Sariah had a typical pregnancy with her son David. Less than 24 hours after he was born, he was in surgery to have his trachea esophageal fistula or TEF repaired

The first six weeks of his life, their son, Spencer,  had three major surgeries to repair his esophagus and trachea. It was not until Spencer was 11 years old, that he was diagnosed with CHARGE syndrome. This syndrome can cause different issues in different children, such as heart complications, a cleft palate and/or lip, growth issues, and more. For Spencer, it has caused him to be deaf, visually impaired, and have hypertonia, or poor muscle tone.

Looking for Resources?

Find or submit local and national resources for this diagnosis.

Find Resources

Do You Have A Story To Tell?

If you or someone you know has a story to share, we would love to hear it. You may even be featured on Orange Socks.

Share Your Story