Orange Socks Stories

Changing Minds and Inspiring Life

Genie: ADNP Syndrome

Genie: ADNP Syndrome

Roland was diagnosed with ADNP syndrome at age four. Since then, his parents have spent their time researching ADNP syndrome and helping other parents too.

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Kayla and Josh: ADNP Syndrome

Kayla and Josh: ADNP Syndrome

At the time of his diagnosis, Parker was the 85th case person to be diagnosed with ADNP syndrome.  He has a rare genetic condition that can cause a variety of different abnormalities.  Kayla and Josh talked about their journey towards finding a diagnosis and what life...

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Laura and Devin: Down Syndrome

Laura and Devin: Down Syndrome

Laura and Devin had only been married for three years when Laura’s youngest sister, Annie, came to live with them.  Annie has Down syndrome and was 13 years old when her mother passed away. Laura and Devin share the positive impact Annie has had on their family...

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Connie: Cerebral Palsy

Connie: Cerebral Palsy

Connie has been taking care of her daughter with cerebral palsy, cognitive impairment, and a seizure disorder for 41 years. She finds happiness every day.

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Lacey: Syntelencephaly

Lacey: Syntelencephaly

Shortly after Tell was born, he was diagnosed with Syntelencephaly, a rare condition. His family has learned to find joy in their daily challenges.

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Jennifer: Down Syndrome

Jennifer: Down Syndrome

Jennifer’s whole life has been shaped by her sister, Vanessa, who has Down syndrome. She wishes everyone could experience the wonderful life she has had.

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Stephanie: Autism

Stephanie: Autism

Having a sibling with autism and epilepsy was difficult for Stephanie for many years. However, she loves her brother dearly and is very grateful for him.

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Nathan: MPS II

Nathan: MPS II

Having a brother with MPS was challenging for Nathan growing up. He is now taking his experiences and helping others who have a sibling with a disability.

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Summer: Anencephaly

Summer: Anencephaly

After finding out her unborn baby had Anencephaly, Summer decided to embrace her time with him by carrying him to term and then donate his organs.

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