Coordinator: Kathryn A. Hanson, RN Website: http://www.checksutterfirst.org/children/services/cleftpalate
U.C. Davis Cleft and Craniofacial Program – CPT
2521 Stockton Blvd Ste 7200
Sacramento, CA 95817-2207
Phone: (916) 734-2452
Fax: (916) 703-5011
Patient Age Range: 0-99
Team Leader: Craig W. Senders, MD

Coordinator: Christina T. Roth, MS

Craniofacial Team Center – CPT, CFT
Loma Linda University Children’s Hospital
2195 Club Center Dr Ste G
Specialty Team Centers
San Bernardino, CA 92408-4162
Phone: (909) 835-1818
Fax: (909) 835-1858
Patient Age Range: 0-21
Team Leaders: Stephen Hamra, MD; William Hamra, MD
Craniofacial Cleft Lip and Palate Team – CPT
Naval Medical Center San Diego
34800 Bob Wilson Dr
San Diego, CA 92134-1098
Phone: (619) 532-6950
Fax: (619) 532-5501
Patient Age Range: 0-21
Team Leader: Trent Douglas, MD
Coordinator: Julie Youngquist
Email: julie.m.youngquist.civ@mail.mil
Kaiser Permante San Diego Cleft Palate and Craniofacial Team – CPT
4405 Vandever Ave
Department of Pediatrics
San Diego, CA 92120-3315
Phone: (619) 516-6137
Fax: (619) 516-6145
Patient Age Range: 0-21
Team Leader: Michael S. Nelson, MD
Coordinator: Michael DuBois, RN
Rady Children’s Hospital Cleft Palate and Craniofacial Teams – CPT, CFT
Rady Children’s Hospital
3020 Childrens Way # MC5031
San Diego, CA 92123-4223
Phone: (858) 966-5954
Fax: (858) 966-8550
Patient Age Range: 0-25
Team Leader: Marilyn C. Jones, MD

Coordinator: Peggy Dugas, RN, BSN, PHN; Cindy Walston, LVN

UCSF Craniofacial Center – CPT, CFT
1825 4th St
5th Floor, 5B
Gateway Medical Building
San Francisco, CA 94143-2350
Phone: (415) 476-9136
Fax: (415) 476-9513
Patient Age Range: 0-21
Team Leaders: Ophir D. Klein, MD, PhD; Jason H. Pomerantz, MD

Coordinator: Margaret Langham, PNP

Cleft Palate Center at Saint John’s Health Center – CPT
Providence Saint John’s Health Center
2121 Santa Monica Blvd
Santa Monica, CA 90404-2303
Team Phone: (310) 829-8150
Patient Age Range: 0-99
Team Leader: Mark M. Urata, MD, DDS
Polymicrogyria
Foothill Ranch
Contacts: Robin and Rick
Email: Hudsonrobin@pmgawareness.org
Los Angeles
Contact: Sharie Abercrombie
Ridgecrest
Contact: Danielle Corona
San Diego
Contact: Heather Sanders
San Francisco
Contact: Catherine Jacobson
Prader-Willi syndrome

Prader-Willi California Foundation

Address: 514 N. Prospect Avenue, #110-LL
Redondo Beach CA 90277
Phone: (310) 372-5053
President: Roger Goatcher

Email: info@pwcf.org

Spina Bifida
SBA of California
1600 Wilson Blvd, Suite 800
Arlington, VA 22209
Phone: (800) 621-3141 x31
Website: www.sbaofca.org
Support Group:
Greater San Diego Support Group
Erika Jorquera – President
PO Box 232272
San Diego, CA 92193-2272
Phone: (619) 491-9018
Tessier Cleft 
Children’s Hospital of Los Angeles, Craniofacial and Cleft Center – CPT, CFT
4650 W Sunset Blvd
Ms# #96
Los Angeles, CA 90027-6062
Phone: (323) 361-4068
Fax: (323) 361-4106
Patient Age Range: 0-21
Team Leader: Mark M. Urata, MD, DDS

