Resources

Parents Hoping to Outlive Their Children

When we work with patients with adult children at home with IDD, as appropriate, the topic should be broached regarding their plans. We need to educate ourselves on the support services available in our area. Often, parents have no knowledge of existing resources for them and their children. Armed with good information, we can help our patients plan for their children with IDD outliving them and help relieve their anxiety about it.

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Resources

Madison and Ty: Expecting a Terminal Baby

During a routine ultrasound, Madison and Ty found there was something was wrong with their baby boy. When they went to the specialist, they were told their baby’s bladder was large, and his kidneys were covered in cysts and had little to no function- a condition that...
Parents Hoping to Outlive Their Children

Parents Hoping to Outlive Their Children

I recently received an emotionally laden call from a close friend of mine, Jessica, that sucked the air right out of me. Jessica is the mother of “Chrissy,” a 30-year-old woman with profound intellectual and developmental disabilities (IDD) who lives at home. My...

Resources by Topic

Prenatal Resources

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Resources for Infants, Toddlers & Kids

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Caregiver Resources

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Resources for Adults with Special Needs

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Community Stories

Harper models to inspire the world

Harper models to inspire the world

https://pulse.seattlechildrens.org/harper-models-to-inspire-the-world-youre-beautiful-in-your-own-skin/ ...read more

Through the Haze Living With Limited Vision

I was born three weeks early on June 22.1970. I had Snow White hair and these amazing blue eyes. The doctor who delivered me told my ... ...read more

Sock Talk 

Sock Talk: International Adoption for Children with Disabilities

Sock Talk: International Adoption for Children with Disabilities

Dr. Gerald Nebeker talks about a few adoption agencies that help facilitate international adoptions for children with disabilities. In this podcast you will also hear from Michelle, the CEO of Reece’s Rainbow as well as Kecia and Chris who have adopted two children with Down syndrome from the Ukraine.

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Newsletter

Good news in your inbox

Every four and a half minutes a child is born or diagnosed with a condition parents never dreamed would be their reality. If this is you, you’re in the right place. You’re not alone.

First Annual Orange Socks Day Reaches Tens of Thousands

First Annual Orange Socks Day Reaches Tens of Thousands

November 13th was the first of many Orange Socks days to come. Soon thousands and possibly millions will wear Orange Socks a symbol of inclusion for people with disabilities, and these families won’t feel alone anymore.

November 2019 Newsletter

November is the month that I dwell on things I am grateful for. With the month just beginning, it made me think of all the wonderful families I have had the opportunity to meet. Each family has expressed gratitude for their children. It made me want to share the joys...

October 2019 Newsletter

Having 8 kids at home, Halloween was a pretty stressful holiday. Trying to find eachchild a costume they would actually wear was a challenge. Now I only have my youngest, my daughter with Down syndrome, who is the easiest to please with almost anything. I remember...

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