Resources
Parents Hoping to Outlive Their Children
When we work with patients with adult children at home with IDD, as appropriate, the topic should be broached regarding their plans. We need to educate ourselves on the support services available in our area. Often, parents have no knowledge of existing resources for them and their children. Armed with good information, we can help our patients plan for their children with IDD outliving them and help relieve their anxiety about it.
Resources
Parents Hoping to Outlive Their Children
I recently received an emotionally laden call from a close friend of mine, Jessica, that sucked the air right out of me. Jessica is the mother of “Chrissy,” a 30-year-old woman with profound intellectual and developmental disabilities (IDD) who lives at home. My...
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Community Stories
Emma and Abby
Meet Emma and Abby...two sisters battling one Ultra-Rare disease! Emma, now four, had her first seizure when she was only 2 months ... ...read more
Shiloh
Our sweet daughter was born two months premature with a genetic condition called Cri Du Chat Syndrome. She is missing part of the ... ...read more
Sock Talk
Sock Talk: International Adoption for Children with Disabilities
Dr. Gerald Nebeker talks about a few adoption agencies that help facilitate international adoptions for children with disabilities. In this podcast you will also hear from Michelle, the CEO of Reece’s Rainbow as well as Kecia and Chris who have adopted two children with Down syndrome from the Ukraine.
Sock Talk- Early Intervention with Kristin Mancuso, PT, DPT
Dr. Gerald Nebeker talks about early intervention services that are available to children with developmental delays and disabilities. Gerald speaks with Kristin who is the director of the Early Intervention program at RISE. She explains who is eligible and...
Newsletter
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Every four and a half minutes a child is born or diagnosed with a condition parents never dreamed would be their reality. If this is you, you’re in the right place. You’re not alone.
First Annual Orange Socks Day Reaches Tens of Thousands
November 13th was the first of many Orange Socks days to come. Soon thousands and possibly millions will wear Orange Socks a symbol of inclusion for people with disabilities, and these families won’t feel alone anymore.
November 2019 Newsletter
November is the month that I dwell on things I am grateful for. With the month just beginning, it made me think of all the wonderful families I have had the opportunity to meet. Each family has expressed gratitude for their children. It made me want to share the joys...
October 2019 Newsletter
Having 8 kids at home, Halloween was a pretty stressful holiday. Trying to find eachchild a costume they would actually wear was a challenge. Now I only have my youngest, my daughter with Down syndrome, who is the easiest to please with almost anything. I remember...