Coordinator: Noreen Clarke, RN, MSN, CNS; Karla A. Haynes, RN, MPH, MS, CPNP

Craniofacial/Cleft Palate Program – CPT
403 W Adams Blvd
Los Angeles, CA 90007-2664
Phone: (213) 742-1433
Fax: (213) 742-1496
Patient Age Range: 0-99
Team Leader: Libby Wilson, MD
Coordinator: Cynthia Costello, PNP
Email: ccostello@mednet.ucla.edu
Southern California Kaiser Permanente Craniofacial Team – CPT, CFT
Plastic Surgery/Craniofacial Services
Kaiser West Los Angeles
6041 Cadillac Ave
Los Angeles, CA 90034
Phone: (323) 857-2368
Fax: (323) 900-7536
Patient Age Range: 0-99
Team Leader: Andrew M. Wexler, MD, FACS
Coordinator: Lisa Andiarena, BSN, PHN, RN
Email: lisa.andiarena@kp.org
UCLA Craniofacial Team – CPT, CFT
UCLA Department of Pediatrics
10833 Le Conte Ave # 951752
Los Angeles, CA 90095-3075
Phone: (310) 825-5904
Fax: (310) 206-8616
Patient Age Range: 0-21
Team Leaders: Reza Jarrahy, MD; Wayne Ozaki, MD, DDS, FACS; Marinda Tu, MD
White Memorial Medical Center Cleft Palate Program – CPT
1803 Pennsylvania Ave
2nd Floor Rainbow Center
Los Angeles, CA 90033-2422
Phone: (323) 268-5000 x4677
Fax: (323) 260-5787
Patient Age Range: 0-21
Team Leader: Allan Perry Jr., MD

Coordinator: Irmina C. Flores, RN, BSN

Craniofacial Team – CPT, CFT
Valley Children’s Hospital
9300 Valley Childrens Pl
Plastic Surgery Clinic
Madera, CA 93636-8761
Phone: (559) 353.6405
Fax: (559) 353.8370
Patient Age Range: 0-21
Team Leader: Angela M. Rodriguez, MD

Coordinator: Carol Falk, RN

Northern California Kaiser Permanente Craniofacial Program – CPT, CFT
275 W MacArthur Blvd
Department of Genetics
Oakland, CA 94611-5641
Phone: (510) 752-6779
Fax: (510) 752-7836
Patient Age Range: 0-60
Team Leaders: Katherine Dawson, MD; Robert M. Menard, MD
Coordinator: Ellen T. Peterson, MSN, PNP
Email: Ellen.Peterson@kp.org
UCSF Benioff Children’s Hospital Oakland – CPT
747 52nd St
Oakland, CA 94609-1809
Phone: (510) 428-3150
Fax: (510) 601-3989
Patient Age Range: 0-21
Team Leader: Bryant A. Toth, MD

Coordinator: Carole A. Reilly, RN, BSN

CHOC Craniofacial Team – CPT, CFT
Children’s Hospital of Orange County
1201 W La Veta Ave
Orange, CA 92868-4203
Phone: (714) 509-8763
Fax: (714) 509-4062
Patient Age Range: 0-21
Team Leader(s): Touran M. Zadeh, MD

Team Coordinator(s): Sharon Vargas, RN, BSN

Stanford Cleft and Craniofacial Center – CPT, CFT
730 Welch Rd
Palo Alto, CA 94304-1503
Phone: (650) 497-8654

Fax: (650) 497-8874
Patient Age Range: 0-21
Team Leaders: Jon Bernstein, PhD, MD; Rohit K. Khosla, MD
Coordinator: Elena M. Hopkins, RN, MS, PNP

Sacramento Kaiser Cleft Palate Team – CPT
1650 Response Rd
Sacramento, CA 95815-4807
Phone: (916) 614-4787
Fax: (916) 614-4768
Patient Age Range: 0-99
Team Leader: Brian Rubinstein, MD, MS
Coordinator: Robin S. Imagire, MS
Email: robin.s.imagire@kp.org
Sutter Cleft and Craniofacial Team – CPT, CFT
1625 Stockton Blvd Ste 112
Sacramento, CA 95816-7098
Phone: (916) 262-9163
Fax: (916) 262-9135
Patient Age Range: 0-21
Team Leader: Laura A. Workman, MD
Coordinator: Kathryn A. Hanson, RN Website: http://www.checksutterfirst.org/children/services/cleftpalate
U.C. Davis Cleft and Craniofacial Program – CPT
2521 Stockton Blvd Ste 7200
Sacramento, CA 95817-2207
Phone: (916) 734-2452
Fax: (916) 703-5011
Patient Age Range: 0-99
Team Leader: Craig W. Senders, MD

