Arizona

Suggest a Resource

Achondroplasia
Contact: Gaill Blackburn
Email: District10LPA@gmail.com
Website: http://lpadistrict10.org/

 

Angelman syndrome
Arizona Technology Access Program (AZTAP)
2400 N. Central Avenue, Suite 300
Phoenix, AZ, 85004
Phone: (800) 477-9921, (602) 728-9534
TTY: (602) 728-9536
Website: http://www.nau.edu/ihd/aztap/

Epilepsy Foundation of Arizona
P.O. Box 25084
Phoenix, AZ, 85002-5084
Phone: (888) 768-2690, (602) 406-3581
Email: efaz@chw.edu
Website: http://www.epilepsyfoundation.org/arizona/

The Arizona Speech-Language-Hearing Association
P.O. Box 12334
Tempe, AZ, 85284
Phone: (602) 354-8062
Email: office@arsha.org
Website: http://www.arsha.org

 

Autism
Touchstone Behavioral Health Family Centered Autism Program
15648 N. 35th Ave
Phoenix, AZ 85054
Phone: (602) 732-4950
Contact: Elizabeth Rinaldo
Email: elizabeth.rinaldo@touchstonebh.org
Website: http://www.touchstonebh.org

Arizona Autism United
5025 E Washington St Suite 212
Phoenix, AZ 85034
Phone: (602) 773-5773
Contact: Aaron Blocker-Rubin
Email: info@azunited.org
Website: http://www.azaunited.org

Autism 2 Awesome
4727 E Bell Rd Suite 45
Phoenix, AZ 85032
Phone: (602) 330-7051
Contact: Kerry L. Brooks
Email: a2a@autism2awesome.com
Website: http://www.autism2awesome.com

Support Groups:
Support Group Autism/Disabilities
2245 S. Walnut Ave
Yuma, AZ 85364
Phone: (928) 329-1732
Contact: Maria Valdez
Email: yuma1707@hotmail.com

West Valley Autism Parent Support Group
New Life Community Church
8155 W Thunderbird Road
Peoria, AZ 85381
Phone: (623) 572-5289

Yuma Autism Support Group
399 West 32nd Street
Yuma, AZ 85364
Contact: Gwen Conner
Email: autismyuma@yahoo.com
Website: http://autismyuma.cfsites.org

Additional Resources: https://www.autismspeaks.org/resource-guide/state/AZ

 

Blind
Educational Services:
Arizona Department of Education: Exceptional Student Services
3300 N. Central Avenue
Phoenix, AZ 85012
Phone: (602) 542-4013
Fax: (602) 542-5404
email: essdesk@azed.gov
Website: http://www.azed.gov/special-education/

School for the Blind
Arizona State Schools for the Deaf and the Blind
800 W. Washington St.
Phoenix, AZ 85007
Phone: (602) 771-5247
Fax: (602) 771-4869
Website: http://www.asdb.az.gov

Rehabilitation Services:
Arizona Department of Economic Security: Rehabilitation Services Administration
1789 West Jefferson Street, 930A
Phoenix, AZ 85007
Phone: (602) 542-3332
Fax: (602) 542-3778
Toll-Free: (800) 563-1221
TDD/TYY: (520) 628-6864
Website: https://des.az.gov/services/employment/arizona-rehabilitation-services

NLS Library:
Arizona State Braille and Talking Book Library
1030 North 32nd Street
Phoenix, AZ 85008
Phone: (602) 255-5578 (Local)
Fax: (602) 286-0444 (Fax)
Email: talkingbooks@azlibrary.gov
Website: http://www.azlibrary.gov/talkingbooks

Other Agencies:
Arizona Early Intervention Program
3839 North Third Street, Suite 304
3839 Noth 3rd Street
Suite 304
Site Code #801 A-6
Phoenix, AZ 85012
Phone: (602) 532-9960
Fax: (602) 200-9820
Toll-Free: (888) 439-5609
Email: allazeip2@azdes.gov
Website: http://www.azdes.gov/azeip

