Katherine and Jeff: 2 with a fatal form of Dwarfism

Both of their daughters were diagnosed in utero with a fatal form of Dwarfism. They chose to continue with the pregnancy, and doctors couldn’t give them statistics, because everyone else they knew that received the same diagnosis chose to abort.

Sarah and Jeremy: Down syndrome adoption

While looking through adoption files from an orphanage in Yerevan Armenia,   Sarah saw a picture of Maria, who has Down syndrome. Sarah told us, ” I saw Maria’s face, and I had seen many other faces over the years, and they are always just so cute and you want to adopt them all, but something was very different when I saw Maria’s face. It’s like God told me, “that’s your daughter, go get her!” 

A Sister’s Insights on a Child with Down Syndrome

Priceless Children with Down Syndrome Corinne’s younger sister has Down Syndrome. Her perspective on children with Down Syndrome is something that everyone can learn from. Her love for her sister is inspiring because Corinne values her as much as she values anyone...

Tamara and Matthew: Down syndrome follow up 1 year later

About a year ago we interviewed Tamara and Matthew. Tamara was pregnant with their first child, and they had just found out that he had a 90% chance of having Down syndrome. That child, a son they named Greyson, is now 15 months old, and he was born Down syndrome....
Katherine and Jeff: 2 with a fatal form of Dwarfism

Katherine and Jeff: 2 with a fatal form of Dwarfism

Both of their daughters were diagnosed in utero with a fatal form of Dwarfism. They chose to continue with the pregnancy, and doctors ... read more

Sarah and Jeremy: Down syndrome adoption

Sarah and Jeremy: Down syndrome adoption

While looking through adoption files from an orphanage in Yerevan Armenia,   Sarah saw a picture of Maria, who has Down syndrome. Sarah read more

A Sister’s Insights on a Child with Down Syndrome

A Sister’s Insights on a Child with Down Syndrome

Priceless Children with Down Syndrome Corinne’s younger sister has Down Syndrome. Her perspective on children with Down Syndrome is ... read more

Tamara and Matthew: Down syndrome follow up 1 year later

Tamara and Matthew: Down syndrome follow up 1 year later

About a year ago we interviewed Tamara and Matthew. Tamara was pregnant with their first child, and they had just found out that he had read more

Jennifer and James: Adoption of 4 Children with Special Needs

Jennifer and James: Adoption of 4 Children with Special Needs

Listen to the Podcast Interview Internationally Adopted Children with Special Needs Jennifer and James did not plan on adopting four ... read more

Good in Our Community – PKU Adoption

Good in Our Community – PKU Adoption

For this weeks good in our community post, I wanted to focus on an amazing family. The Smith family is the type of family that we all ... read more

Call for Stories

Call for Stories

What makes Orange Socks so unique is our parent and sibling interviews.  We love sharing stories and giving hope to other families who ... read more

Parents with Achondroplasia (Dwarfism) Rear a Daughter with the Same Diagnosis

Parents with Achondroplasia (Dwarfism) Rear a Daughter with the Same Diagnosis

Rebekah and Chris have Achondroplasia, a form of Dwarfism. They have 2 children, one that has Dwarfism, and one that does not. Rebekah ... read more

Follow Friday- Catfish with Ketchup

The reason I chose to highlight this family for #followfriday was their kindness and acceptance for people with disabilities is ... read more

Amanda: Pfeiffer syndrome

Amanda: Pfeiffer syndrome

During a prenatal ultrasound, Amanda’s doctors discovered that her daughter, Emmy had some complications. Emmy’s skull had ... read more

Sharmi with Down Syndrome Defied Doctors

Sharmi with Down Syndrome Defied Doctors

We had the privilege of speaking with 92-year-old David about his daughter, lovingly referred to as Sharmi, and Valerie, Sharmi’s older read more

Follow Friday – The Hartley Hooligans

Follow Friday – The Hartley Hooligans

Gwen Hartley is a mother who we couldn’t pass up the opportunity to highlight for #followfriday. She is an incredible mother to 3 read more

Gwen: Asparagine Synthetase Deficiency

Gwen: Asparagine Synthetase Deficiency

Through Gwen’s second pregnancy, all tests came back normal and she went full term with her baby. After she was born,  her ... read more