Coordinator: Christina T. Roth, MS

Craniofacial Team Center – CPT, CFT
Loma Linda University Children’s Hospital
2195 Club Center Dr Ste G
Specialty Team Centers
San Bernardino, CA 92408-4162
Phone: (909) 835-1818
Fax: (909) 835-1858
Patient Age Range: 0-21
Team Leaders: Stephen Hamra, MD; William Hamra, MD
Craniofacial Cleft Lip and Palate Team – CPT
Naval Medical Center San Diego
34800 Bob Wilson Dr
San Diego, CA 92134-1098
Phone: (619) 532-6950
Fax: (619) 532-5501
Patient Age Range: 0-21
Team Leader(s): Trent Douglas, MD
Team Coordinator(s): Julie Youngquist
Email: julie.m.youngquist.civ@mail.mil
Kaiser Permante San Diego Cleft Palate and Craniofacial Team – CPT
4405 Vandever Ave
Department of Pediatrics
San Diego, CA 92120-3315
Phone: (619) 516-6137
Fax: (619) 516-6145
Patient Age Range: 0-21
Team Leader: Michael S. Nelson, MD
Coordinator: Michael DuBois, RN
Email: michael.x.dubois@kp.org
Rady Children’s Hospital Cleft Palate and Craniofacial Teams – CPT, CFT
Rady Children’s Hospital
3020 Childrens Way # MC5031
San Diego, CA 92123-4223
Phone: (858) 966-5954
Fax: (858) 966-8550
Patient Age Range: 0-25
Team Leader: Marilyn C. Jones, MD

Coordinator: Peggy Dugas, RN, BSN, PHN

UCSF Craniofacial Center – CPT, CFT
1825 4th St
5th Floor, 5B
Gateway Medical Building
San Francisco, CA 94143-2350
Phone: (415) 476-9136
Fax: (415) 476-9513
Patient Age Range: 0-21
Team Leaders: Ophir D. Klein, MD, PhD (Genetics); Jason H. Pomerantz, MD

Coordinator: Margaret Langham, PNP

Cleft Palate Center at Saint John’s Health Center – CPT
Providence Saint John’s Health Center
2121 Santa Monica Blvd
Santa Monica, CA 90404-2303
Phone: (310) 829-8150
Fax: (310) 829-8660
Patient Age Range: 0-99
Team Leader(s): Mark M. Urata, MD, DDS

