DC

Suggest a Resource

 

Achondroplasia
Contact: Stephanie Brandon
Email: sbrandon@d3lpa.org
Website: http://www.d3lpa.org/

 

Autism
Autism Society of America
5167 7th St. NE
Washington, DC 20011
United States
Phone: (202) 561-5300
Email: dc-washington@autismsocietyofamerica.org
Website: http://www.autism-society.org/chapter130

DC Autism Parents
218 Emerson Street
Washington, DC 20011
United States
Phone: (202) 271-9262
Contact: Yetta Myrick
Email: info@dcautismparents.org
Website: http://www.dcautismparents.org

Special Needs Kids Info
Washington, DC
Phone: (703) 314-0452
Contact: Kate Moore Patton
Email: 
kate@specialneedskidsinfo.com
Website: http://www.specialneedskidsinfo.com

The Arc of DC, Inc.
McCormick Pavilion 415 Michigan Avenue, NE
Washington, DC 20017
Phone: (202) 636-2950
Email: arcdc@arcdc.net
Website: 
http://www.arcdc.net

Support Groups:
Chatterbox PLLC
231 44th Street NE
Washington, DC 20019
Phone: (240) 604-8559
Contact: Kristin Gaymon
Email: info@chatterboxpllc.com
Website: http://www.chatterboxpllc.com

The Lollipop Kids Foundation
2001 S Street NW Suite 300
Washington, DC 20009
Phone: (202) 640-2035
Contact:Debbie Sahlin
Email: debbie@lollipopkidsfoundation.org
Website: 
http://www.lollipopkidsfoundation.org

Additional Resources: http://www.autismspeaks.org/resource-guide/state/DC

 

Blind
Prevention of Blindness Society of Metropolitan Washington
233 Massachusetts Avenue, NE
Washington, DC 20002
Phone: (202) 234-1010
Fax: (202) 234-1020
Email: mail@youreyes.org
Website: http://www.youreyes.org

Educational Services:
District of Columbia Special Education Branch
810 First Street, NE
Washington, DC 20002
Phone: (202) 727-6436
Fax: (202) 741-0227
Email: osse@dc.gov
Website: http://osse.dc.gov/service/specialized-education

Rehabilitation Services:
District of Columbia Department on Disability Services
250 E Street, SW
Washington, DC 20024
Phone: (202) 730-1700
Fax: (202) 730-1843
Email: dds@dc.gov
Website: http://dds.dc.gov/service/services-people-blindness-and-visual-impairments

NLS Library:
DC Regional Library for the Blind and Physically Handicapped
901 G Street, NW
Room 215
Washington, DC 20001
Phone:(202) 727-2142
Fax: (202) 727-0322
TDD/TTY:(202) 727-2255
Email: lbph.dcpl@dc.gov
Website: http://dclibrary.org/services/accessibility

Library of Congress National Library Service for the Blind and Physically Handicapped
1291 Taylor Street, NW
Washington, DC 20542
Phone: (202) 707-5100
Fax: (202) 707-0712
Toll-Free: (800) 424-8567
TDD/TTY: (202) 707-0744
Email: nls@loc.gov
Website: http://www.loc.gov/nls

Other Agencies:
Columbia Lighthouse for the Blind
1825 K Street, NW
Suite 1103
Washington, DC 20006
Phone: (202) 454-6400
Fax:(202) 955-6401
Email: info@clb.org
Website: http://www.clb.org

Educational Services:
Gallaudet University: Office for Students with Disabilities
Hall Memorial Building, Room S-135
800 Florida Avenue, NE
Washington, DC 20002
Phone: (202) 651-5256
Email: oswd@gallaudet.edu
Website: http://depts.gallaudet.edu/oswd/

Office of the State Superintendent of Education (OSSE), Division of Early Learning
810 First Street, NE, 5th Floor
Suite 1200
Washington, DC 20002
Phone: (202) 727-5853
Fax: (202) 727-7230
Website: http://osse.dc.gov/service/strong-start-dc-early-intervention-program-dc-eip

Special Education Guide
1133 15th Street NW
Washington, DC 20005
Email: info@specialeducationguide.com
Website: http://www.specialeducationguide.com/

Strong Start DC Early Intervention Program
Office of the State Superintendent of Education
1371 Harvard Street, NW
Washington, DC 20009
Phone: (202) 727-3665
Website: https://osse.dc.gov/service/strong-start-dc-early-intervention-program-dc-eip

The Arc
1825 K Street NW, Suite 1200
Washington, DC 20006
Phone: (202) 534-3700
Fax:(202) 534-3731
Email: info@thearc.org
Website: http://www.thearc.org/

 

Cerebral Palsy
UCP of Washington DC & Northern Virginia3135 8th St. NE
Washington, DC 20017
Phone (202) 269-1500
Website: http://www.ucpdc.org

 

Congenital Heart Defect
Washington Adult Congenital Heart
Children’s National Health System
Washington, DC
Phone: (202) 476-4949
Director: Anitha John, MD, PhD