Kassy and Darren: 7 Q Chromosome Deletion

Kassy and Darren: 7 Q Chromosome Deletion

Kassy had an average pregnancy with her son Kenai until he was unexpectedly born 5 weeks early. When he was 5 days old, doctors told ... read more

Nicole and Adam: Spina Bifida

Nicole and Adam: Spina Bifida

Nicole was pregnant when during an ultra sound, the technician noticed signs of Spina Bifida. Nicole was referred to a Perinatologist, ... read more

Caitlin and Dallin: Spinal Muscular Atrophy, or SMA, Type 1

Caitlin and Dallin: Spinal Muscular Atrophy, or SMA, Type 1

Caitlin and Dallin’s daughter, Auni, was 4 months old when they realized she wasn’t developing typically. When Auni was 7 ... read more

Follow Friday- This Little Miggy Stayed Home

We started featuring inspiring companies/people every Friday on our Instagram and Facebook, and decided that our blog would be the ... read more

Good in our Community- Canadian Barber

Good in our Community- Canadian Barber

When I first read this story, I was smiling from ear to ear.  The amount of love and patience this man has is incredible! Any person ... read more

Christie: Adoption of 26 Children With Special Needs

Christie: Adoption of 26 Children With Special Needs

Christie and her husband have adopted 35 children, 26 of them have had special needs. Christie never thought about special needs ... read more

Alie and Tyler: Asperger’s syndrome, Anencephaly and Albinism

Alie and Tyler: Asperger’s syndrome, Anencephaly and Albinism

Alie and Tyler have 3 bioligical children. Their oldest, Jack has Asperger’s syndrome. Their youngest, Owen, has Albinism. Their ... read more

Tiffany and TJ: Down syndrome

Tiffany and TJ: Down syndrome

Immediately after Tiffany and TJ’s son Austin was born, Tiffany noticed Austin’s almond shaped eyes, and she knew this was ... read more

Good in our Community- Hearing Aid Awareness

Good in our Community- Hearing Aid Awareness

This story is ticks all of the emotional buttons for me. I found myself relating on so many levels with this story. Braden has hearing ... read more

Georgia and Nick: Autism

Georgia and Nick: Autism

When Georgia and Nick’s son Lincoln was a year and a half, he was ahead in his speech, and in lots of different ways, he was a ... read more

Stephanie and Andy: Anencephaly

Stephanie and Andy: Anencephaly

Listen to the Podcast Interview Newlyweds Stephanie and Andy were elated to find out that Stephanie was pregnant. During an ultrasound, read more

Cora and Trey: Rett syndrome

Cora and Trey: Rett syndrome

Listen to the Podcast Interview When Cora and Trey's twins were missing some developmental milestones, they asked to be referred to a ... read more

Sandra: ADNP syndrome

Sandra: ADNP syndrome

Listen to the Podcast Interview After Sandra's twins were born, they noticed one of the twins, Tony, wasn't developing typically. ... read more

Good in our Community- Twitter take down

Good in our Community- Twitter take down

There is nothing I love more than a group of people coming together to rally in aiding someone in need.  That is exactly what happened ... read more

Jessica and Johnny: Goldenhar syndrome

Jessica and Johnny: Goldenhar syndrome

Listen to the Podcast Interview While Jessica was pregnant with her son Griffin, she and her husband Johnny were informed he had a ... read more

Episode 87: Jessica and Johnny- Goldenhar syndrome

While Jessica was pregnant with her son Griffin, she and her husband Johnny were informed he had a heart complication- Tetralogy of ... read more

Good in Our Community- Wheelchair-Accessible Van

Good in Our Community- Wheelchair-Accessible Van

Orange Socks mission is to inspire life despite a diagnosis.  For this section of our blog we wanted to share stories, from communities read more

Jessie and Nathan: DiGeorge syndrome and other abnormalities

Jessie and Nathan: DiGeorge syndrome and other abnormalities

Listen to the Podcast Interview During a 24 week ultrasound Jessie and Nathan were told that their unborn son, Ammon, had a heart ... read more

Genie: ADNP syndrome

Genie: ADNP syndrome

Listen to the Podcast Interview Genie had extensive genetic testing while pregnant with her son Rowland. The tests showed nothing ... read more

