Orange Socks Stories

Changing Minds and Inspiring Life

Jen and John: Encephalocele

Jen and John: Encephalocele

Jen and John were encouraged by medical professionals to abort Jackson after he was diagnosed with encephalocele.  They chose to carry him to term and thrilled they did. Jackson is now a thriving two year old who is proving doctors don't always know best. ...

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Kimberly and Bobby: VACTERL or VATER Association

Kimberly and Bobby: VACTERL or VATER Association

Kimberly and Bobby wanted to take no chances when they found out they were pregnant with their daughter Kyla.  They previously had a child who was stillborn after being diagnosed with Trisomy 13 in utero. After receiving normal test results they thought Kyla was going...

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Camille and Martin: Seizure Disorder

Camille and Martin: Seizure Disorder

Martin and Camille have four children.  Three of which have a seizure disorder. Camille and Martin were pioneers in getting appropriate services for their children.  Camille and Martin were candid about first learning about their children’s seizure disorder...

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Cindy, Mike and Evan: Spina Bifida

Cindy, Mike and Evan: Spina Bifida

Cindy and Mike were devastated when they learned that their fifth child was going to be born with spina bifida.  They were strongly encouraged to terminate the pregnancy.  30 years later they are grateful they didn’t. Evan, their son is happy his parents...

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Shirell and Danny: Prader-Willi Syndrome

Shirell and Danny: Prader-Willi Syndrome

Shirell and Danny have a 15 year old boy named Sam, who has Prader-Willi syndrome. When Sam was first born, Shirell and Danny noticed that he was floppy and looked lifeless, and the doctors discovered his issues right away. For Shirell and Danny the joys  have...

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Kecia and Kris: 3 Children with Down Syndrome

Kecia and Kris: 3 Children with Down Syndrome

Kecia and Kris were excited for the birth of their third daughter Brie.  When she was born, they discovered that she had Down syndrome.  The news was difficult for Kecia and Kris to process.  10 years later, they have realized how amazing Down syndrome is.  They have...

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Lisa and Steven: Epilepsy and Developmental Delay

Lisa and Steven: Epilepsy and Developmental Delay

Lisa and Steven have a son named Matt who has Epilepsy and and a developmental delay. When Matt was six, he had his first Grand Mal seizure; his parents took him to the doctor where he was then diagnosed with Epilepsy.  Lisa and Steven describe Matt as a loving...

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Janeen- A Grandma’s Perspective: Lissencephaly

Janeen- A Grandma’s Perspective: Lissencephaly

Janeen is the proud grandparent of Hunter, a 10 year old boy who was diagnosed with lissencephaly.  Janeen was candid about her experience with Hunter and the joy he has brought into her life and his family’s life.   A Grandma's Love Four-month-old...

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Sydney and Darren: Alobar Holoprosencephaly

Sydney and Darren: Alobar Holoprosencephaly

Sydney and Darren courageously chose life despite being told that their daughter had a fatal condition.  Grace was diagnosed with alobar holoprosencephaly.  She lived for five and a half hours and greatly impacted those around her.  Finding Beauty in...

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Amber and Justin: Down Syndrome

Amber and Justin: Down Syndrome

Justin and Amber were nervous to welcome their son, Finneas.  They learned at an ultrasound that their son would be born with some chromosome disorder.  They were told that their son would be a burden and encouraged them to have an abortion. They chose life and are...

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Emily and Bryson: Lissencephaly

Emily and Bryson: Lissencephaly

Bryson and Emily were thrilled to welcome their first child Hunter.  They started noticing that Hunter was falling behind in some of his development.  When Hunter started having seizures, they knew something was wrong. He was diagnosed with...

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