Montana

Suggest a Resource
Achondroplasia
Contact: Kathy Snyder
Email: athleenasnyder@gmail.com
Website: http://www.lpadistrict11.org/

 

Angelman syndrome
Special Format Library
Montana Talking Book Library
1515 E Sixth Avenue
P.O. Box 201800
Helena, MT, 59620-1800
Phone: (406) 444-2064, (800) 332-3400
Website: http://msl.mt.gov/tbl/tbl.asp

Montana Speech-Language-Hearing Association
Box 215 Miles
City, MT, 59301
Phone: (406) 234-8727
Email: info@mshaonline.org
Website: http://www.mshaonline.org

 

Autism
Montana Community Autism & Asperger’s Network
Contact: Denise Dahlberg
Email: mtcaan@gmail.com
Website: http://mtcaan.org

Special Learning 1-on-1
1122 East Main Suite 4
Bozeman, MT 59715
Contact: Shawna Heiser MS BCBA
Email: speciallearning1on1@gmail.com
Website: http://www.speciallearning1on1.com

Support Groups:
Full Circle Autism & Developmental Services
1903 S Russell St
Missoula, MT 59801
Phone:
(406) 532-1615
Contact: Beth Brewer
Email: bethb@fullcirclemhc.com
Website: http://www.fullcirclemhc.com

Missoula Adult Asperger Support Group
University Center, University of Montana 32 Campus Dr.
Missoula, MT 59802
Phone: (406) 241 8164
Contact: Terry Lynch

Exceptional Family Connections
502 S 19th Ave Suite 200
Bozeman, MT 59718
Phone: (406) 577 6485
Contact: Heather Boyes
Email: haboyes@gmail.com
Website: http://exceptionalfamilyconnections.com

Parents, Let’s Unite for Kids
516 North 32nd Street
Billings, MT 59101
Phone: (406) 255 0540, (800) 222 7585
Email: info@pluk.org
Website: http://www.pluk.org

Additional Resources: https://www.autismspeaks.org/resource-guide/state/MT

 

Blind
Educational Services:
Montana Office of Public Instruction
Division of Special Education
PO BOX 202501
Helena, MT 59620-2501
Phone: (406) 444-3095
Toll-Free: (800) 231-9393
Website: http://www.opi.mt.gov/

School for the Blind Montana School for the Deaf and Blind
3911 Central Avenue
Great Falls, MT 59405
Phone: (406) 771-6000
Fax: (406) 771-6164
Email: info@msdb.mt.gov
Website: http://www.msdb.mt.gov/

State Rehabilitation Services:
Montana Vocational Rehabilitation and Blind Services
111 North Last Chance Gulch, Suite 4C
PO Box 4210
Helena, MT 59604
Phone: (406) 444-2590
Fax: (406) 444-3632
Toll-Free: (877) 296-1197
TDD/TTY: (406) 444-2590
Email: vrinfo@mt.gov
Website: http://dphhs.mt.gov/detd/vocrehab

NLS Library:
Montana Talking Book Library
1515 East Sixth Avenue
Helena, MT 59620-1800
Phone: (406) 444-2064
Fax: (406) 444-0266
Toll-Free: (800) 332-3400
TDD/TYY: (406) 444-3005
Email: mtbl@mt.gov
Website: http://msl.mt.gov/tbl/tbl.asp

Other Agencies in Montana:
Montana Independent Living Project
825 Great Northern Blvd, Suite 105
Helena, MT 59601
Phone: (406) 442-5744
Fax: (406) 442-1612
Website: http://www.milp.us/home.html

Montana Milestones Part C Intervention Program
111 Sanders Suite 305
Helena, MT 59604-4210
(406) 444-5647 (Local)
(406) 444-0230 (Fax)
http://www.dphhs.mt.gov/dsd/ddp/index.shtml

MonTECH Program Rural Institute
MonTECH 52 Corbin Hall
University of Montana
Missoula, MT 59812
Phone: (406) 243-5751
Fax: (406) 243-4730
Toll-Free: (877) 243-5511
Email: montech@ruralinstitute.umt.edu
Website: http://montech.ruralinstitute.umt.edu

Parents, Let’s Unite for Kids
516 North 32nd Street
Billings, MT 59101
Phone: (406) 255-0540
Fax: (406) 255-0523
Email: info@pluk.org
Website: http://www.pluk.org/

 