Gina- Down syndrome and Spinal Muscular Atrophy

Gina- Down syndrome and Spinal Muscular Atrophy

Listen to the Podcast Interview Immediately after Gina's daughter Larkin was born, Gina could tell she had Down syndrome. When Larkin ... read more

Kaitlin: Chromosome Deletion, CHD, Neurological Differences

Kaitlin: Chromosome Deletion, CHD, Neurological Differences

Listen to the Podcast Interview Kaitlin had an average pregnancy, and delivery. Shorty after Mason was born, Kaitlin was told by ... read more

Kellie-Sibling: Twin Sisters with Quadriplegic Cerebral Palsy

Kellie-Sibling: Twin Sisters with Quadriplegic Cerebral Palsy

Listen to the Podcast Interview Kellie was 3 1/2 years old when her twin sisters were born. Both twins were born with Spastic ... read more

Nicole- Single Gene Mutation

Nicole- Single Gene Mutation

Listen to the Podcast Interview While pregnant, Nicole receive a pretty grim diagnosis for her unborn son, Jacob. Doctors found a cyst ... read more

Ann: Twins with Spastic Quadriplegic Cerebral Palsy

Ann: Twins with Spastic Quadriplegic Cerebral Palsy

Listen to the Podcast Interview About 8 hours after her twin daughters, Kay and Karen and were born, they were moved to the NICU ... read more

Nikki and Alan: Down syndrome

Nikki and Alan: Down syndrome

Listen to the Podcast Interview Nikki and Alan were shocked when their newborn son Wil received a Down syndrome diagnosis. While Nikki ... read more

Kayla and Josh: ADNP syndrome

Kayla and Josh: ADNP syndrome

Listen to the Podcast Interview Kayla and Josh started realizing that their son Parker was falling behind in his development. They went read more

Laura and Devin: Sibling and Guardian- Down Syndrome

Laura and Devin: Sibling and Guardian- Down Syndrome

Listen to the Podcast Interview When Laura's mom passed away, Laura and her husband Devin took on the role of caring for Laura's sister read more

Ryann and Chuck: Spina Bifida Myelomeningocele + Hydrocephalus

Ryann and Chuck: Spina Bifida Myelomeningocele + Hydrocephalus

Listen to the Podcast Interview Jaden was born with Spina Bifida Myelomeningocele and Hydrocephalus. He went straight from the hospital read more

Mercedes and Andy: Down syndrome Adoption

Mercedes and Andy: Down syndrome Adoption

Listen to the Podcast Interview After a heart breaking year, Mercedes and Andy went on a mission trip to Haiti and served at an ... read more

Connie: Cerebral Palsy, Cognitive Impairment and Seizure Disorder

Connie: Cerebral Palsy, Cognitive Impairment and Seizure Disorder

Listen to the Podcast Interview Connie tell us what is was like raising her daughter, Farah, who has Cerebral Palsy, a cognitive ... read more

Courtney and John: Autism and Mood Disorder

Courtney and John: Autism and Mood Disorder

Listen to the Podcast Interview Courtney and John noticed their daughter Bella didn’t interact well with other children. She didn’t ... read more

Katie: Congenital Nephrotic Syndrome and Undiagnosed Seizure Disorder

Katie: Congenital Nephrotic Syndrome and Undiagnosed Seizure Disorder

Listen to the Podcast Interview At 8 weeks old Katie and Eric's daughter Emerson developed a fever, so they took her to the emergency ... read more

Lacey: Syntelencephaly and partial Agenesis of Corpus Callosum

Lacey: Syntelencephaly and partial Agenesis of Corpus Callosum

Listen to the Podcast Interview Lacey was pregnant with twins when she was told twin A wasn't developing typically. Doctors saw ... read more

Jennifer- Sibling: Down syndrome

Jennifer- Sibling: Down syndrome

Listen to the Podcast Interview Jennifer has a little sister that has Down syndrome. She also got a darling son with Down syndrome, ... read more

Stephanie- Sibling: Autism and Epilepsy

Stephanie- Sibling: Autism and Epilepsy

Listen to the Podcast Interview Stephanie's brother Mick has Autism and Epilepsy. Stephanie talks about the joys and challenges on ... read more