Camp Abilities/Tucson
PO Box 87227
Tucson, AZ 85745
Phone: (520) 770-3204
Email: campabilitiestucson@gmail.com
Website: http://www.campabilitiestucson.org

Foundation for Blind Children
1235 East Harmont Drive
Phoenix, AZ 85020
Phone: (602) 331-1470
Fax: (602) 678-5803
Website: http://www.seeitourway.org

Pilot Parents of Southern Arizona
2600 North Wyatt Drive
Tucson, AZ 85712
Phone: (520) 324-3150
Fax: (520) 324-3152
Email: ppsa@pilotparents.org
Website: http://pilotparents.org/

Raising Special Kids
5025 E. Washington Street
Ste. 204
Phoenix, AZ 85034
Phone: (602) 242-4366
Email: info@raisingspecialkids.org
Website: http://www.raisingspecialkids.org/

Retinoblastoma of Arizona
PO Box 11074
Chandler, AZ 85248
Phone: (928) 583-3081
Email: contactpresident@rbaz.org
Website: http://www.rbaz.org

Southern Arizona Association for the Visually Impaired
3767 East Grant Road
Tucson, AZ 85716
Phone: (520) 795-1331
Fax: (520) 795-1336
Email: reception@saavi.us
Website: http://www.saavi.us

 

Cerebral Palsy
UCP of Central Arizona
1802 W Parkside Lane
Phoenix, AZ 85027
Phone: (602) 943-5472
Twitter: @UCPofCentralAZ
Website: http://ucpofcentralaz.org/

UCP of Southern Arizona
Address 635 N Craycroft
Tucson, AZ 85711-1450
Phone: (520) 795-3108
Website: http://www.ucpsa.org

 

Congenital Heart Defect
Adult Congenital Cardiology Clinic
Banner University Medical Center – Tucson
Tucson, AZ
Phone: (520) 626-5585
Medical Director: Scott Klewer, MD

Phoenix Children’s Hospital/Mayo Clinic
Adult Congential Heart Disease Program
Phoenix Children’s Hospital
Phoenix, AZ
Phone: (480) 301-4469
Medical Director: Craig Cohen, MD

 

Cleft Lip and/or Pallete
Phoenix Cleft Lip and Palate Clinics/AZ Dept of Health Services – CPT, CFT
3141 N 3rd Ave
Children’s Rehabilitative Services
Phoenix, AZ 85013-4360
Phone: (602) 512-3236
Fax: (602) 914-1550
Patient Age Range: 0-21
Team Directors: Anita Garcia; Edward F. Joganic, MD
Team Coordinator: Anita Garcia
Email: anita_garcia@dmgaz.org
Website: http://www.dmgcrs.org

Tucson
Children’s Clinics – CPT
2600 N Wyatt Dr
C/O Verity Quiroz, Rn Cleft Care Coordinator
Ste 1
Tucson, AZ 85712-6106
Phone: (520) 324-3247
Fax: (520) 324-3014
Patient Age Range: 0-21
Team Director: Verity Quiroz, RN
Team Coordinator: Verity Quiroz, RN
Email: Verity.Quiroz@childrensclinics.org
Website: http://www.azcleftinfo.org

 

Crouzon syndrome
St. Joseph’s Hospital and Medical Center
Barrow Children’s Cleft and Craniofacial Center
124 W. Thomas Road, Suite 320
Phoenix, AZ 85013
Phone: (602) 406-3223
Medical Directors: Stephen Paul Beals, MD; Patricia H. Glick DMD, MS
Team Coordinator: Laura L. Takeuchi, MPA
Email: laura.takeuchi@dignityhealth.org
Website: http://www.thebarrow.org

 

Deaf
Arizona Working Adults Chapter:
Meets on Saturday, 10 a.m. – 12 noon, every month except June.
Tempe Public Library
The Learning Center (lower level)
3500 S Rural Rd.,
Tempe, AZ 85282
Contact: Heidi Lovato
Phone: (480) 528-0310
Email: azworkingadults@gmail.com
Contact: Karin Lusk-Rydin
Phone: (970) 389-2072 (Text only)
Email: kluskrydin@gmail.com

