Alabama

Suggest a Resource

 

Achondroplasia
Contact: Jake Brasfield District 13
Email: lpa.jgbrasfield@gmail.com
Website: http://www.lpaonline.org/
Facebook: LPA District 13

 

Angelman syndrome
Assistive Technology STAR
602 S. Lawrence St.
Montgomery, AL, 36104
Phone: (800) 782-7656, (334) 613-3480
TTY: (334) 613-3519
Website: http://www.rehab.alabama.gov/star

Epilepsy Foundation of Alabama
Office Park 3
273 Azalea Road, Suite 310
Mobile, AL, 36609
Phone: (251) 341-0170
Email: mgarrett@efala.org
Website: http://www.epilepsyfoundation.org/

Speech and Hearing Association of Alabama
P.O. Box 357 Normal, AL, 35762
Phone: (256) 325-8885
Email: Info@AlabamaSHAA.org
Website: http://www.alabamashaa.orghttp://tsa-usa.org/TSANatlLocal/Chapters/Midsouth.htm

 

Autism
Arc of Eastern Elmore County
230 Sugarberry Rd.
Wetumpka, AL 36092
Phone: (334) 514-0708
Email: eearced@aol.com

Arc of Jefferson County
215 21st Avenue South
Birmingham, AL 35205
Phone: (205) 705-1800
Website: http://www.arcofjeff.org

Arc of the Shoals
100 Lamar Ave.
Tuscumbia, AL 35674
Phone: (256) 383-1472

Arc of Walker County
745 Russell Dairy Rd.
Jasper, AL 35503
Phone: (205) 387-0562
Website: http://www.walkerarc.com

Mobile Arc, Inc.
2424 Gordon Smith Drive
Mobile, AL 36617
Phone: (251) 479-7409
Contact Name: Jeff Zoghby, Executive Director
Email: jzoghby@mobilearc.org
Website: http://www.mobilearc.org

 Montgomery Arc
527 Buckingham Drive
Montgomery, AL 36116
Phone: (334) 281-6938

The Arc of Jackson County
180 Mack Morris Drive
Scottsboro, AL 35769
Phone: (256) 259-1603

Family Voices of Alabama
2129 East South Boulevard
Montgomery, AL 36116
Phone: (251) 438-1609
Contact Name: Susan Colburn
Email: scolburn@rehab.state.al.us
Website: ttp://www.familyvoices.org/states.php?state=AL

The University of Alabama Autism Spectrum Disorders Clinic
603 Hackberry Ln.
Tuscaloosa, AL 35401
Phone: (205) 348-3130
Email: autismclinic@ua.edu
Website: http://autism-clinic.ua.edu

Additional Resources: https://www.autismspeaks.org/resource-guide/state/AL

 

Blind
Educational Services:
Alabama Institute for Deaf and Blind
205 East South Street
Talladega, AL 35160
Phone: (256) 761-3200
Fax: (256) 761-3344
Website: http://www.aidb.org/

Alabama State Department of Education
50 North Ripley Street
P.O. 302101 Montgomery, AL 36130
Phone: (334) 242-8114
Fax: (334) 242-9192
Toll-Free: (800) 392-8020
TDD/TTY: (334) 242-8406
Website: http://www.alsde.edu

School for the Blind Alabama Institute for Deaf and Blind
205 East South Street
Talladega, AL 35160
Phone: (256) 761-3200
Fax: (256) 761-3344
Website: http://www.aidb.org/

Southwest Alabama Regional School for the Deaf and Blind
3980 Burma Road
Mobile, AL 36693-4522
Phone: (251) 221-5454
Fax: (251) 221-5455
TDD/TTY: (251) 221-5454

Rehabilitation Services:
Alabama Department of Rehabilitation Services
602 South Lawrence Street
Montgomery, AL 36104
Phone: (334) 293-7500
Fax: (334) 293-7384
Toll-Free: (800) 441-7607
Website: http://www.rehab.alabama.gov

NLS Library:
Alabama Library and Resource Center for the Blind and Physically Handicapped Alabama Institute for Deaf and Blind
705 South Street East
P.O. Box 698 Talladega, AL 35160
Phone: (256) 761-3237
Fax: (256) 761-3561
Toll-Free(800) 848-4722
Website: http://www.aidb.org

