Orange Socks Stories
Changing Minds and Inspiring Life
Will: Down syndrome and Autism
Will has three older siblings and all of them have a disability. His childhood wasn’t “normal” but his siblings have shaped him into who he is today.
Maria and Brandon: Chromosomal Deletion 9Q
Chase has Chromosomal Deletion 9Q, a rare genetic condition, and a cleft lip and palate. Despite all the unknowns, his parents live each day to the fullest.
Lacey: Tessier Cleft
Tessier Cleft lip gives Christian a very different appearance from other kids but he is a typical 6-year-old that brings his family joy every day.
Kelly and Zac: Achondroplasia
When their son is born with Achondroplasia, Kelly and Zac rely on God for comfort and strength in order to find peace with their new family dynamic.
Kim: CHARGE Syndrome
When Jackie was diagnosed with CHARGE syndrome, her mom was overwhelmed by all of her impairments. Since then, she’s learned to enjoy every day with her.
Megan and Josh: Apert Syndrome
Josh and Megan learned to embrace their lives with their son who has Apert syndrome. He requires a lot of surgeries but they see him as a complete joy.
Kierra: DiGeorge Syndrome
Evanna was born with DiGeorge syndrome. A 400-day hospital stay wasn’t easy for her parents but it strengthened their marriage and love for their daughter.
Katherine and Jeff: Ellis-Van Creveld syndrome
A routine prenatal ultrasound showed Katherine’s baby had shorter limbs than was typical. Baby Arabella was misdiagnosed with fatal disorders twice while in utero. Katherine and Jeff refused to terminate the pregnancy. It wasn’t until she was born that they got...
Karen: Down Syndrome
Karen was surprised when her son was born with Down syndrome. She hopes that through her work, the world will be more accepting of those with disabilities.
Lauricia: Cornelia de Lange Syndrome
When her son was born with Cornelia de Lange syndrome, Lauricia relied on family and outside resources for support and to learn about this rare disorder.
Deborah and Kent: Traumatic Brain Injury
Heather suffered a traumatic brain injury as a child which changed the course of her life. Her parents chose to be grateful for the miracles along the way.
Angie: Stromme Syndrome
Angie worried about what her daughter’s life with Stromme syndrome would be like. She has come to learn that the world is full of loving, caring people.
Dawn: Misdiagnosis
Dean was misdiagnosed as being incompatible with life while in utero. His parents are so glad they decided to continue the pregnancy despite scrutiny.
Mandy and Steven: Hydrops Fetalis, Bilateral Renal Agenesis
Mandy is glad she didn’t terminate her pregnancy when her unborn son was diagnosed with Hydrops Fetalis. His short life meant everything to his family.
Tori and Matt: Cerebral Palsy due to CMV
During Tori’s pregnancy, she contracted CMV which resulted in Lana being born with cerebral palsy. This family finds joy every day despite the struggles.
Casey: Limb Difference
Casey was devastated to find out her baby had a limb difference. Once he was born, however, all her fears disappeared and she is humbled to be his mother.
Alyssa: Prader-Willi Syndrome
Kimber’s Prader-Willi syndrome diagnosis came as a relief to her parents. Her parents are grateful to have a daughter who is an inspiration to many.
Nancy and Daniel: PPP2R5D
Avianna was diagnosed with PPP2R5D, a very rare disorder, at age 3. Her parents learned the best thing they can do for her is being her strongest advocate.
Jenna and Dan: Pierre Robin Sequence (PRS)
It was discovered in utero that Ava would have PRS just like her dad. Jenna and Dan know what to expect but still rely on each other during challenges.
Sarah: Potocki- Shaffer Syndrome
Potocki-Shaffer syndrome is an extremely rare genetic disorder. So rare in fact that only a handful of people have been diagnosed with it. Betty, a sweet four year old, is one of those people. Her mom Sarah shared what life has been like so far caring for Betty and...
Miggy: Microgastria and Limb Reduction Complex
Lamp was diagnosed with microgastria limb reduction complex that affected all four limbs when her mom, Miggy, went in for her 18-week ultrasound. Shocked by the unexpected news, Miggy and her husband were devastated. Now seven years later, they realize how lucky...