New Mexico

Suggest a Resource
Achondroplasia
Contact: Gaill Blackburn
Email: District10LPA@gmail.com
Website: http://lpadistrict10.org/

Speech, Language, and Hearing
New Mexico Speech-Language-Hearing Association
P .O. Box 87125
Albuquerque, NM, 87125
Website: http://www.nmsha.net

Special Format Library
New Mexico Library for the Blind and Physically Handicapped
1209 Camino Carlos Rey
Santa Fe, NM, 87507-5166
Website: http://www.stlib.state.nm.us/direct-and-rural-services/lbph

Developmental Disabilities
Developmental Disabilities Supports Division
New Mexico Department of Health
Harold Runnels Building
1190 S. St. Francis Drive
Santa Fe, NM 87505
Website: https://nmhealth.org/about/ddsd

 

Autism
New Mexico Autism Society
PO Box 30955
Albuquerque, NM 87190
Phone: (505) 332-0306
Email: nmautism@nmautismsociety.org
Website: http://www.nmautismsociety.org

The Arc of New Mexico

3655 Carlisle NE
Albuquerque, NM 87110-5564
Phone: (800) 358-6493
Contact: Rebecca Shuman

Bright Futures: Autism & Early Interventions, LLC
1225 Parkway Drive

Santa Fe , NM 87507

Phone: (505) 471-4505

Contact: Zoe Migel, MS, LISW, LSSW

Support Groups:
Jump Start Autism (JAC)

8500 Washington St. Northeast Suite A-1

Albuquerque, NM 87113

Phone: (505) 828-1550
Contact: Brian R. Lopez, PhD, Clinical Child Psychologist, Executive & Clinical Director

The Community Lighthouse

7801 Academy Rd. Northeast Building 2, Suite 200

Albuquerque, NM 87109

Phone: (505) 273-6300
Contact: Katherine Bassiri

Blind
Educational Services:
New Mexico State Department of Education: Special Education Office
300 Don Gaspar Street
Santa Fe, NM 87501-2786
Phone: (505) 827-6541
Fax: (505) 827-6791
Website: http://ped.state.nm.us/seo/index.htm

School for the Blind
New Mexico School for the Blind and Visually Impaired
1900 North White Sands Boulevard
Alamogordo, NM 88310
Phone: (505) 437-3505
Fax: (505) 439-4411
Toll-Free: (800) 437-3505
Website: http://www.nmsbvi.k12.nm.us/

New Mexico School for the Blind and Visually Impaired Early Childhood Programs
801 Stephen Moody St SE
Albuquerque, NM 87123
Phone: (505) 271-3060
Fax: (505) 291-5456
Toll-Free: (800) 437-3505
Website: http://www.nmsbvi.k12.nm.us

Instructional Materials Center
New Mexico Instructional Resource Center
New Mexico School for the Blind
1900 N. White Sands Boulevard
Alamogordo, NM 88310
Phone: (505) 437-3505 137
Fax: (505) 439-4417
Website: http://www.nmsbvi.k12.nm.us/content/irc.htm

Rehabilitation Services
New Mexico Commission for the Blind
2905 Rodeo Park Drive, East
Building 4, Suite 100
Santa Fe, NM 87505
Phone: (505) 476-4479
Fax: (505) 476-4475
Toll-Free: (888) 513-7968
Website: http://www.cfb.state.nm.us/

NLS Library:
New Mexico Library for the Blind and Physically Handicapped
1209 Camino Carlos Rey
Santa Fe, NM 87507-5166
Phone: (505) 476-9770
Fax: (505) 476-9776
Email: sl.lbph@state.nm.us
Website: http://nmstatelibrary.org/direct-and-rural-services/lbph

Other Agencies:
Other Agencies in New Mexico
New Mexico Family Infant Toddler Program
New Mexico Department of Health
Developmental Disabilities Supports Division
810 San Mateo
Santa Fe, NM 87506
Phone: (505) 476-8842
Fax: (505) 476-8992
Toll-Free: (877) 696-1472
Website: http://nmhealth.org/about/ddsd/cpb/fit/

Parents Reaching Out
1920 B Columbia Drive SE
Albuquerque, NM 87106
Phone: (505) 247-0192
Toll-Free: (800) 524-5176
Email: info@parentsreachingout.org
Website: http://www.parentsreachingout.org

Project for New Mexico Children Who Are Deafblind
The Center for Development and Disability
2300 Menaul NE
Albuquerque, NM 87107
Phone: (505) 272-0321
Fax: (505) 272-5280
Toll-Free: (877) 614-4051
Email: nmdb@salud.unm.edu
Website: http://cdd.unm.edu/deafblind/index.htm

 

Congenital Heart Defect
University of New Mexico Adult Congenital Heart Disease Program
University of New Mexico Hospital
Albuquerque, NM
Phone: (505) 272-6020
Medical Director: Warren Laskey, MD, MPH

 