Valorie: Cockayne syndrome

Valorie: Cockayne syndrome

Listen to the Podcast Interview Valorie's son Jace was a typical infant. Around 12 months, his head measurements were falling behind, ... read more

Episode 69: Celeste- Fragile X Syndrome

When Celeste was pregnant she found out her son Tyson, was going to be born with Fragile X syndrome. Celeste says the hardest parts are read more

Nathan-sibling: MPS II Hunter syndrome

Nathan-sibling: MPS II Hunter syndrome

Listen to the Podcast Interview Nathan's twin brother was born with MPS II Hunter syndrome. When Nathan was 3 years old he started to ... read more

Episode 62: Caitlin and Dallin- Spinal Muscular Atrophy Type 1

Caitlin and Dallin’s daughter, Auni, was 4 months old when they realized she wasn’t developing typically. When Auni was 7 ... read more

Summer: Anencephaly

Summer: Anencephaly

Listen to the Podcast Interview Summer found out that Ares had Anencephaly during an early ultrasound and learned that if he made it to read more

Courtney: Harlequin Ichthyosis

Courtney: Harlequin Ichthyosis

Listen to the Podcast Interview Courtney had a typical, uneventful pregnancy. But, immediately after she gave birth to her daughter,   ... read more

Brittany and Tyler: Hydrocephalus, Encephalocele, and other complications.

Brittany and Tyler: Hydrocephalus, Encephalocele, and other complications.

Listen to the Podcast Interview Brittany and her husband Tyler struggled for years to get pregnant. When she got pregnant with their ... read more

Will-Sibling: 3 Siblings with Disabilities

Will-Sibling: 3 Siblings with Disabilities

Listen to the Podcast Interview Will has 3 siblings, all of whom have a disability. His sister, Heidi, has Down syndrome; and is ... read more

Maria and Brandon: Chromosomal Deletion 9Q

Maria and Brandon: Chromosomal Deletion 9Q

Listen to the Podcast Interview While Maria was pregnant with her son Chase, a prenatal ultrasound revealed a cleft lip and some ... read more

Lacey: Tessier Cleft lip and palate and Micropthalmia

Lacey: Tessier Cleft lip and palate and Micropthalmia

Listen to the Podcast Interview Doctors told Lacey throughout her pregnancy, that her unborn son Christian had many complications. Once read more

Kelly and Zac: Dwarfism- Achondroplasia

Kelly and Zac: Dwarfism- Achondroplasia

Listen to the Podcast Interview Kelly and Zac were blindsided when tests showed that their newborn son, Everett, had Achondroplasia- a ... read more

Kim: CHARGE syndrome

Kim: CHARGE syndrome

Listen to the Podcast Interview When Kim went in for a prenatal ultrasound, doctors found her baby had a cleft lip and a heart defect. ... read more

Megan and Josh: Apert syndrome and Hydrocephalus

Megan and Josh: Apert syndrome and Hydrocephalus

Listen to the Podcast Interview When Megan and Josh's son Edison was born, they both noticed some abnormalities, including syndactyly, ... read more

Kierra: 22q11 Deletion syndrome, Tracheomalacia, Pulmonary Atresia

Kierra: 22q11 Deletion syndrome, Tracheomalacia, Pulmonary Atresia

Listen to the Podcast Interview While pregnant, Kierra went in for a routine ultrasound and was told her daughter, Evanna had a major ... read more

Katherine and Jeff: Ellis-van Creveld Syndrome

Katherine and Jeff: Ellis-van Creveld Syndrome

Listen to the Podcast Interview While pregnant, Katherine's baby Arabella was diagnosed, and then re-diagnosed with several conditions ... read more

Karen: Down syndrome

Karen: Down syndrome

Listen to the Podcast Interview During her pregnancy Karen saw a high risk obstetrician- because of her age. She had routine prenatal ... read more

Lauricia: Cornelia de Lange syndrome

Lauricia: Cornelia de Lange syndrome

Listen to the Podcast Interview Lauricia had several ultrasounds during her pregnancy that indicated her son Zacchaeus was not ... read more

Deborah and Kent: Traumatic Brain Injury

Deborah and Kent: Traumatic Brain Injury

Listen to the Podcast Interview Deborah and Kent's two year old daughter drowned, and was miraculously brought back to life; As a ... read more