Greater Prescott Communities & Northern AZ Chapter:
Meets 4th Sat of each month, 1:00pm – 2:00pm
Prescott Gateway Mall Community Room
3250 Gateway Blvd
Prescott, AZ 86303
Contact: Jack Clevenger
Phone: (928) 227-1809
Email: hlaaofprescott@yahoo.com 

Sun Lakes Chapter:
Meets 2nd Thursday of the month from October-May, 12:45 p.m.-2:30 p.m.
Ed Robson Branch Library
9330 East Riggs Road
Sun Lakes, AZ 85248
Contact: Elizabeth Booth
Phone: (480) 284-6952
Email: halib72@gmail.com 
Contact: Regina Milgroom
Phone: (480) 802-7990
Email: reggiefaith@gmail.com

Tucson Chapter:
2nd Monday of the month, November – March 11:00 am-12:30 pm.
Voyager RV Resort
8701 S. Kolb Rd
Catalina Room
Tucson, AZ
Contact: Victoria Garth
Email: vgarth05@gmail.com

West Valley Chapter:
Meets every second Tuesday at 1:30 p.m. from October to May
First Presbyterian Church Sun City
12225 N. 103rd Avenue
Annex #1
Sun City, AZ 85351
Contact: Melanie O’Rourke
Phone: (623) 882-5554
Email: melanie.orourke@gmail.com

 

Developmental Disabilities
The Arc of Arizona
P.O. Box 83434
Phoenix, AZ 85071
Phone: (602) 234-2721
Email: thearcaz@gmail.com
Website: http://www.arcarizona.org

 

Diaphragmatic Hernia
Contact: Nicki Young
Email: Arizona@cherubs.org
Contact: Stephanie Tolley
Email: Arizona@cherubs.org

 

DiGeorge syndrome
Contact: Kelly Calcaterra
Phone: (602) 331-5019
Email: kelly@cfbcalc.com

 

Down syndrome
Sharing Down Syndrome Arizona! Inc
Gilbert, AZ
Phone: (480) 926-6500
Email: gina@sharingds.org
Website: http://www.sharingds.org

Down Syndrome Network AZ
Phoenix, AZ
Phone: (480) 759-9150
Email: info@dsnetworkaz.org
Website: http://www.dsnetworkaz.org

Southern Arizona Network for Down Syndrome
Tucson, AZ
Phone: (520) 477-2637
Email: info@sandsaz.org
Website: http://www.sandsaz.org

 

Dwarfism
Contact: Gaill Blackburn
Email: District10LPA@gmail.com
Website: http://lpadistrict10.org/

 

Edwards syndrome
Contact: Kris Holladay
Mesa, AZ
Phone: (480) 892-3380
Email: Holladay2go@hotmail.com

 

Epilepsy
Epilepsy Foundation Arizona
350 W. Thomas Road
Phoenix, Arizona 85013
United States
Phone: (602) 406-3581
Toll Free: (888) 768-2690

 

Hydrocephalous
Contact: Chanda McRoberts
Email: PhoenixCommunity@hydroassoc.org
Contact: Maggie Bobrowitz
Email: info@hydroassoc.org

 

Intellectual Disabilities
The Arc of Arizona
P.O. Box 83434
Phoenix, AZ 85071
Phone: (602) 234-2721
Email: thearcaz@gmail.com
Website: http://www.arcarizona.org

 

Microcephaly
Contact: Jennifer Lewis
Email: jenni@childrenwithmicro.org

 

Patau Syndrome
Contact: Kris Holladay
Mesa, AZ
Phone: (480) 892-3380
Email: Holladay2go@hotmail.com

 

Pierre Robin Sequence
Phoenix Cleft Lip and Palate Clinics/AZ Dept of Health Services – CPT, CFT
3141 N 3rd Ave
Children’s Rehabilitative Services
Phoenix, AZ 85013-4360
Phone: (602) 512-3236
Fax: (602) 914-1550
Patient Age Range: 0-21
Team Directors: Anita Garcia; Edward F. Joganic, MD
Team Coordinator: Anita Garcia
Email: anita_garcia@dmgaz.org
Website: http://www.dmgcrs.org