Alabama Regional Library for the Blind and Physically Handicapped
6030 Monticello Drive
Montgomery, AL 36130-6000
Phone: (334) 213-3906
Fax: (334) 213-3993
Toll-Free (800) 392-5671
Email: bph@apls.state.al.us
Website: http://webmini.apls.state.al.us/apls_web/apls/apls/?q=Blind

Huntsville Subregional Library for the Blind and Physically Handicapped
915 Monroe Street SW
Huntsville, AL 35801
Phone: (256) 532-5980
Fax: (256) 532-5994
Email: bphdept@hmcpl.org
Website: http://hmcpl.org/bph 

 

Cerebral Palsy
UCP of East Central Alabama
415 Castle Avenue
Anniston, AL 36205
Phone: (256) 237-8203
Website: http://ecaucp.org

UCP Affiliate UCP of Huntsville & Tennessee Valley
2075 Max Luther Dr. NW
Huntsville, AL 35810
Phone: (256) 852-5600
Website: http://ucphuntsville.org

UCP of Mobile
3058 Dauphin Sq. Connector
Mobile, AL 36607
Phone: (251) 479-4900
Website: http://www.ucpmobile.org
Twitter: @UCPMobile
Facebook Page: United Cerebral Palsy of Mobile

UCP of Northwest Alabama
507 N Hook St.
Tuscumbia, AL 35674
Phone: (256) 381-4310
Website: http://www.ucpshoals.org
Facebook Page: UCP of Northwest Alabama 

UCP of West Alabama
1100 UCP Pkwy.
Northport, AL 35476
Phone: (205) 345-3031
Website: http://ucpwa.org
Twitter: @UCP_WA
Facebook Page: United Cerebral Palsy of West Alabama

 

Congenital Heart Defect
Alabama Adult Congenital Heart Program
University of Alabama at Birmingham
Birmingham, AL
Phone: (205) 975-7123
Medical Director: Marc G. Cribbs, MD

 

Cleft Lip/Palate
UAB Cleft Lip/Palate & Craniofacial Center Division of Plastic Surgery
1600 7th Avenue; ACC 322
Birmingham, AL 35233
Team Leaders: John H. Grant III, MD, Renee Myers, MD
Coordinator: Betsy Graham
Phone: 800-226-4770 (ask for Plastic Surgery), 205-939-9369
Website: www.childrensal.org

 

Crouzon Syndrome
UAB Cleft Lip/Palate & Craniofacial Center Division of Plastic Surgery
1600 7th Avenue; ACC 322
Birmingham, AL 35233
Plastic Surgery Phone: 800-226-4770
Phone: (205) 939-9369
Team Leaders: John H. Grant III, MD, Renee Myers, MD
Coordinator: Betsy Graham
Website: www.childrensal.org

Deaf
Alabama School for the Deaf (ASD)
205 East South Street
Talladega, AL 35160
Phone: (256) 761-3214
V/TTY: (256) 761-3215
V/TT: (256) 761-3278
Website: http://aidb.org/alabama-school-for-the-deaf/

 

Developmental Disabilities
The Arc of Alabama
557 S Lawrence St
Montgomery, AL 36104-4611
Phone: (334) 262-7688
Email: Info@TheArcofAl.org
Website: http://www.thearcofal.org

 

Diaphragmatic Hernia
State Representative: DeAnn Strother McGilberry
Phone: (334) 410-2140
Email: Alabama@cherubs.org

State Representative: Teresa Meherg
Phone: (205) 270-1386
Email: Alabama@cherubs.org
Facebook: Alabama Cherubs- Congenital Diaphragmatic Hernia Charity

 

Down syndrome:
Down Syndrome Alabama
Birmingham, AL
Phone: (205) 988-0810
Email: downsyndromealabama@gmail.com
Website: www.downsyndromealabama.org

FRIENDS Dothan, AL
Phone: (334) 726-2075
Email: hallsareus5@comcast.net
Website: http://downsyndromefriends.org/

