There were suspicions in utero that their baby would have Down syndrome, but they didn’t know for sure until he was born. After a lot of study and then ultimately meeting their son with Down syndrome, they have decided Grayson is perfect the way he was born.
Surprise diagnosis at NIPT (Prenatal) Test
Fear, hurt, and grief are a few of the feelings that replaced excitement when Matthew and Tamara took an NIPT test, which revealed the sex and a genetic inconsistency. Matthew and Tamara were completely taken back when they found out their child would likely to have Down syndrome.
“I think my immediate fear was that we were going to have a child with a disability until the day that we died, and it also worried me about who was going to take care of my child when we were not around,” Tamara said.
“Obviously we don’t know how to care for a child with Down Syndrome. I was more worried about my wife, her feelings, her fears and her emotions about the diagnosis, said Mathew.
Preparing for the Birth of Child with Down Syndrome
Finding out that their unborn child was likely to have Down Syndrome caused Matthew and Tamara a lot of stress, they didn’t have “him to love [yet].”
Eventually, however, the fear spun back to excitement.“We [decided we] would keep him no matter what. I heard his heartbeat before we took the test, and I would always think about that if we aborted him. We couldn’t fathom it. We see how much joy they bring to their families, and they can have completely normal lives. They can be successful and fulfill their dreams just like any other child.”
Because of the diagnosis they also felt much more prepared to take care of Grayson than they would have felt if they had found out about his down syndrome after he was born.
They scoured the internet for information on Down syndrome and other people who were going through similar things. They consulted with a genetics counselor. It was hard for Tamara to talk with other people who just didn’t understand what they were going through on a personal level. Finding organizations like, Orange Socks, helped them feel less alone in this trial of unknowns.
Parents Share What it’s Like to Have a Child with Down Syndrome
Since they welcomed Grayson into their lives, Tamara and Matthew have been beyond happy. There were some difficulties in his growth in the womb, forcing the doctors to perform an emergency C-section six weeks before Grayson’s due date, but the procedure was successful. One week later they confirmed what they thought: he had Down syndrome. Though it was hard, Tamara realized he was everything that she needed.
“He’s the best,” said Tamara, “…this kid is always happy.”
Grayson had only one cold during the first year of his life, and is very healthy in general. Grayson, is eighteen months old now.
Tamara and Matthew had done a lot of research on how to best raise their son with Down syndrome, and they have been very happy with how their son is developing. He has exceeded the doctor’s expectations.
Advice to Other Parents of Children with Disabilities
“When you see people with kids with Down syndrome you’re going to hear them say things like ‘I wouldn’t change a hair on their head,’ or ‘I would do this all over again,’ and you will think that we’re all crazy. But I promise you that you will get to the place that we are at. Grayson having Down syndrome is a part of who he is.”
“You are going to realize that this was the child that you were supposed to have, and that you’re there for a reason. I promise you that you will probably learn more from him or her than they will ever learn from you…You’re going to get to the point where this is your greatest blessing,” Tamara said.
“If we could have any control in this life, we wouldn’t change one thing.” Matthew said.
To Tamara and Matthew, Grayson is a blessing they would never want to live without. They love Grayson because of his disability and because he is their child.