Cleft Palate and/or Cleft Lip
Helena Montana Cleft/Craniofacial Team – CPT, CFT
PO Box 202951 1400 Broadway
Cogswell Building Room A-116
Helena, MT 59620-2951
Phone: (406) 444-3620
Fax: (406) 444-2750
Patient Age Range: 0-99
Team Leader: Stephen P. Hardy, MD; Antonio Santin, MD
Coordinator: Heather Racicot, BSN, RN
Email: hracicot@mt.gov
Website: http://www.cshs.mt.gov

 

Developmental Disabilities
The Arc of Montana
616 Helena Ave Ste. 305
Helena, MT 59601
Phone: (406) 461-2384
Email: mcaferro@aware-inc.org

 

DiGeorge syndrome
Parent Contact: Raedene Wipf
Phone: (406) 539-3523
Email: wipf484@gmail.com

 

Down syndrome
Montana Down Syndrome Association
Missoula, MT
Website: http://mtdsa.org/

 

Dwarfism
Contact: Kathy Snyder
Email: athleenasnyder@gmail.com
Website: http://www.lpadistrict11.org/

 

Edwards syndrome
Contact: Barb VanHerreweghe
Phone: (800) 716-SOFT
Email: barbsoft@rochester.rr.com

 

Epilepsy
Epilepsy Foundation
Phone: (301) 459-3700
Toll Free: (800) 332-1000

 

Intellectual Disabilities
The Arc of Montana
616 Helena Ave Ste.
305 Helena, MT 59601
Phone: (406) 461-2384
Email: mcaferro@aware-inc.org

 

Patau syndrome
Contact: Barb VanHerreweghe
Phone: (800) 716-SOFT
Email: barbsoft@rochester.rr.com

 

Pierre Robin Sequence
Helena Montana Cleft/Craniofacial Team – CPT, CFT
PO Box 202951 1400 Broadway
Cogswell Building Room A-116
Helena, MT 59620-2951
Phone: (406) 444-3620
Fax: (406) 444-2750
Patient Age Range: 0-99
Team Leader: Stephen P. Hardy, MD; Antonio Santin, MD
Coordinator: Heather Racicot, BSN, RN
Email: hracicot@mt.gov
Website: http://www.cshs.mt.gov

 

Polymicrogyria
Contact: Baker Nicole Schuler
Email: nschuler@midrivers.com

 

Prader- Willi syndrome
PWSA of Montana
Contact: Fauneil Purcell, Luhi Purcell
Phone: (406) 351-3045
Email: Purcell.luhi@gmail.com 

 

Spina Bifida
Oregon Support Group
PO BOX 162 FT
Harrison, Montana 59636

 

Tessier Cleft
Helena Montana Cleft/Craniofacial Team – CPT, CFT
PO Box 202951 1400 Broadway
Cogswell Building Room A-116
Helena, MT 59620-2951
Phone: (406) 444-3620
Fax: (406) 444-2750
Patient Age Range: 0-99
Team Leader: Stephen P. Hardy, MD; Antonio Santin, MD
Coordinator: Heather Racicot, BSN, RN
Email: hracicot@mt.gov
Website: http://www.cshs.mt.gov

 

Trisomy 9
Contact: Barb VanHerreweghe
Phone: (800) 716-SOFT
Email: barbsoft@rochester.rr.com

 

