Idaho

Suggest a Resource
Achondroplasia
Contact: Kathy Snyder
Email: athleenasnyder@gmail.com
Website: http://www.lpadistrict11.org/

 

Angelman syndrome
Assistive Technology Idaho Center for Assistive Technology Center on Disability & Human Development
University of Idaho
1187 Alturas Dr
Moscow, ID 83843
Email: idahoat@uidaho.edu
Website: http://idahoat.org

Epilepsy Foundation of Idaho
310 W. Idaho
Boise, ID, 83702
Phone: (208) 344-4340, (800) 237-6676
Email: efid@epilepsyidaho.org
Website: http://www.epilepsyidaho.org

 

Autism
Idaho Autism
PO Box 2163
Eagle, Idaho 83616
Email: info@idahoautism.com
Website: http://idahoautism.com

Autism Society of America
441 W. 7th St., N.
Middleton, ID 83644
Phone: (208) 336-5676
Email: autism@cableone.net
Website: http://www.asatvc.org

Panhandle Autism Society
P.O. Box 3950
Coeur d’Alene, ID 83816
Phone: (208) 664-4133
Email: panhandleautismsociety@yahoo.com
Website: http://www.panhandleautismsociety.org

Support Groups:
Autism Parent Support Group
801 Pole Line Rd
Twin Falls, ID 83301
Phone: (208) 490-0796
Contact: Karee Conner
Email: Karee@Cableone.net

Madison Autism Support Group
60 W. Main Street
Rexburg, ID 83440
Phone: (208) 359-3300 x3440, (208) 359-3345
Contact: Lesa Jackson
Email: jacksonl@msd321.com

Warm Springs Counseling Center
740 Warm Springs Avenue
Boise, Idaho 83712
Contact: Stacey Taylor
Email: staylor@childrenshomesociety.com
Website: http://www.childrenshomesociety.com

Additional Resources: https://www.autismspeaks.org/resource-guide/state/ID

 

Blind
Educational Services:
Idaho State Department of Education
Bureau of Special Population Services
650 West State Street
Boise, ID 83702
Phone: (208) 332-6800
Fax: (208) 334-4664
TTD/TTY: (800) 432-4601
Website: http://www.sde.idaho.gov/site/special_edu/

School for the Blind Idaho Educational Services for the Deaf and the Blind
1450 Main Street
Gooding, ID 83330
Phone: (208) 934-4457
Fax: (208) 934-8352
Website: http://iesdb.org/

NLS Library
Idaho Commission for Libraries Talking Book Service
325 West State Street
Boise, ID 83702
PhoneL (208) 334-2150
Fax: (208) 334-4016
Toll-Free (800) 458-3271
TDD/TTY: (800) 377-1363
Email: talkingbooks@libraries.idaho.gov
Website: http://libraries.idaho.gov/tbs

Other Agencies:
Idaho Infant Toddler Program Department of Health and Welfare
450 West State Street Fifth Floor
Boise, ID 83720-0036
Phone: (208) 334-5590
Fax: (208) 332-7331
Website: http://www.infanttoddler.idaho.gov

Idaho Project for Children and Youth with Deaf-Blindness University of Idaho Boise East Front Street, Suite 440
Boise, ID 83702
Phone: (208) 364-4012
Fax: (208) 364-4078
Contact: Robin Greenfield
Email: rgreen@uidaho.edu

 

Congenital Heart Defect
Boise St. Luke’s Medical Center
Adult Congenital Heart Clinic
St. Luke’s Meridian Medical Center
Meridian, ID
Phone: 208-322-1680
Medical Director: Craig Broberg, MD

 

Cleft Palate and/or Cleft Lip
Boise Idaho Cleft Palate and Craniofacial Deformities Institute – CPT
100 E Idaho St. Suite 303
Boise, ID 83712-6269
Phone: (208) 433-1736
Fax: (208) 433- 1738
Patient Age Range: 0-18
Team Leader: Russell H. Griffiths, MD
Coordinator: Star Thomas
Email: boiseplasticsurgery@gmail.com 

 

Developmental Disabilities
The Arc Inc.
4402 Albion Street
Boise, ID 83705
Website: www.thearcinc.org
Phone: (208) 343-5583
Email: lcahill@thearcinc.org

 