 

Cleft Palate and/or Cleft Lip
Children’s Cleft and Craniofacial Center – CPT, CFT
Children’s National Medical Center
111 Michigan Ave NW Ste 4W-100
Washington, DC 20010-2916
Phone: (202) 476-2157
Fax: (202) 476-3091
Patient Age Range: 0-40
Team Leader: Michael J. Boyajian, MD
Coordinator: Marie Warrick, MSA
Contact Email: mwarrick@childrensnational.org
Website: http://www.childrensnational.org

 

Crouzon syndrome
5530 Wisconsin Avenue, Suite 1250
Chevy Chase, MD 20815
Phone: (301) 986-9475
Fax: (301) 986-1974
Contact:Dr. Jeffrey C. Posnick DMD, MD, FRCS(C), FACS
Email: jposnick@drposnick.com
Website: http://www.drposnick.com

Tenley- Friendship Library
4450 Wisconsin Ave NW – Large Meeting Room
Washington, DC 20016
Phone: (202) 332-2999
Contact: Russell Misheloff
Email: rmisheloff1@gmail.com
Website: http://www.hlaadc.org

 

Developmental Disabilities
The Arc of the District of Columbia, Inc.
1825 K Street NW Suite 1200
Washington, D.C. 20006
Phone: (202) 636-2950
Email: arcdc@arcdc.net
Website: http://www.arcdc.net

 

Dwarfism
Contact: Stephanie Brandon
Email: sbrandon@d3lpa.org
Website: http://www.d3lpa.org/

 

Edwards syndrome
Ft. Meade, MD
Phone: (978) 821-8463
Contact: Gerri Alston Meggett
Email: gerri.meggett@yahoo.com

 

Epilepsy
Epilepsy Foundation Washington DC
8301 Professional Place East
Landover, Maryland 20785-2237
Toll Free: (800) 332-1000

 

Hydrocephalus
Hydrocephalus Association Community Network
Contact: Amanda Garzon & Melissa Kopolow McCall
Email: DCCommunity@hydroassoc.org

 

Intellectual Disabilities
The Arc of the District of Columbia, Inc.
1825 K Street NW Suite 1200
Washington, D.C. 20006
Phone: (202) 636-2950
Email: arcdc@arcdc.net
Website: http://www.arcdc.net

 

Patau syndrome
Ft. Meade, MD
Phone: (978) 821-8463
Contact: Gerri Alston Meggett
Email: gerri.meggett@yahoo.com

 

Pierre Robin Sequence
Children’s Cleft and Craniofacial Center – CPT, CFT
Children’s National Medical Center
111 Michigan Ave NW Ste 4W-100
Washington, DC 20010-2916
Phone: (202) 476-2157
Fax: (202) 476-3091
Patient Age Range: 0-40
Team Leader: Michael J. Boyajian, MD
Coordinator: Marie Warrick, MSA
Email: mwarrick@childrensnational.org
Website: http://www.childrensnational.org/

 

Prader-Willi syndrome
PWSA of Maryland, Virginia, and D.C.
Phone: (910) 887-8010
President: Valerie Cirino
Email: pwsamdvadc@yahoo.com

 

Spina Bifida
SBA of the Mid-Atlantic Region
1600 Wilson Blvd, Suite 800
Arlington, VA 22209
Phone: (800) 621-3141 x20
Email: mnethercutt@sbaa.org
Web: http://www.sbamar.org

 

Tessier Cleft
Children’s Cleft and Craniofacial Center – CPT, CFT
Children’s National Medical Center
111 Michigan Ave NW Ste 4W-100
Washington, DC 20010-2916
Phone: (202) 476-2157
Fax: (202) 476-3091
Patient Age Range: 0-40
Team Leader: Michael J. Boyajian, MD
Coordinator: Marie Warrick, MSA
Email: mwarrick@childrensnational.org
Website: http://www.childrensnational.org/

 

Trisomy 9
Ft. Meade, MD
Phone: (978) 821-8463
Contact: Gerri Aslton Meggett
Email: gerri.meggett@yahoo.com

 