Tucson
Children’s Clinics – CPT
2600 N Wyatt Dr
C/O Verity Quiroz, Rn Cleft Care Coordinator
Ste 1
Tucson, AZ 85712-6106
Phone: (520) 324-3247
Fax: (520) 324-3014
Patient Age Range: 0-21
Team Director: Verity Quiroz, RN
Team Coordinator: Verity Quiroz, RN
Email: Verity.Quiroz@childrensclinics.org
Website: http://www.azcleftinfo.org

 

Polymicrogyria
Tuscon Area
Contact: Natalie Fregoso
Email: natalie@pmgawareness.org

 

Prader-Willi syndrome
Contact: Tiffay Shafer
Phone: (602) 481-5314
Email: tiffany.shafer@cox.net

Arizona PWSA
Address: P.O. Box 42683
Tuscon, AZ 85719
Phone: (602) 481-5314
Email: Pwsaarizona@gmail.com

 

Tessier cleft
Phoenix Cleft Lip and Palate Clinics/AZ Dept of Health Services – CPT, CFT
3141 N 3rd Ave
Children’s Rehabilitative Services
Phoenix, AZ 85013-4360
Phone: (602) 512-3236
Fax: (602) 914-1550
Patient Age Range: 0-21
Team Directors: Anita Garcia; Edward F. Joganic, MD
Team Coordinator: Anita Garcia
Email: anita_garcia@dmgaz.org
Website: http://www.dmgcrs.org

Tucson
Children’s Clinics – CPT
2600 N Wyatt Dr
C/O Verity Quiroz, Rn Cleft Care Coordinator
Ste 1
Tucson, AZ 85712-6106
Phone: (520) 324-3247
Fax: (520) 324-3014
Patient Age Range: 0-21
Team Director: Verity Quiroz, RN
Team Coordinator: Verity Quiroz, RN
Email: Verity.Quiroz@childrensclinics.org
Website: http://www.azcleftinfo.org

 

Trisomy 9
Contact: Kris Holladay
Mesa, AZ
Phone: (480) 892-3380
Email: Holladay2go@hotmail.com

 