Diaphragmatic Hernia
Contact: Heidi Forney
Phone: (208) 895-8741
Email: heidi.forney@cherubs.org

 

Down syndrome
 Down Syndrome Connections
NW Hayden, ID
Phone: 208-755-5079
Email: info@dsconnections.com
Website: http://www.dsconnections.com

Treasure Valley Down Syndrome Association
Meridian, ID
Phone: 208-378-9912
Email: president@idahodownsyndrome.org
Website: http://www.idahodownsyndrome.org

 

Dwarfism
Contact: Kathy Snyder
Email: athleenasnyder@gmail.com
Website: http://www.lpadistrict11.org/

 

Edwards syndrome
Contact: Barb VanHerreweghe
Phone: (800) 716-SOFT
Email: barbsoft@rochester.rr.com

 

Epilepsy
Epilepsy Foundation Idaho
100 Warm Springs Ave Suite A
Boise, Idaho 83712
Phone: (208) 344-4340

 

Intellectual Disabilities
The Arc Inc.
4402 Albion Street
Boise, ID 83705
Phone: (208) 343-5583
Email: lcahill@thearcinc.org
Website: http://www.thearcinc.org

 

Patau syndrome
Contact: Barb VanHerreweghe
Phone: (800) 716-SOFT
Email: barbsoft@rochester.rr.com

 

Pierre Robin Sequence
Boise Idaho Cleft Palate and Craniofacial Deformities Institute – CPT
100 E Idaho St. Suite 303
Boise, ID 83712-6269
Phone: (208) 433-1736
Fax: (208) 433- 1738
Patient Age Range: 0-18
Team Leader: Russell H. Griffiths, MD
Coordinator: Star Thomas
Email: boiseplasticsurgery@gmail.com 

 

Prader-Willi syndrome
Phone: (800) 926-4797
Email: chapters@pwsausa.org

 

Spina Bifida
SBA of the Intermountain Region
1600 Wilson Blvd, Suite 800
Arlington, VA 22209
Phone: (800) 621-3141 x31
Email: blong@sbaa.org
Web: http://www.sbaofir.org

 

Tessier Cleft
Boise Idaho Cleft Palate and Craniofacial Deformities Institute – CPT
100 E Idaho St. Suite 303
Boise, ID 83712-6269
Phone: (208) 433-1736
Fax: (208) 433- 1738
Patient Age Range: 0-18
Team Leader: Russell H. Griffiths, MD
Coordinator: Star Thomas
Email: boiseplasticsurgery@gmail.com 

 

Trisomy 9
Contact: Barb VanHerreweghe
Phone: (800) 716-SOFT
Email: barbsoft@rochester.rr.com

 