Online Support:
Achondroplasia: LPA District 3
Aicardi syndrome: Aicardi syndrome
Alobar Holoprosencephaly: Alobar Holoprosencephaly
Amniotic Band syndrome: Amniotic band syndrome (ABS)
Angelman syndrome: Angelman Syndrome Foundation
Apert syndrome: Apert International (Apert USA)
Aplasia Cutis Congenita: Aplasia Cutis Congenita Support Group
Arthrogryposis: Arthrogryposis
Asparagine Synthetase Deficiency: Asparagine Synthetase Deficiency (ASNS gene)
Ataxic Cerebral Palsy: Families with children who have Ataxic Cerebral Palsy
Autism: Montana Autism, Montana Community Autism & Asperger’s Network, AMM-Autism Members of Montana – We are their voice
Bi-lateral Renal Agenesis: Bi-lateral Renal Agenesis (Potters Syndrome)
Blind: Family ConnectBlind and visually impaired support group
Bohring-Optiz syndrome: Bohring-Optiz Syndrome Connection
Cerebral Palsy: Cerebral Palsy, Cerebral Palsy Parents Information Group,
CHARGE syndrome: CHARGE Syndrome
Congenital Heart Defect: Children with congenital heart defects, Breastfeeding Children with Congenital Heart Defects, Congenital Heart Defect Healthy Eating Group, Adults with Congenital Heart Defects 
Cleft Lip/Palate: Support Group for Adults born with Cleft Lip and Palates, Cleft Lip and Palate Foundation of Smiles, Cleft Lip & Palate Association
Clubbed Feet: Clubbed Foot support group, Club Feet Support Group for Parents
Cornelia De Lange syndrome: Cornelia De Lange Syndrome
Cortical Visual Impairment: Cortical Visual Impairment (CVI) Awareness
Crouzon syndrome: Crouzon Syndrome
Cystic Hygroma: Cystic Hygroma
Cytomegalovirus (CMV): CMV Family Support
Dandy Walker syndrome: Dandy-Walker Syndrome, Dandy Walker parents,
Deaf: Community for the Deaf and Hard of Hearing, Parents of Hearing Impaired Children
Dubowitz syndrome: Dubowitz Syndrome Network
Developmental Disabilities: Developmental Disabilities Support Page 
Diaphragmatic Hernia: Montana Cherubs- Congenital Diaphragmatic Hernia Charity 
DiGeorge syndrome: Di George Syndrome, 22q11.2 Deletion, Digeorge, VCFS etc
Down syndrome: Down Syndrome Association of DelawareRun for the Buds
Dwarfism: Dwarfism, Little People of the World Organization,
Edwards syndrome: edwards syndrome (trisomy18), Edwards Syndrome Families & Support – Trisomy 18, Trisomy 18 Foundation Parents Connect
Encephalocele: Encephalocele Parent Support, Encephalocele Support
Epilepsy: Epilepsy Support Group
Hydrocephalus: Hydrocephalus, Hydrocephalus Support Group, Hydrocephalus Group
Hydrops Fetalis: Hydrops Fetalis Support Group, Hydrops Fetalis Parents Support Group
Intellectual Disability: Intellectual Disabilities Support Group,
Koolen de Vries syndrome: Koolen de Vries Syndrome – 17q21.31 Microdeletion Syndrome Support Group
Limb Difference: Beautiful Limb Differences, limb difference makes no difference
Lissencephaly: Lissencephaly,  Lissencephaly Network
McCune-Albright syndrome: MAS/FD McCune-Albright Syndrome/Fibrous Dysplasia- The MAGIC Foundation, McCune Albright Syndrome and Fibrous Dysplasia
Microcephaly: Microcephaly Support Group,  Foundation for Children with Microcephaly- Official Group, Microcephaly
Moebius syndrome: Many Faces of Moebius Syndrome, Moebius syndrome Technology
Nager syndrome: Nager Syndrome
Patau syndrome: Trisomy 13 Life- Living with Patau Syndrome
Pierre Robin Sequence: Pierre Robin Sequence, Pierre Robin Sequence Support, Awareness & Research,
Polymicrogyria: Polymicrogyria (PMG) Support, PMG Awareness Organization’s Group Page (polymicrogyria)
Potocki-Shaffer syndrome: Potocki Shaffer syndrome Family Group
PPP2R5D: PPP2R5D Families
Prader-Willi syndrome: Prader Willi Syndrome Open Forum, Prader-Willi Support
Renal Agenesis: Born With A Single Kidney
Rhizomelic Chondrodysplasia Punctata (RCDP): RCDP/Rhizomelic Chondrodysplasia Punctata
Sanfilippo syndrome: Sanfilippo syndrome Support Group
Semi-lobar Holoprosencephaly: Our Olive Grace-  Semi-lobar Holoprosencephaly
Spina Bifida: Spina Bifida Association of Alabama
Symbrachydactyly: Symbrachydactyly, Helping Hands (Symbrachydactyly)
Tessier cleft: Tessier Clefts
Trisomy 9: Trisomy 9 Family 
Turner syndrome: Turner syndrome,  Turner Syndrome Connections 
VACTERL/VATER Association: VATER and VACTERL Association Awareness, Vacterl and vater Association group for parents and families
Ventriculomegaly:  Ventriculomegaly, Babies with ventriculomegaly

Our whole mission at Orange Socks is to be there for you.

Our whole intent is to guide you from a resources page to a forum for parents…from the links to national organizations to providing you with support where the expectant parent can be linked with a parent who has a similar situation and diagnosis. We are there to support and encourage you.

Orange Socks knows that there is no greater pain in your heart than the knowledge that your child will be born with a disability or lifelong condition, or diagnosed with one at a very young age. And it is with tremendous humility that we look forward to helping you face this challenge. Even as your heart is heavy, there’s light at the end of every tunnel. Getting to it is our job.

Suggest a Local Resource

Know of a great resource that you don’t see listed here? Submit your suggestion in the form below.

Fill out my online form.