Resources

Parents Hoping to Outlive Their Children

When we work with patients with adult children at home with IDD, as appropriate, the topic should be broached regarding their plans. We need to educate ourselves on the support services available in our area. Often, parents have no knowledge of existing resources for them and their children. Armed with good information, we can help our patients plan for their children with IDD outliving them and help relieve their anxiety about it.

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Resources

Erika and Steve- Autism

First signs something was wrong  Erika and Steve first noticed something was different with their son Blaise when he was 18 months old. Erika recalled, “He went to daycare and we would go in and notice that all the kids are...
Parents Hoping to Outlive Their Children

Parents Hoping to Outlive Their Children

I recently received an emotionally laden call from a close friend of mine, Jessica, that sucked the air right out of me. Jessica is the mother of “Chrissy,” a 30-year-old woman with profound intellectual and developmental disabilities (IDD) who lives at home. My...

Resources by Topic

Prenatal Resources

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Resources for Infants, Toddlers & Kids

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Caregiver Resources

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Resources for Adults with Special Needs

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Community Stories

Emma and Abby

Emma and Abby

Meet Emma and Abby...two sisters battling one Ultra-Rare disease! Emma, now four, had her first seizure when she was only 2 months ... ...read more

Shiloh

Shiloh

Our sweet daughter was born two months premature with a genetic condition called Cri Du Chat Syndrome. She is missing part of the ... ...read more

Sock Talk 

Sock Talk- Early Intervention with Kristin Mancuso, PT, DPT

Sock Talk- Early Intervention with Kristin Mancuso, PT, DPT

Dr. Gerald Nebeker talks about early intervention services that are available to children with developmental delays and disabilities.  Gerald speaks with Kristin who is the director of the Early Intervention program at RISE. She explains who is eligible and...

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Sock Talk- Employment and People With Disabilities

Sock Talk- Employment and People With Disabilities

Even though the country has a record low employment rate of 2-3 percent, people with disabilities have an unemployment rate of 65 percent. Why is this?  In this Podcast Gerald talks about with proper training, coaching, and job matching, people with disabilities...

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Newsletter

Good news in your inbox

Every four and a half minutes a child is born or diagnosed with a condition parents never dreamed would be their reality. If this is you, you’re in the right place. You’re not alone.

First Annual Orange Socks Day Reaches Tens of Thousands

First Annual Orange Socks Day Reaches Tens of Thousands

November 13th was the first of many Orange Socks days to come. Soon thousands and possibly millions will wear Orange Socks a symbol of inclusion for people with disabilities, and these families won’t feel alone anymore.

November 2019 Newsletter

November is the month that I dwell on things I am grateful for. With the month just beginning, it made me think of all the wonderful families I have had the opportunity to meet. Each family has expressed gratitude for their children. It made me want to share the joys...

October 2019 Newsletter

Having 8 kids at home, Halloween was a pretty stressful holiday. Trying to find eachchild a costume they would actually wear was a challenge. Now I only have my youngest, my daughter with Down syndrome, who is the easiest to please with almost anything. I remember...

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