Orange Socks Stories
Changing Minds and Inspiring Life
Genie: ADNP Syndrome
Roland was diagnosed with ADNP syndrome at age four. Since then, his parents have spent their time researching ADNP syndrome and helping other parents too.
Gina: Down Syndrome and SMA
Larkin is the only known child to have Down syndrome and SMA, Spinal Muscular Atrophy. Her 12 years of life have been difficult, but worth every minute.
Kaitlin: Chromosome Deletion
Mason has a long list of medical complexities including a double chromosome deletion. Despite his many medical challenges, he is a light for his family.
Kellie: Spastic Quadriplegic Cerebral Palsy
Twins, Kay and Kara, were born with Spastic
Quadriplegic Cerebral Palsy. Their sister, Kellie, shares her experiences of having a sibling with a disability.
Nicole: Single Gene Mutation
Jacob is the first person to ever be diagnosed with a single gene mutation. His parents have learned to live in the moment and love their journey with him.
Ann: Twins with Spastic Quadriplegic Cerebral Palsy
Ann gave birth to beautiful identical girls. When they were only a few hours old, they noticed something might be different with them. They were later diagnosed as having spastic quadriplegic cerebral palsy. Ann shares her journey in fighting for her...
Nikki and Alan: Down Syndrome
When Wil was born with Down syndrome, his father thought his world was over. He has since realized, what a blessing Wil is to family and strangers alike.
Kayla and Josh: ADNP Syndrome
At the time of his diagnosis, Parker was the 85th case person to be diagnosed with ADNP syndrome. He has a rare genetic condition that can cause a variety of different abnormalities. Kayla and Josh talked about their journey towards finding a diagnosis and what life...
Laura and Devin: Down Syndrome
Laura and Devin had only been married for three years when Laura’s youngest sister, Annie, came to live with them. Annie has Down syndrome and was 13 years old when her mother passed away. Laura and Devin share the positive impact Annie has had on their family...
Ryann and Chuck: Spina Bifida
Ryann was a foster mom when she got a call about a baby with Spina Bifida who needed a home. She eventually adopted him and has enjoyed the journey.
Mercedes and Andy: Down Syndrome Adoption
After going through some challenging, family experiences, Mercedes and Andy decided to adopt a child with Down syndrome. They are forever grateful they did.
Connie: Cerebral Palsy
Connie has been taking care of her daughter with cerebral palsy, cognitive impairment, and a seizure disorder for 41 years. She finds happiness every day.
Courtney and John: Autism and Mood Disorder Diagnosis
Courtney and John struggled to parent their daughter who had serious behavioral issues. Once she was diagnosed with autism, things drastically improved.
Katie and Eric: Congenital Nephrotic Syndrome
Emerson was diagnosed with Congenital Nephrotic syndrome as a baby. Life has been anything but normal, but a kidney transplant will change everything.
Lacey: Syntelencephaly
Shortly after Tell was born, he was diagnosed with Syntelencephaly, a rare condition. His family has learned to find joy in their daily challenges.
Jennifer: Down Syndrome
Jennifer’s whole life has been shaped by her sister, Vanessa, who has Down syndrome. She wishes everyone could experience the wonderful life she has had.
Stephanie: Autism
Having a sibling with autism and epilepsy was difficult for Stephanie for many years. However, she loves her brother dearly and is very grateful for him.
Valorie: Cockayne Syndrome
At age 7, Jace was diagnosed with Cockayne syndrome, a rare, fatal disorder. To give him the best life possible, his mother was his strongest advocate.
Celeste: Fragile X Syndrome
Tyson has Fragile X syndrome. His diagnosis has made life anything but normal but his family learned to adapt to his needs and still enjoy family time.
Nathan: MPS II
Having a brother with MPS was challenging for Nathan growing up. He is now taking his experiences and helping others who have a sibling with a disability.
Summer: Anencephaly
After finding out her unborn baby had Anencephaly, Summer decided to embrace her time with him by carrying him to term and then donate his organs.