Online Support:
Achondroplasia: LPA District 3
Aicardi syndrome: Aicardi syndrome
Alobar Holoprosencephaly: Alobar Holoprosencephaly
Amniotic Band syndrome: Amniotic band syndrome (ABS)
Angelman syndrome: Angelman Syndrome Foundation
Apert syndrome: Apert International (Apert USA)
Aplasia Cutis Congenita: Aplasia Cutis Congenita Support Group
Arthrogryposis: Arthrogryposis
Asparagine Synthetase Deficiency: Asparagine Synthetase Deficiency (ASNS gene)
Ataxic Cerebral Palsy: Families with children who have Ataxic Cerebral Palsy
Autism: Autism Speaks National Capital Area
Bi-lateral Renal Agenesis: Bi-lateral Renal Agenesis (Potters Syndrome)
Blind: Family ConnectBlind and visually impaired support group
Bohring-Optiz syndrome: Bohring-Optiz Syndrome Connection
Cerebral Palsy: United Cerebral Palsy
CHARGE syndrome: CHARGE Syndrome
Congenital Heart Defect: Children with congenital heart defects, Breastfeeding Children with Congenital Heart Defects, Congenital Heart Defect Healthy Eating Group, Adults with Congenital Heart Defects 
Cleft Lip/Palate: Support Group for Adults born with Cleft Lip and Palates, Cleft Lip and Palate Foundation of Smiles, Cleft Lip & Palate Association
Clubbed Feet: Clubbed Foot support group, Club Feet Support Group for Parents
Cornelia De Lange syndrome: Cornelia De Lange Syndrome
Cortical Visual Impairment: Cortical Visual Impairment (CVI) Awareness
Crouzon syndrome: Crouzon Syndrome
Cystic Hygroma: Cystic Hygroma
Cytomegalovirus (CMV): CMV Family Support
Dandy Walker syndrome: Dandy-Walker Syndrome, Dandy Walker parents,
Deaf: Community for the Deaf and Hard of Hearing, Parents of Hearing Impaired Children
Dubowitz syndrome: Dubowitz Syndrome Network
Developmental Disabilities: Developmental Disabilities Support Page 
Diaphragmatic Hernia: CDH Warrior Community Diaphragmatic Hernia
DiGeorge syndrome: DiGeorge Syndrome, 22q11.2 Deletion, DiGeorge, VCFS etc
Down syndrome: National Down Syndrome Society
Dwarfism: Dwarfism, Little People of the World Organization,
Edwards syndrome: Edwards syndrome (trisomy18), Edwards Syndrome Families & Support – Trisomy 18, Trisomy 18 Foundation Parents Connect
Encephalocele: Encephalocele Parent Support, Encephalocele Support
Epilepsy: Epilepsy Support Group
Hydrocephalus: DC Metropolitan Area Hydrocephalus Association Community Network
Hydrops Fetalis: Hydrops Fetalis Support Group, Hydrops Fetalis Parents Support Group
Intellectual Disability: Intellectual Disabilities Support Group
Koolen de Vries syndrome: Koolen de Vries Syndrome – 17q21.31 Microdeletion Syndrome Support Group
Limb Difference: Beautiful Limb Differences, limb difference makes no difference
Lissencephaly: Lissencephaly,  Lissencephaly Network
McCune-Albright syndrome: MAS/FD McCune-Albright Syndrome/Fibrous Dysplasia- The MAGIC Foundation, McCune Albright Syndrome and Fibrous Dysplasia
Microcephaly: Microcephaly Support Group,  Foundation for Children with Microcephaly- Official Group, Microcephaly
Moebius syndrome: Many Faces of Moebius Syndrome, Moebius syndrome Technology
Nager syndrome: Nager Syndrome
Patau syndrome: Trisomy 13 Life- Living with Patau Syndrome
Pierre Robin Sequence: Pierre Robin Sequence, Pierre Robin Sequence Support, Awareness & Research,
Polymicrogyria: Polymicrogyria (PMG) Support, PMG Awareness Organization’s Group Page (polymicrogyria)
Potocki-Shaffer syndrome: Potocki Shaffer syndrome Family Group
PPP2R5D: PPP2R5D Families
Prader-Willi syndrome: Prader Willi Syndrome Open Forum, Prader-Willi Support
Renal Agenesis: Born With A Single Kidney
Rhizomelic Chondrodysplasia Punctata (RCDP): RCDP/Rhizomelic Chondrodysplasia Punctata
Sanfilippo syndrome: Sanfilippo syndrome Support Group
Semi-lobar Holoprosencephaly: Our Olive Grace-  Semi-lobar Holoprosencephaly
Spina Bifida: United By Spina bifida
Symbrachydactyly: Symbrachydactyly, Helping Hands (Symbrachydactyly)
Tessier cleft: Tessier Clefts
Trisomy 9: Trisomy 9 Family 
Turner syndrome: Turner syndrome,  Turner Syndrome Connections 
VACTERL/VATER Association: VATER and VACTERL Association Awareness, Vacterl and vater Association group for parents and families
Ventriculomegaly:  Ventriculomegaly, Babies with ventriculomegaly

Our whole mission at Orange Socks is to be there for you.

Our whole intent is to guide you from a resources page to a forum for parents…from the links to national organizations to providing you with support where the expectant parent can be linked with a parent who has a similar situation and diagnosis. We are there to support and encourage you.

Orange Socks knows that there is no greater pain in your heart than the knowledge that your child will be born with a disability or lifelong condition, or diagnosed with one at a very young age. And it is with tremendous humility that we look forward to helping you face this challenge. Even as your heart is heavy, there’s light at the end of every tunnel. Getting to it is our job.

Suggest a Local Resource

Know of a great resource that you don’t see listed here? Submit your suggestion in the form below.