Resources
Parents Hoping to Outlive Their Children
When we work with patients with adult children at home with IDD, as appropriate, the topic should be broached regarding their plans. We need to educate ourselves on the support services available in our area. Often, parents have no knowledge of existing resources for them and their children. Armed with good information, we can help our patients plan for their children with IDD outliving them and help relieve their anxiety about it.
Resources
Parents Hoping to Outlive Their Children
I recently received an emotionally laden call from a close friend of mine, Jessica, that sucked the air right out of me. Jessica is the mother of “Chrissy,” a 30-year-old woman with profound intellectual and developmental disabilities (IDD) who lives at home. My...
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Prenatal Resources
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Resources for Infants, Toddlers & Kids
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Resources for Adults with Special Needs
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Community Stories
Emma and Abby
Meet Emma and Abby...two sisters battling one Ultra-Rare disease! Emma, now four, had her first seizure when she was only 2 months ... ...read more
Shiloh
Our sweet daughter was born two months premature with a genetic condition called Cri Du Chat Syndrome. She is missing part of the ... ...read more
Sock Talk
Sock Talk: Go Shout Love
In this episode, Gerald talks with Josh Veach, the co-director for Go Shout Love. A cause-driven for-profit business that raises funds and awareness for families on unique medical journeys. Go Shout Love The Formation of Go Shout Love Go Should Love...
Sock Talk: International Adoption for Children with Disabilities
Dr. Gerald Nebeker talks about a few adoption agencies that help facilitate international adoptions for children with disabilities. In this podcast you will also hear from Michelle, the CEO of Reece’s Rainbow as well as Kecia and Chris who have adopted two children with Down syndrome from the Ukraine.
Newsletter
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Every four and a half minutes a child is born or diagnosed with a condition parents never dreamed would be their reality. If this is you, you’re in the right place. You’re not alone.
May 2020 Newsletter
We often talk about what we can do for people with disabilities, but what about what they can do for us and those in their community? Volunteering isn’t limited by a person’s disability, and a school district that serves Bergen County in New Jersey has found a way to...
April 2020 Newsletter
I really appreciate the many followers of Orange Socks. One of them sent me an article from the Mirror, a newspaper in England. The headline reads, “Coronavirus: People with Down’s [sic] syndrome could be left to die to ‘save’ medical supplies.” I thought, “how...
March 2020 Newsletter
At times throughout the challenges of raising a child with a disability, it can feel as though we are alone. It's easy to think no one understands. However, although each family's path is unique, there are many who are sharing the same struggles and grief. Instead of...