Cleft Palate and/or Cleft Lip
University of New Mexico Cleft and Craniofacial Team – CPT
7801 Academy Rd NE
Albuquerque, NM 87109-3379
Phone: (505) 272-2302
Fax: (505) 272-0245
Patient Age Range: 0-21
Team Leader: Erica C. Bennett, MD
Coordinator: Sheree Shaw, RN
Email: slshaw@salud.umn.edu
Website: http://hospitals.unm.edu/children/ccc/index.shtml

Dubowitz syndrome
Contact: Stephen Frazier
Phone: (505) 401-4195
Email: hlaanm@juno.com
Website http://HLAAnm.homestead.com

Los Altos Christian Church
11900 Haines Ave. NE
Albuquerque, NM 87112
Contact: Jim Dillow
Phone: 505-710-8050
Email: catchjimmy@comcast.net
Website: http://www.hlaabq.com

Grace Bible Church
2801 Missouri Ave.
Las Cruces, NM 88011
Contact: David Uribe  
Phone: 575.915.4569, Text Only
Email: dvduribe@msn.com
Contact: Michael Lieberman
Phone: (575) 644-0445
Email: ml.lcmn@gmail.com  
Website: http://HLAAlc.homestead.com

Natural Grocers by Vitamin Cottage – Conference Room
3328 Cerillos Road
Santa Fe, NM  87507
Phone: (505) 603-2994
Contact: John Hooper
Email: johnhooper.ref@gmail.com

Developmental Disabilities
The Arc of New Mexico
3655 Carlisle Blvd NE
Albuquerque, NM  87110-1644
Phone: (800) 358-6493
Email: sfaubion@arcnm.org
Website: http://www.arcnm.org

 

Down syndrome
Rio Grande Down Syndrome Network
Albuquerque, NM
Phone: (505) 382-5061, 505-382-5067
Email: info@rgdsn.org
Website: http://www.rgdsn.org

Down Syndrome Foundation of Southeastern New Mexico
Roswell, NM
Phone: (575) 622-1099
Email: info@dsfsenm.org
Website: http://www.dsfsenm.org

 

Dwarfism
Contact: Gaill Blackburn
Email: District10LPA@gmail.com
Website: http://lpadistrict10.org/

 

Edwards syndrome
Cotnact: Barb VanHerreweghe
Phone: (800) 716-SOFT
Email: barbsoft@rochester.rr.com

Epilepsy Foundation
Phone: (301) 459-3700
Toll Free: (800) 332-1000

 

Intellectual Disabilities
The Arc of New Mexico
3655 Carlisle Blvd NE
Albuquerque, NM  87110-1644
Phone: (800) 358-6493
Email: sfaubion@arcnm.org
Website: http://www.arcnm.org

 

Microcephaly
Contact: Joni Miller
Email: jmiller@childrenwithmicro.org

 

Patau syndrome
Contact: Barb VanHerreweghe
Phone: (800) 716-SOFT
Email: barbsoft@rochester.rr.com

 

Pierre Robin Sequence
University of New Mexico Cleft and Craniofacial Team – CPT
7801 Academy Rd NE
Albuquerque, NM 87109-3379
Phone: (505) 272-2302
Fax: (505) 272-0245
Patient Age Range: 0-21
Team Leader: Erica C. Bennett, MD
Coordinator: Sheree Shaw, RN
Email: slshaw@salud.umn.edu
Website: http://hospitals.unm.edu/children/ccc/index.shtml

 

Prader-Willi syndrome
Phone: (800) 926-4797
Email: chapters@pwsausa.org

 

Tessier Cleft
University of New Mexico Cleft and Craniofacial Team – CPT
7801 Academy Rd NE
Albuquerque, NM 87109-3379
Phone: (505) 272-2302
Fax: (505) 272-0245
Patient Age Range: 0-21
Team Leader: Erica C. Bennett, MD
Coordinator: Sheree Shaw, RN
Email: slshaw@salud.umn.edu
Website: http://hospitals.unm.edu/children/ccc/index.shtml

 

Trisomy 9
Contact: Barb VanHerreweghe
Phone: (800) 716-SOFT
Email: barbsoft@rochester.rr.com

 