A Snapshot Story- Jessica: Down syndrome

A Snapshot Story- Jessica: Down syndrome

When the  doctor called Jessica  with test results that showed her unborn son would have Down syndrome, she immediately felt a sense of read more

Angie: Stromme syndrome

Angie: Stromme syndrome

Listen to the Podcast Interview During Angie's first prenatal ultrasound, Doctor's found her baby Ruby wasn't developing properly. ... read more

A Snapshot Story- Dawn: Born Typical; A Misdiagnosis Of “Incompatible With Life”-

A Snapshot Story- Dawn: Born Typical; A Misdiagnosis Of “Incompatible With Life”-

Dawn saw several specialists during her pregnancy, who all gave her baby a grim diagnosis. She was told he had Trisomy 13- Patau ... read more

Mandy and Steven: Hyrops Fetalis, and Bilateral Renal Agenesis

Mandy and Steven: Hyrops Fetalis, and Bilateral Renal Agenesis

Listen to the Podcast Interview Mandy and Steven had four girls and were excited at the possibility of their fifth child being a boy. ... read more

Tori and Matt: Cerebral Palsy due to Cytomegalovirus or CMV

Tori and Matt: Cerebral Palsy due to Cytomegalovirus or CMV

Listen to the Podcast Interview When Tori and Matt's daughter failed to sit up or roll over by the time she was 9 months,  they started read more

Casey: Limb Difference

Casey: Limb Difference

Listen to the Podcast Interview At Casey's 20 week prenatal ultrasound, doctor's could not find any arms or hands. Their baby Owen was ... read more

Alyssa: Prader-Willi syndrome

Alyssa: Prader-Willi syndrome

Listen to the Podcast Interview Immediately after Kimber was born, doctors knew there was something wrong. She slept constantly, and ... read more

Snapshot story-Ariel: Cornelia de Lange syndrome

Snapshot story-Ariel: Cornelia de Lange syndrome

While pregnant, Ariel had a nuchal translucency test on her baby. Doctor's found that the fluid pocket on the back of their baby's neck read more

Nancy and Daniel: PPP2R5D

Nancy and Daniel: PPP2R5D

Listen to the Podcast Interview Nancy and Daniel have a six year old little girl named Avianna. When Avianna was a few months old, ... read more

Jenna and Dan: Pierre Robin Sequence or PRS

Jenna and Dan: Pierre Robin Sequence or PRS

Listen to the Podcast Interview Jenna and Dan went to a prenatal ultrasound where doctors discovered their daughter Ava ... read more

Sarah: Potocki- Shaffer syndrome

Sarah: Potocki- Shaffer syndrome

Listen to the Podcast Interview Sarah had an ultrasound scare at a 20 week prenatal appointment. At a subsequent appointment with a ... read more

Miggy: Microgastria and Limb Reduction Complex

Miggy: Microgastria and Limb Reduction Complex

Listen to the Podcast Interview During a prenatal ultrasound, Miggy was told all of her baby's limbs were either misshapen, deformed, ... read more

Ann: Ataxic Cerebral Palsy and seizure disorder

Ann: Ataxic Cerebral Palsy and seizure disorder

Listen to the Podcast Interview Ann has been a tireless advocate for her daughter Chrissy, who was diagnosed with Ataxic Cerebral Palsy read more

Jessica: Pierre Robin Sequence, or PRS

Jessica: Pierre Robin Sequence, or PRS

Listen to the Podcast Interview Pierre Robin Sequence is often found in-utero, but Jessica's baby girl Eliana was not diagnosed until ... read more

Ileana and Lorenzo: Microcephaly and Cerebral Palsy

Ileana and Lorenzo: Microcephaly and Cerebral Palsy

Listen to the Podcast Interview During Ileana's 20 week ultrasound, doctors discovered her baby girl, Giselle had ventriculomegaly. ... read more

Leslie: Achondroplasia

Leslie: Achondroplasia

Listen to the Podcast Interview During a prenatal ultrasound, Leslie's doctor  told her that her daughter Lilah would be born with ... read more

Bijan and Zach: Twins with 22q11.2 deletion syndrome, or DiGeorge syndrome, and Autism

Bijan and Zach: Twins with 22q11.2 deletion syndrome, or DiGeorge syndrome, and Autism