Online Support:
Achondroplasia:
Aicardi syndrome: Aicardi syndrome
Alobar Holoprosencephaly: Alobar Holoprosencephaly
Amniotic Band syndrome: Amniotic band syndrome (ABS)
Angelman syndrome: Angelman Syndrome Foundation
Apert syndrome: Apert International (Apert USA)
Aplasia Cutis Congenita: Aplasia Cutis Congenita Support Group
Arthrogryposis: Arthrogryposis
Asparagine Synthetase Deficiency: Asparagine Synthetase Deficiency (ASNS gene)
Ataxic Cerebral Palsy: Families with children who have Ataxic Cerebral Palsy
Autism: Autism Parents of Arizona, Arizona Autism United Parent Support Group
Bi-lateral Renal Agenesis: Bi-lateral Renal Agenesis (Potters Syndrome)
Blind: Family ConnectBlind and visually impaired support group
Bohring-Optiz syndrome: Bohring-Optiz Syndrome Connection
Cerebral Palsy: UCP of Central Arizona, United Cerebral Palsy of Southern Arizona
CHARGE syndrome: CHARGE Syndrome
Congenital Heart Defect: Children with congenital heart defects, Breastfeeding Children with Congenital Heart Defects, Congenital Heart Defect Healthy Eating Group, Adults with Congenital Heart Defects 
Cleft Lip/Palate: Support Group for Adults born with Cleft Lip and Palates, Cleft Lip and Palate Foundation of Smiles, Cleft Lip & Palate Association
Clubbed Feet: Clubbed Foot support group, Club Feet Support Group for Parents
Cornelia De Lange syndrome: Cornelia De Lange Syndrome
Cortical Visual Impairment: Cortical Visual Impairment (CVI) Awareness
Crouzon syndrome: Crouzon Syndrome
Cystic Hygroma: Cystic Hygroma
Cytomegalovirus (CMV): CMV Family Support
Dandy Walker syndrome: Dandy-Walker Syndrome, Dandy Walker parents,
Deaf: Community for the Deaf and Hard of Hearing, Parents of Hearing Impaired Children
Dubowitz syndrome: Dubowitz Syndrome Network
Developmental Disabilities: Developmental Disabilities Support Page , The Arc of Arizona, Inc
Diaphragmatic Hernia: CHERUBS- Congenital Diaphragmatic Hernia Research Awareness and Support
DiGeorge syndrome: DiGeorge Syndrome, 22q11.2 Deletion, DiGeorge, VCFS etc
Down syndrome: Down Syndrome Arizona, Down Syndrome Connection AZ
Dwarfism: Dwarfism, Little People of the World Organization,
Edwards syndrome: edwards syndrome (trisomy18), Edwards Syndrome Families & Support – Trisomy 18, Trisomy 18 Foundation Parents Connect
Encephalocele: Encephalocele Parent Support, Encephalocele Support
Epilepsy: Epilepsy Foundation of Arizona
Hydrocephalus: Hydrocephalus Association, State of Arizona Hydrocephalus Association Community Network 
Hydrops Fetalis: Hydrops Fetalis Support Group, Hydrops Fetalis Parents Support Group
Intellectual Disability: Intellectual Disabilities Support Group, The Arc of Arizona, Inc
Koolen de Vries syndrome: Koolen de Vries Syndrome – 17q21.31 Microdeletion Syndrome Support Group
Limb Difference: Beautiful Limb Differences, limb difference makes no difference
Lissencephaly: Lissencephaly,  Lissencephaly Network
McCune-Albright syndrome: MAS/FD McCune-Albright Syndrome/Fibrous Dysplasia- The MAGIC Foundation, McCune Albright Syndrome and Fibrous Dysplasia
Microcephaly: Microcephaly Support Group,  Foundation for Children with Microcephaly- Official Group, Microcephaly
Moebius syndrome: Many Faces of Moebius Syndrome, Moebius syndrome Technology
Nager syndrome: Nager Syndrome
Patau syndrome: Trisomy 13 Life- Living with Patau Syndrome
Pierre Robin Sequence: Pierre Robin Sequence, Pierre Robin Sequence Support, Awareness & Research,
Polymicrogyria: Polymicrogyria (PMG) Support, PMG Awareness Organization’s Group Page (polymicrogyria)
Potocki-Shaffer syndrome: Potocki Shaffer syndrome Family Group
PPP2R5D: PPP2R5D Families
Prader-Willi syndrome: Prader Willi Syndrome Open Forum, Prader-Willi Support
Renal Agenesis: Born With A Single Kidney
Rhizomelic Chondrodysplasia Punctata (RCDP): RCDP/Rhizomelic Chondrodysplasia Punctata
Sanfilippo syndrome: Sanfilippo syndrome Support Group
Semi-lobar Holoprosencephaly: Our Olive Grace-  Semi-lobar Holoprosencephaly
Spina Bifida: Spina Bifida Association of Arizona, Arizona Spina Bifida Parents
Symbrachydactyly: Symbrachydactyly, Helping Hands (Symbrachydactyly)
Tessier cleft: Tessier Clefts
Trisomy 9: Trisomy 9 Family 
Turner syndrome: Turner syndrome,  Turner Syndrome Connections 
VACTERL/VATER Association: VATER and VACTERL Association Awareness, Vacterl and vater Association group for parents and families
Ventriculomegaly:  Ventriculomegaly, Babies with ventriculomegaly

Our whole mission at Orange Socks is to be there for you.

Our whole intent is to guide you from a resources page to a forum for parents…from the links to national organizations to providing you with support where the expectant parent can be linked with a parent who has a similar situation and diagnosis. We are there to support and encourage you.

Orange Socks knows that there is no greater pain in your heart than the knowledge that your child will be born with a disability or lifelong condition, or diagnosed with one at a very young age. And it is with tremendous humility that we look forward to helping you face this challenge. Even as your heart is heavy, there’s light at the end of every tunnel. Getting to it is our job.

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