Orange Socks Stories

Changing Minds and Inspiring Life

Lacey: Tessier Cleft

Lacey: Tessier Cleft

Tessier Cleft lip gives Christian a very different appearance from other kids but he is a typical 6-year-old that brings his family joy every day.

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Kim: CHARGE Syndrome

Kim: CHARGE Syndrome

When Jackie was diagnosed with CHARGE syndrome, her mom was overwhelmed by all of her impairments. Since then, she’s learned to enjoy every day with her.

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Katherine and Jeff: Ellis-Van Creveld syndrome

Katherine and Jeff: Ellis-Van Creveld syndrome

A routine prenatal ultrasound showed Katherine’s baby had shorter limbs than was typical.  Baby Arabella was misdiagnosed with fatal disorders twice while in utero. Katherine and Jeff refused to terminate the pregnancy. It wasn’t until she was born that they got...

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Karen: Down Syndrome

Karen: Down Syndrome

Karen was surprised when her son was born with Down syndrome. She hopes that through her work, the world will be more accepting of those with disabilities.

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Angie: Stromme Syndrome

Angie: Stromme Syndrome

Angie worried about what her daughter’s life with Stromme syndrome would be like. She has come to learn that the world is full of loving, caring people.

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Dawn: Misdiagnosis

Dawn: Misdiagnosis

Dean was misdiagnosed as being incompatible with life while in utero. His parents are so glad they decided to continue the pregnancy despite scrutiny.

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Casey: Limb Difference

Casey: Limb Difference

Casey was devastated to find out her baby had a limb difference. Once he was born, however, all her fears disappeared and she is humbled to be his mother.

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Sarah: Potocki- Shaffer Syndrome

Sarah: Potocki- Shaffer Syndrome

Potocki-Shaffer syndrome is an extremely rare genetic disorder.  So rare in fact that only a handful of people have been diagnosed with it.  Betty, a sweet four year old, is one of those people. Her mom Sarah shared what life has been like so far caring for Betty and...

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Miggy: Microgastria and Limb Reduction Complex

Miggy: Microgastria and Limb Reduction Complex

Lamp was diagnosed with microgastria limb reduction complex that affected all four limbs when her mom, Miggy, went in for her 18-week ultrasound. Shocked by the unexpected news, Miggy and her husband were devastated.  Now seven years later, they realize how lucky...

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Ann: Ataxic Cerebral Palsy and Seizure Disorder

Ann: Ataxic Cerebral Palsy and Seizure Disorder

Krissy was 10 months old when her mom Ann started noticing she couldn’t do typical things for children her age.  Krissy was later diagnosed with ataxic cerebral palsy with a seizure disorder. Ann has since been a tireless advocate for Krissy and even started a...

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Jessica: Pierre Robin Sequence, or PRS

Jessica: Pierre Robin Sequence, or PRS

Jessica and her husband were shocked to learn that their daughter, Eliana, was born with a cleft palate.  A few days later they discovered she had some other abnormalities. She was diagnosed with Pierre Robin sequence.     Bearing the Burden...

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