Listen to the Podcast Interview Bijan was pregnant when she was told one of her twins had some abnormalities. They declined an ... read more

Maria: Currently pregnant with a fetal diagnosis of Trisomy 18 or Edwards syndrome

Maria: Currently pregnant with a fetal diagnosis of Trisomy 18 or Edwards syndrome

Listen to the Podcast Interview At 10 weeks pregnant Maria found out her little girl would be born with Trisomy 18, or Edwards ... read more

Sasha and Gary: Down syndrome

Sasha and Gary: Down syndrome

Listen to the Podcast Interview Sasha and Gary went to a prenatal doctors appointment where an ultrasound showed enlarged ventricles in read more

Kristin and Chris: Full Trisomy 9

Kristin and Chris: Full Trisomy 9

Listen to the Podcast Interview At Kristin's 20 week prenatal ultrasound doctors found multiple abnormalities. Although Kristin and ... read more

Tamara and Matthew: Currently pregnant with a fetal diagnosis of Down syndrome

Tamara and Matthew: Currently pregnant with a fetal diagnosis of Down syndrome

Listen to the Podcast Interview Tamara is 7 months pregnant with her first child. Early in her pregnancy, a blood test revealed their ... read more

Sariah and David: CHARGE syndrome

Sariah and David: CHARGE syndrome

Listen to the Podcast Interview Sariah had a typical pregnancy with her son David. Less than 24 hours after he was born, he was in ... read more

Adrianne and Jason: Tetra-Amelia syndrome

Adrianne and Jason: Tetra-Amelia syndrome

Listen to the Podcast Interview Header 1 Your content goes here. Edit or remove this text inline or in the module Content settings. You read more

Katie and Nathan: Rhizomelic Chondrodysplasia Punctata, or RCDP

Katie and Nathan: Rhizomelic Chondrodysplasia Punctata, or RCDP

Listen to the Podcast Interview Katie was 5 months pregnant when she and her husband went in for a routine ultrasound. When the ... read more

Terah and Brian: Down syndrome

Terah and Brian: Down syndrome

Listen to the Podcast Interview Terah and Brian tried for five years to have a child until Terah got pregnant with their daughter Indy. read more

Erika: Microcephaly

Erika: Microcephaly

Listen to the Podcast Interview Erika was six months pregnant when during an ultrasound it was discovered that her baby Erilyn ... read more

Tiffany and Nathan: Aicardi and Turner syndrome

Tiffany and Nathan: Aicardi and Turner syndrome

Listen to the Podcast Interview Tiffany and Nathan went to their 20 week appointment excited to find out the gender of their baby. ... read more

Alyssa and Ben: Aplasia Cutis Congenita

Alyssa and Ben: Aplasia Cutis Congenita

Listen to the Podcast Interview Alyssa was 5 months pregnant with their baby Will, when she was told he had some complications. A ... read more

Traci and Mike: Semi-Lobar Holoprosencephaly

Traci and Mike: Semi-Lobar Holoprosencephaly

Listen to the Podcast Interview At 4 months pregnant, Traci and Mike went to the Dr.'s office for a routine check-up, and found out ... read more

Sarah: Hydrocephalus

Sarah: Hydrocephalus

Listen to the Podcast Interview At 4 months pregnant with twin girls, Sarah found out that one of the twins had Hydrocephalus. Sarah ... read more

Jennifer and James: Adoption of Four Special Needs Children.

Jennifer and James: Adoption of Four Special Needs Children.

Jennifer and James have 10 children, four are biological and six were internationally adopted. Four of their children have special ... read more

Shirlene and Jim: 51 year-old with Down syndrome

Shirlene and Jim: 51 year-old with Down syndrome

Listen to the Podcast Interview Jim is 51 years old and has Down syndrome and his mother, Shirlene, is in her mid-80’s. Shirlene never ... read more

Krystal and Dusty: Spina Bifida and a Heart Defect

Krystal and Dusty: Spina Bifida and a Heart Defect

Listen to the Podcast Interview Early on in Krystal’s pregnancy, she was told that their baby, Amnesty, had Spina Bifida. Dr.'s ... read more