Online Support:
Achondroplasia: LPA District 10
Aicardi syndrome: Aicardi syndrome
Alobar Holoprosencephaly: Alobar Holoprosencephaly
Amniotic Band syndrome: Amniotic band syndrome (ABS)
Angelman syndrome: Angelman Syndrome Foundation
Apert syndrome: Apert International (Apert USA)
Aplasia Cutis Congenita: Aplasia Cutis Congenita Support Group
Arthrogryposis: Arthrogryposis
Asparagine Synthetase Deficiency: Asparagine Synthetase Deficiency (ASNS gene)
Ataxic Cerebral Palsy: Families with children who have Ataxic Cerebral Palsy
Autism: Autism Support Group- ALBUQUERQUE, New Mexico
Bi-lateral Renal Agenesis: Bi-lateral Renal Agenesis (Potters Syndrome)
Blind: Family ConnectBlind and visually impaired support group
Bohring-Optiz syndrome: Bohring-Optiz Syndrome Connection
Cerebral Palsy: Cerebral Palsy Parent Association of New Mexico
CHARGE syndrome: CHARGE Syndrome
Congenital Heart Defect: Children with congenital heart defects, Breastfeeding Children with Congenital Heart Defects, Congenital Heart Defect Healthy Eating Group, Adults with Congenital Heart Defects 
Cleft Lip/Palate: Support Group for Adults born with Cleft Lip and Palates, Cleft Lip and Palate Foundation of Smiles, Cleft Lip & Palate Association
Clubbed Feet: Clubbed Foot support group, Club Feet Support Group for Parents
Cornelia De Lange syndrome: Cornelia De Lange Syndrome
Cortical Visual Impairment: Cortical Visual Impairment (CVI) Awareness
Crouzon syndrome: Crouzon Syndrome
Cystic Hygroma: Cystic Hygroma
Cytomegalovirus (CMV): CMV Family Support
Dandy Walker syndrome: Dandy-Walker Syndrome, Dandy Walker parents,
Deaf: Community for the Deaf and Hard of Hearing, Parents of Hearing Impaired Children
Dubowitz syndrome: Dubowitz Syndrome Network
Developmental Disabilities: Developmental Disabilities Support Page , The Arc of New Mexico
Diaphragmatic Hernia: New Mexico Cherubs- Congenital Diaphragmatic Hernia Charity
DiGeorge syndrome: DiGeorge Syndrome, 22q11.2 Deletion, DiGeorge, VCFS etc
Down syndrome: Rio Grande Down Syndrome Network
Dwarfism: Dwarfism, Little People of the World Organization,
Edwards syndrome: edwards syndrome (trisomy18), Edwards Syndrome Families & Support – Trisomy 18, Trisomy 18 Foundation Parents Connect
Encephalocele: Encephalocele Parent Support, Encephalocele Support
Epilepsy: Epilepsy Support and Education Services
Hydrocephalus: Hydrocephalus Support Group
Hydrops Fetalis: Hydrops Fetalis Support Group, Hydrops Fetalis Parents Support Group
Intellectual Disability: Intellectual Disabilities Support Group
Koolen de Vries syndrome: Koolen de Vries Syndrome – 17q21.31 Microdeletion Syndrome Support Group
Limb Difference: Beautiful Limb Differences, limb difference makes no difference
Lissencephaly: Lissencephaly,  Lissencephaly Network
McCune-Albright syndrome: MAS/FD McCune-Albright Syndrome/Fibrous Dysplasia- The MAGIC Foundation, McCune Albright Syndrome and Fibrous Dysplasia
Microcephaly: Microcephaly Support Group,  Foundation for Children with Microcephaly- Official Group, Microcephaly
Moebius syndrome: Many Faces of Moebius Syndrome, Moebius syndrome Technology
Nager syndrome: Nager Syndrome
Patau syndrome: Trisomy 13 Life- Living with Patau Syndrome
Pierre Robin Sequence: Pierre Robin Sequence, Pierre Robin Sequence Support, Awareness & Research,
Polymicrogyria: Polymicrogyria (PMG) Support, PMG Awareness Organization’s Group Page (polymicrogyria)
Potocki-Shaffer syndrome: Potocki Shaffer syndrome Family Group
PPP2R5D: PPP2R5D Families
Prader-Willi syndrome: Prader Willi Syndrome Open Forum, Prader-Willi Support
Renal Agenesis: Born With A Single Kidney
Rhizomelic Chondrodysplasia Punctata (RCDP): RCDP/Rhizomelic Chondrodysplasia Punctata
Sanfilippo syndrome: Sanfilippo syndrome Support Group
Semi-lobar Holoprosencephaly: Our Olive Grace-  Semi-lobar Holoprosencephaly
Spina Bifida: Spina Bifida Support Group
Symbrachydactyly: Symbrachydactyly, Helping Hands (Symbrachydactyly)
Tessier cleft: Tessier Clefts
Trisomy 9: Trisomy 9 Family 
Turner syndrome: Turner syndrome,  Turner Syndrome Connections 
VACTERL/VATER Association: VATER and VACTERL Association Awareness, Vacterl and vater Association group for parents and families
Ventriculomegaly:  Ventriculomegaly, Babies with ventriculomegaly

Our whole mission at Orange Socks is to be there for you.

Our whole intent is to guide you from a resources page to a forum for parents…from the links to national organizations to providing you with support where the expectant parent can be linked with a parent who has a similar situation and diagnosis. We are there to support and encourage you.

Orange Socks knows that there is no greater pain in your heart than the knowledge that your child will be born with a disability or lifelong condition, or diagnosed with one at a very young age. And it is with tremendous humility that we look forward to helping you face this challenge. Even as your heart is heavy, there’s light at the end of every tunnel. Getting to it is our job.

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