Down Syndrome Society of Mobile County
Mobile, AL
Phone: (251) 342-3122
Email: downsyndromesociety@gmail.com
Website: www.dssmc.com

Bringing Up Down Syndrome BUDS
Madison, AL
Phone: (214) 729-6606
Website: www.budsonline.org

Montgomery Area Down Syndrome Outreach Group
Montgomery, AL
Email: montgomeryareadownsyndrome@gmail.com
Website: http://www.montgomeryareadownsyndrome.com/

 

Dwarfism
Contact: Jake Brasfield District 13
Email: lpa.jgbrasfield@gmail.com
Website: http://www.lpaonline.org/
Facebook: LPA District 13

 

Edwards syndrome
Contact: Shane and Melissa Aultman
Greensboro, AL
Phone: (334) 507-5373
Email: Stylin2b1@yahoo.com 

 

Epilepsy
Epilepsy Foundation Alabama
3929 Airport Blvd., Suite 3-310
Mobile, Alabama 36609-2235
Phone: (251) 341-0170
Toll Free: (800) 626-1582

 

Intellectual Disabilities
The Arc of Alabama
557 S Lawrence St
Montgomery, AL 36104-4611
Phone: (334) 262-7688
Email: Info@TheArcofAl.org
Website: http://www.thearcofal.org

 

Patau syndrome
Contact: Shane and Melissa Aultman
Greensboro, AL
Phone: (334) 507-5373
Email: Stylin2b1@yahoo.com 

 

Spina Bifida
SBA of Alabama
PO Box 35
Gadsden, AL 35902
Phone: (256) 617-1414
Website: www.sbaofal.org
Email: support@sbaofal.org 

 

Trisomy 9
Contact: Shane and Melissa Aultman
Greensboro, AL
Phone: (334) 507-5373
Email: Stylin2b1@yahoo.com

 

Turner’s syndrome
Cardiologist Dr. Walter Johnson
Pediatric Cardiology
WIC 1700 6th Ave S, Suite 9100 176F
Birmingham, Alabama 35233
Phone: (205) 934-3460
Website: https://www.childrensal.org/dr-walter-h-johnson-jr-md-cardiologist

 

General Resources
Special Education Support Service: http://www.sess.ie/
Advocacy: http://www.geneticalliance.org/advocacy-atlas
Disability Resources: http://www.disabilities-r-us.com/resources/
Children’s Disability List of Support Groups and Services http://www.childrensdisabilities.info/speclists.html

 