Online Support:
Achondroplasia: LPA District 11
Aicardi syndrome: Aicardi syndrome
Alobar Holoprosencephaly: Alobar Holoprosencephaly
Amniotic Band syndrome: Amniotic band syndrome (ABS)
Angelman syndrome: Angelman Syndrome Foundation
Apert syndrome: Apert International (Apert USA)
Aplasia Cutis Congenita: Aplasia Cutis Congenita Support Group
Arthrogryposis: Arthrogryposis
Asparagine Synthetase Deficiency: Asparagine Synthetase Deficiency (ASNS gene)
Ataxic Cerebral Palsy: Families with children who have Ataxic Cerebral Palsy
Autism: Autism Idaho, Autism in North Idaho, Southeastern Idaho Autism Moms,
Bi-lateral Renal Agenesis: Bi-lateral Renal Agenesis (Potters Syndrome)
Blind: Family ConnectBlind and visually impaired support group
Bohring-Optiz syndrome: Bohring-Optiz Syndrome Connection
Cerebral Palsy: Idaho Cerebral Palsy Support, Idaho Cerebral Palsy Awareness & Support Group
CHARGE syndrome: CHARGE Syndrome
Congenital Heart Defect: Children with congenital heart defects, Breastfeeding Children with Congenital Heart Defects, Congenital Heart Defect Healthy Eating Group, Adults with Congenital Heart Defects 
Cleft Lip/Palate: Support Group for Adults born with Cleft Lip and Palates, Cleft Lip and Palate Foundation of Smiles, Cleft Lip & Palate Association
Clubbed Feet: Clubbed Foot support group, Club Feet Support Group for Parents
Cornelia De Lange syndrome: Cornelia De Lange Syndrome
Cortical Visual Impairment: Cortical Visual Impairment (CVI) Awareness
Crouzon syndrome: Crouzon Syndrome
Cystic Hygroma: Cystic Hygroma
Cytomegalovirus (CMV): CMV Family Support
Dandy Walker syndrome: Dandy-Walker Syndrome, Dandy Walker parents,
Deaf: Community for the Deaf and Hard of Hearing, Parents of Hearing Impaired Children
Dubowitz syndrome: Dubowitz Syndrome Network
Developmental Disabilities: Developmental Disabilities Support Page 
Diaphragmatic Hernia: Idaho Cherubs- Congenital Diaphragmatic Hernia Charity
DiGeorge syndrome: DiGeorge Syndrome, 22q11.2 Deletion, DiGeorge, VCFS etc
Down syndrome: Eastern Idaho Down Syndrome Family Connections- Closed Group, South East Idaho Down Syndrome Support Group
Dwarfism: Dwarfism, Little People of the World Organization,
Edwards syndrome: Edwards syndrome (trisomy18), Edwards Syndrome Families & Support – Trisomy 18, Trisomy 18 Foundation Parents Connect
Encephalocele: Encephalocele Parent Support, Encephalocele Support
Epilepsy: Epilepsy Foundation of Idaho
Hydrocephalus: Hydrocephalus Association
Hydrops Fetalis: Hydrops Fetalis Support Group, Hydrops Fetalis Parents Support Group
Intellectual Disability: Intellectual Disabilities Support Group
Koolen de Vries syndrome: Koolen de Vries Syndrome – 17q21.31 Microdeletion Syndrome Support Group
Limb Difference: Beautiful Limb Differences, limb difference makes no difference
Lissencephaly: Lissencephaly,  Lissencephaly Network
McCune-Albright syndrome: MAS/FD McCune-Albright Syndrome/Fibrous Dysplasia- The MAGIC Foundation, McCune Albright Syndrome and Fibrous Dysplasia
Microcephaly: Microcephaly Support Group,  Foundation for Children with Microcephaly- Official Group, Microcephaly
Moebius syndrome: Many Faces of Moebius Syndrome, Moebius syndrome Technology
Nager syndrome: Nager Syndrome
Patau syndrome: Trisomy 13 Life- Living with Patau Syndrome
Pierre Robin Sequence: Pierre Robin Sequence, Pierre Robin Sequence Support, Awareness & Research,
Polymicrogyria: Polymicrogyria (PMG) Support, PMG Awareness Organization’s Group Page (polymicrogyria)
Potocki-Shaffer syndrome: Potocki Shaffer syndrome Family Group
PPP2R5D: PPP2R5D Families
Prader-Willi syndrome: Prader Willi Syndrome Open Forum, Prader-Willi Support
Renal Agenesis: Born With A Single Kidney
Rhizomelic Chondrodysplasia Punctata (RCDP): RCDP/Rhizomelic Chondrodysplasia Punctata
Sanfilippo syndrome: Sanfilippo syndrome Support Group
Semi-lobar Holoprosencephaly: Our Olive Grace-  Semi-lobar Holoprosencephaly
Spina Bifida: Spina Bifida Association of the Intermountain Region 
Symbrachydactyly: Symbrachydactyly, Helping Hands (Symbrachydactyly)
Tessier cleft: Tessier Clefts
Trisomy 9: Trisomy 9 Family 
Turner syndrome: Turner syndrome,  Turner Syndrome Connections 
VACTERL/VATER Association: VATER and VACTERL Association Awareness, Vacterl and vater Association group for parents and families
Ventriculomegaly:  Ventriculomegaly, Babies with ventriculomegaly

 

 

 

Our whole mission at Orange Socks is to be there for you.

Our whole intent is to guide you from a resources page to a forum for parents…from the links to national organizations to providing you with support where the expectant parent can be linked with a parent who has a similar situation and diagnosis. We are there to support and encourage you.

Orange Socks knows that there is no greater pain in your heart than the knowledge that your child will be born with a disability or lifelong condition, or diagnosed with one at a very young age. And it is with tremendous humility that we look forward to helping you face this challenge. Even as your heart is heavy, there’s light at the end of every tunnel. Getting to it is our job.

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