Orange Socks Stories

Changing Minds and Inspiring Life

Rebekah and Chris: Achondroplasia (Dwarfism)

Rebekah and Chris: Achondroplasia (Dwarfism)

Rebekah and Chris have Achondroplasia, a form of Dwarfism. They have 2 children, one that has Dwarfism, and one that does not. Rebekah and Chris open up about what it’s like living as a little person, and how they feel now that they have a daughter with the same condition. Rebekah is a great resource to parents who receive a Dwarfism diagnosis for their child.

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Valerie and David: Down Syndrome

Valerie and David: Down Syndrome

Typical of that time era, David and his wife were encouraged to place their daughter, Sharmi, who had Down syndrome in a state institution.  They chose to keep Sharmi at home. A decision David is grateful for. Sharmi’s sister, Valerie, eventually became her...

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Gwen: Asparagine Synthetase Deficiency

Gwen: Asparagine Synthetase Deficiency

Gwen is the mother of Claire and Lola, teenagers with asparagine synthetase deficiency or ASNS.  Both Claire and Lola have microcephaly as a result of ASNS. Despite this, they have filled their family and community with love. Finding Happiness and Joy The...

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Kassy and Darren: 7 Q Chromosome Deletion

Kassy and Darren: 7 Q Chromosome Deletion

Kenai is truly one of a kind.  With only a handful of people in the world diagnosed with 7Q deletion, he is paving the way and proving doctors wrong.  His parents, Kassy and Darren, share what a joy he’s been to their family and how they are helping him grow...

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Nicole and Adam: Spina Bifida

Nicole and Adam: Spina Bifida

Piper is a vivacious little girl with spina bifida.  She surpassed the doctors’ expectations even before she was born in an in utero surgery.   High-Risk Surgery Before She Was Born “I Had a Feeling that Something Wasn’t Right” During her 16 week...

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Tiffany and TJ: Down Syndrome

Tiffany and TJ: Down Syndrome

Austin is a six year old boy who has Down syndrome.  His parents, Tiffany and TJ, share what a joy he is in their lives and to their families.  Tiffany and TJ are heavily involved in their local Down syndrome association which brings awareness and inclusion...

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Georgia and Nick: Autism

Georgia and Nick: Autism

Georgia and Nick first started noticing signs their son Lincoln was regressing developmentally.  After getting diagnosed with Autism Spectrum Disorder, they share their joys and struggles coming to terms with his diagnosis.  Winning the Lottery “That was the...

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Sandra: ADNP Syndrome

Sandra: ADNP Syndrome

It took six years for Sandra to receive a diagnosis for her son Tony.  He was diagnosed with ADNP syndrome and was the 11th person to be diagnosed.  With little information available, Sandra set out to create more awareness for her son’s extremely rare...

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Genie: ADNP Syndrome

Genie: ADNP Syndrome

Roland was diagnosed with ADNP syndrome at age four. Since then, his parents have spent their time researching ADNP syndrome and helping other parents too.

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