Miriellys and Alex: Trisomy 13, or Patau syndrome

Miriellys and Alex: Trisomy 13, or Patau syndrome

Listen to the Podcast Interview Miriellys was 6 months pregnant when she found out their  had a cleft lip and needed further testing to read more

Beth and Bryce: Angelman syndrome

Beth and Bryce: Angelman syndrome

Listen to the Podcast Interview Beth and Bryce have a son named Smith. After Smith was born, Beth noticed that he would not look at ... read more

Christine: Autism

Christine: Autism

Listen to the Podcast Interview Christine’s daughter Skylynn was diagnosed at 2 years old with Autism. When Skylynn was first ... read more

Phyllis and Keven: Polymicrogyria

Phyllis and Keven: Polymicrogyria

Listen to the Podcast Interview Phyllis and Keven’s youngest daughter, Laura, was not progressing as a typical  three or four month ... read more

Jen and John: Encephalocele

Jen and John: Encephalocele

Listen to the Podcast Interview Jen was pregnant when she and her husband, John, found out that their baby, named Jackson was diagnosed read more

Kimberly and Bobby: VACTERL or VATER Association

Kimberly and Bobby: VACTERL or VATER Association

Listen to the Podcast Interview Kimberly and Bobby's youngest daughter Kyla, was 7 months old when she was diagnosed with VATER ... read more

Blanche- A Grandma’s perspective: Autism

Blanche- A Grandma’s perspective: Autism

Listen to the Podcast Interview Blanche is a woman in her mid-70’s whose husband had passed in recent years. Blanche has a grandchild ... read more

Camille and Martin: Epilepsy

Camille and Martin: Epilepsy

Listen to the Podcast Interview Camille and Martin have four children, and three of them have a medically induce developmental delay. ... read more

Cindy, Mike and Evan: Spina Bifida

Cindy, Mike and Evan: Spina Bifida

Listen to the Podcast Interview Cindy and Mike are the parents of Evan who is now 29 years old and has Spina Bifida. During an ... read more

Shirell and Danny: Prader-Willi

Shirell and Danny: Prader-Willi

Listen to the Podcast Interview Shirell and Danny have a 15 year old boy named Sam, who has Prader-Willi syndrome. When Sam was first ... read more

Kecia and Kris: 3 children with Down syndrome

Kecia and Kris: 3 children with Down syndrome

Listen to the Podcast Interview Kecia and Kris have five biological children, one of which has Down syndrome. They also have two ... read more

Mckenzie: Diaphragmatic Hernia, Cystic Hygroma, and Renal Agenisis

Mckenzie: Diaphragmatic Hernia, Cystic Hygroma, and Renal Agenisis

Listen to the Podcast Interview Mckenzie had her first child, whom she named Trevor, and he has Down syndrome.  When Mckenzie found out read more

Mindy and Chris: Spina Bifida, Hydrocephalus, and Club foot

Mindy and Chris: Spina Bifida, Hydrocephalus, and Club foot

Listen to the Podcast Interview Mindy was pregnant with her and Chris’ fourth child when she went in for a routine ultrasound and found read more

Lisa and Steven: Epilepsy and Developmental Delay

Lisa and Steven: Epilepsy and Developmental Delay

Listen to the Podcast Interview Lisa and Steven have a son named Matt who has Epilepsy and and a developmental delay. When Matt was ... read more

Janeen- A Grandma’s perspective: Lissencephaly

Janeen- A Grandma’s perspective: Lissencephaly

Listen to the Podcast Interview Janeen is the grandmother of Hunter, who was diagnosed with Lissencephaly at four months old. The day ... read more

Sydney and Darren: Alobar Holoprosencephaly

Sydney and Darren: Alobar Holoprosencephaly

Listen to the Podcast Interview Sydney and Darren's baby was diagnosed with Alobar Holoprosencephaly, a condition that is incompatible ... read more

Amber and Justin: Down syndrome

Amber and Justin: Down syndrome

Listen to the Podcast Interview Amber and Justin found out their baby had issues at a 14-week pre-natal checkup. They were strongly ... read more

Emily and Bryson: Lissencephaly

Emily and Bryson: Lissencephaly

Listen to the Podcast Interview Emily and Bryson have a 10-year-old son named Hunter, who has Lissencephaly. When Hunter was three or ... read more