Team Coordinator(s): Ann B. Masson, BSN

Trisomy 9
Fremont, CA
Contact: Robert and Linda Ely
Phone: (510) 797-7158
Lodi, CA
Contact: Kathy Piazza
Phone: (209) 712-0903
Turner’s syndrome 
Clinics:
Lucille Packard Children’s Hospital Stanford
Mary L Johnson Specialty Services
730 Welch Rd, 2nd Floor
Palo Alto, CA 94304
Contact: Caroline Buckway, M.D.
Phone: (650) 736-7642
Children’s Hospital Los Angeles
4650 Sunset Blvd.
Mailstop #61
Los Angeles, CA 90027
Contact: Brian Miyazaki, MD
Phone: (323) 361-4606
UC San Diego Health
200 W Arbor Dr.
San Diego, CA 92103
Contact: Karen Oerter Klein, MD
Phone: (858) 657-1636
Cardiology
Pediatric Cardiology
1201 W La Veta Ave
Orange, California  92868
Contact: Dr. Michael Recto
Phone: (714) 509-3939
Cardiology
50 Bellefontaine St # 405
Pasadena, California  91105
Phone: (626) 796-9259
Endocrinology
Contact: Dr. Pisit (Duke) Pitukcheewanont
Pediatric Endocrinology
4650 Sunset Blvd
Los Angeles, California  90027
Phone: (323) 361-4606
Contact: Dr. Mitchell Geffner
Pediatric Endocrinology
4900 Sunset Blvd
Los Angeles, California  90027
Contact: Dr. Brian Miyazaki
Phone: (323) 361-4606
Pediatric Endocrinology
4650 Sunset Blvd # 83
Los Angeles, California  90027
Contact: Dr. Monzavi Roshanak
Phone: (323) 361-4606
Pediatric Endocrinology
40595 Westlake Dr
Oakhurst, California  93644
Contact: Dr. Karen Lauterbach
Phone: (559) 448-4500
Pediatric Endocrinology
1201 W La Veta Ave
Orange, California  92868
Contact: Dr. Christine Reh
Phone: (714) 997-3000
Pediatric Endocrinology
2000 Outlet Center Dr # 110
Oxnard, California  93036
Contact: Dr. Anna Snadstrom
Phone: (805) 604-4588
Pediatric Endocrinology
3020 Children’s Way, MC 5103
San Diego, California 92123
Contact: Dr. Karen Klein
Phone: (858) 966-4032
Endocrinology
1301 20th St #460
Santa Monica, California  90404
Dr. David Geller
Phone: (310) 820-8608
Rady Children’s Hospital, UC San Diego
Endocrinology
17910 Frost Street, Ste. 200
San Diego, California 92123
Contact: Karen Oerter Klein
Phone: (858) 966-5999
Ear, Nose, and Throat
1505 Wilson Terrace #270
Glendale, California  91206
Contact: Dr. David Yun, ENT
Phone: (818) 241-2101
Pediatrics
11633  San Vicente Blvd # 206
Los Angeles, California 90049
Contact: Dr. Robert Landaw
Phone: (310) 826-5513
Pediatrics
61 Camino Alto, Suite 103
Mill Valley, California 94941
Contact: Dr. Gianna Frazee
Phone: (415) 383-0918
Pediatrics & Genetics
9300 Valley Children’s Way
Madera, California 93636
Contact: Dr. Susanna Sorrentino
Phone: (559) 353-3000
Pediatrics
8241 Rochester Ave #130
Rancho Cucamonga, California  91730
Contact: Dr. Margaret Zdarzyl
Phone: (818) 952-7251
Child & Adolescent Psychiatry
1560 E Chevy Chase Dr # 130
Glendale, California  91206
Contact: Dr. Linda Woodall
Phone: (818) 240-0340
General Practitioner
417 C Street
Galt, California  95632
Phone: (209) 745-1778
Online Support:
Achondroplasia: LPA-District 12
Aicardi syndrome: Aicardi syndrome
Alobar Holoprosencephaly: Alobar Holoprosencephaly
Amniotic Band syndrome: Amniotic band syndrome (ABS)
Angelman syndrome: Angelman Syndrome Foundation
Apert syndrome: Apert International (Apert USA)
Aplasia Cutis Congenita: Aplasia Cutis Congenita Support Group
Arthrogryposis: Arthrogryposis
Asparagine Synthetase Deficiency: Asparagine Synthetase Deficiency (ASNS gene)
Ataxic Cerebral Palsy: Families with children who have Ataxic Cerebral Palsy
Autism: California Autism Support Group (For Parents) 
Bi-lateral Renal Agenesis: Bi-lateral Renal Agenesis (Potters Syndrome)
Blind: Family ConnectBlind and visually impaired support group
Bohring-Optiz syndrome: Bohring-Optiz Syndrome Connection
Cerebral Palsy: UCP of Central California,
CHARGE syndrome: CHARGE Syndrome
Congenital Heart Defect: Children with congenital heart defectsBreastfeeding Children with Congenital Heart DefectsCongenital Heart Defect Healthy Eating GroupAdults with Congenital Heart Defects 
Cleft Lip/Palate: Support Group for Adults born with Cleft Lip and PalatesCleft Lip and Palate Foundation of Smiles, Cleft Lip & Palate Association