Online Support:
Achondroplasia: LPA District 13
Aicardi syndrome: Aicardi syndrome
Alobar Holoprosencephaly: Alobar Holoprosencephaly
Amniotic Band syndrome: Amniotic band syndrome (ABS)
Angelman syndrome: Angelman Syndrome Foundation
Apert syndrome: Apert International (Apert USA)
Aplasia Cutis Congenita: Aplasia Cutis Congenita Support Group
Arthrogryposis: Arthrogryposis
Asparagine Synthetase Deficiency: Asparagine Synthetase Deficiency (ASNS gene)
Ataxic Cerebral Palsy: Families with children who have Ataxic Cerebral Palsy
Autism: Alabama Autism & Asperger’s Statewide Info & Support Network
Bi-lateral Renal Agenesis: Bi-lateral Renal Agenesis (Potters Syndrome)
Blind: Family ConnectBlind and visually impaired support group
Bohring-Optiz syndrome: Bohring-Optiz Syndrome Connection
Cerebral Palsy:United Cerebral Palsy of MobileUCP of Northwest Alabama United Cerebral Palsy of West Alabama
CHARGE syndrome: CHARGE Syndrome
Congenital Heart Defect: Children with congenital heart defects, Breastfeeding Children with Congenital Heart Defects, Congenital Heart Defect Healthy Eating Group, Adults with Congenital Heart Defects 
Cleft Lip/Palate: Support Group for Adults born with Cleft Lip and Palates, Cleft Lip and Palate Foundation of Smiles, Cleft Lip & Palate Association
Clubbed Feet: Clubbed Foot support group, Club Feet Support Group for Parents
Cornelia De Lange syndrome: Cornelia De Lange Syndrome
Cortical Visual Impairment: Cortical Visual Impairment (CVI) Awareness
Crouzon syndrome: Crouzon Syndrome
Cystic Hygroma: Cystic Hygroma
Cytomegalovirus (CMV): CMV Family Support
Dandy Walker syndrome: Dandy-Walker Syndrome, Dandy Walker parents,
Deaf: Community for the Deaf and Hard of Hearing, Parents of Hearing Impaired Children
Dubowitz syndrome: Dubowitz Syndrome Network
Developmental Disabilities: Developmental Disabilities Support Page 
Diaphragmatic Hernia: Alabama Cherubs- Congenital Diaphragmatic Hernia Charity
DiGeorge syndrome: Di George Syndrome, 22q11.2 Deletion, Digeorge, VCFS etc
Down syndrome: Down Syndrome Alabama- Parents & Caretakers, Down Syndrome Alabama
Dwarfism: Dwarfism, Little People of the World Organization,
Edwards syndrome: edwards syndrome (trisomy18), Edwards Syndrome Families & Support – Trisomy 18, Trisomy 18 Foundation Parents Connect
Encephalocele: Encephalocele Parent Support, Encephalocele Support
Epilepsy: Epilepsy Foundation of Alabama
Hydrocephalus: State of Alabama Hydrocephalus Association Community Network
Hydrops Fetalis: Hydrops Fetalis Support Group, Hydrops Fetalis Parents Support Group
Intellectual Disability: Intellectual Disabilities Support Group
Koolen de Vries syndrome: Koolen de Vries Syndrome – 17q21.31 Microdeletion Syndrome Support Group
Limb Difference: Beautiful Limb Differences, limb difference makes no difference
Lissencephaly: Lissencephaly,  Lissencephaly Network
McCune-Albright syndrome: MAS/FD McCune-Albright Syndrome/Fibrous Dysplasia- The MAGIC Foundation, McCune Albright Syndrome and Fibrous Dysplasia
Microcephaly: Microcephaly Support Group,  Foundation for Children with Microcephaly- Official Group, Microcephaly
Moebius syndrome: Many Faces of Moebius Syndrome, Moebius syndrome Technology
Nager syndrome: Nager Syndrome
Patau syndrome: Trisomy 13 Life- Living with Patau Syndrome
Pierre Robin Sequence: Pierre Robin Sequence, Pierre Robin Sequence Support, Awareness & Research,
Polymicrogyria: Polymicrogyria (PMG) Support, PMG Awareness Organization’s Group Page (polymicrogyria)
Potocki-Shaffer syndrome: Potocki Shaffer syndrome Family Group
PPP2R5D: PPP2R5D Families
Prader-Willi syndrome: Prader Willi Syndrome Open Forum, Prader-Willi Support
Renal Agenesis: Born With A Single Kidney
Rhizomelic Chondrodysplasia Punctata (RCDP): RCDP/Rhizomelic Chondrodysplasia Punctata
Sanfilippo syndrome: Sanfilippo syndrome Support Group
Semi-lobar Holoprosencephaly: Our Olive Grace-  Semi-lobar Holoprosencephaly
Spina Bifida: Spina Bifida Association of Alabama
Symbrachydactyly: Symbrachydactyly, Helping Hands (Symbrachydactyly)
Tessier cleft: Tessier Clefts
Trisomy 9: Trisomy 9 Family 
Turner syndrome: Turner syndrome,  Turner Syndrome Connections 
VACTERL/VATER Association: VATER and VACTERL Association Awareness, Vacterl and vater Association group for parents and families
Ventriculomegaly:  Ventriculomegaly, Babies with ventriculomegaly

Our whole mission at Orange Socks is to be there for you.

Our whole intent is to guide you from a resources page to a forum for parents…from the links to national organizations to providing you with support where the expectant parent can be linked with a parent who has a similar situation and diagnosis. We are there to support and encourage you.

Orange Socks knows that there is no greater pain in your heart than the knowledge that your child will be born with a disability or lifelong condition, or diagnosed with one at a very young age. And it is with tremendous humility that we look forward to helping you face this challenge. Even as your heart is heavy, there’s light at the end of every tunnel. Getting to it is our job.

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