Clubbed Feet: Clubbed Foot support groupClub Feet Support Group for Parents
Cornelia De Lange syndrome: Cornelia De Lange Syndrome
Cortical Visual Impairment: Cortical Visual Impairment (CVI) Awareness
Crouzon syndrome: Crouzon Syndrome
Cystic Hygroma: Cystic Hygroma
Cytomegalovirus (CMV): CMV Family Support
Dandy Walker syndrome: Dandy-Walker SyndromeDandy Walker parents,
Deaf: Community for the Deaf and Hard of HearingParents of Hearing Impaired Children
Dubowitz syndrome: Dubowitz Syndrome Network, Hearing Loss Association of America- City of Orange Chapter
Developmental Disabilities: Developmental Disabilities Support Page , The Arc of California
Diaphragmatic Hernia: California Cherubs- Congenital Diaphragmatic Hernia Charity
DiGeorge syndrome: Di George Syndrome, 22q11.2 Deletion, Digeorge, VCFS etc
Down syndrome: CAPODS (California Parents of Down Syndrome)
Dwarfism: Dwarfism, Little People of the World Organization,
Edwards syndrome: edwards syndrome (trisomy18)Edwards Syndrome Families & Support – Trisomy 18Trisomy 18 Foundation Parents Connect
Encephalocele: Encephalocele Parent SupportEncephalocele Support
Epilepsy: Epilepsy Foundation of Northern California
Hydrocephalus: State of California Hydrocephalus Association Community Network
Hydrops Fetalis: Hydrops Fetalis Support GroupHydrops Fetalis Parents Support Group
Intellectual Disability: Intellectual Disabilities Support Group
Koolen de Vries syndrome: Koolen de Vries Syndrome – 17q21.31 Microdeletion Syndrome Support Group
Limb Difference: Beautiful Limb Differenceslimb difference makes no difference
Lissencephaly: Lissencephaly,  Lissencephaly Network
McCune-Albright syndrome: MAS/FD McCune-Albright Syndrome/Fibrous Dysplasia- The MAGIC FoundationMcCune Albright Syndrome and Fibrous Dysplasia
Microcephaly: Microcephaly Support Group,  Foundation for Children with Microcephaly- Official GroupMicrocephaly
Moebius syndrome: Many Faces of Moebius SyndromeMoebius syndrome Technology
Nager syndrome: Nager Syndrome
Patau syndrome: Trisomy 13 Life- Living with Patau Syndrome
Pierre Robin Sequence: Pierre Robin SequencePierre Robin Sequence Support, Awareness & Research,
Polymicrogyria: Polymicrogyria (PMG) SupportPMG Awareness Organization’s Group Page (polymicrogyria)
Potocki-Shaffer syndrome: Potocki Shaffer syndrome Family Group
PPP2R5D: PPP2R5D Families
Prader-Willi syndrome: Prader Willi Syndrome Open ForumPrader-Willi Support
Renal Agenesis: Born With A Single Kidney
Rhizomelic Chondrodysplasia Punctata (RCDP): RCDP/Rhizomelic Chondrodysplasia Punctata
Sanfilippo syndrome: Sanfilippo syndrome Support Group
Semi-lobar Holoprosencephaly: Our Olive Grace-  Semi-lobar Holoprosencephaly
Spina Bifida: Spina Bifida Association of California
Symbrachydactyly: SymbrachydactylyHelping Hands (Symbrachydactyly)
Tessier cleft: Tessier Clefts
Trisomy 9: Trisomy 9 Family 
Turner syndrome: Turner syndrome,  Turner Syndrome Connections 
VACTERL/VATER Association: VATER and VACTERL Association AwarenessVacterl and vater Association group for parents and families 
Ventriculomegaly:  VentriculomegalyBabies with ventriculomegaly

Our whole mission at Orange Socks is to be there for you.

Our whole intent is to guide you from a resources page to a forum for parents…from the links to national organizations to providing you with support where the expectant parent can be linked with a parent who has a similar situation and diagnosis. We are there to support and encourage you.

Orange Socks knows that there is no greater pain in your heart than the knowledge that your child will be born with a disability or lifelong condition, or diagnosed with one at a very young age. And it is with tremendous humility that we look forward to helping you face this challenge. Even as your heart is heavy, there’s light at the end of every tunnel. Getting to it is our job.

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