Resources

Resources

Madison and Ty: Expecting a Terminal Baby

During a routine ultrasound, Madison and Ty found there was something was wrong with their baby boy. When they went to the specialist, they were told their baby’s bladder was large, and his kidneys were covered in cysts and had little to no function- a condition that...
Expectations for Your First Occupational Therapy Visit

Expectations for Your First Occupational Therapy Visit

This was an interview with Lacey OTR/L, an occupational therapist at Roots Therapy in Park City, UT. She shared some insights on what to expect before the first visit, during the first visit, and what to expect during subsequent sessions. She also shared what makes...

Resources by Topic

Prenatal Resources

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Resources for Infants, Toddlers & Kids

Toe Walking

Toe Walking

Often this pattern of walking becomes an “engrained motor pattern” or habit that needs to be broken. If stretching isn’t helping, they may require stretching braces for night time or Ankle Foot Orthoses (AFOs) braces for the daytime to help break the habit. Some orthopedic physicians or neurologists use a series of casts called serial casting to stretch the tight muscles and tendons.

Caregiver Resources

How Can I Help My Child Sleep at Night?

How Can I Help My Child Sleep at Night?

Although sleep issues can be common with many kids, children with autism spectrum disorder (ASD) can often have an especially hard time falling asleep and staying asleep. Chronic sleep problems not only negatively impact the learning ability of children and make challenging behaviors more likely to occur, but they can also increase stress in the home by making it more difficult for parents and siblings to rest at night.

Resources for Adults with Special Needs

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Search Diagnosis Resources

Community Stories

Harper models to inspire the world

Harper models to inspire the world

https://pulse.seattlechildrens.org/harper-models-to-inspire-the-world-youre-beautiful-in-your-own-skin/ ...read more

Through the Haze Living With Limited Vision

I was born three weeks early on June 22.1970. I had Snow White hair and these amazing blue eyes. The doctor who delivered me told my ... ...read more

Sock Talk 

Sock Talk: A Doll Like Me with Amy Jandrisevits

Sock Talk: A Doll Like Me with Amy Jandrisevits

Amy Jandrisevits created A Doll Like Me, so kids with physical differences could love and cherish their very own doll that looked exactly like them. She personally makes each doll by hand, and to date she has raised more than $225,000 to help off set the financial burden for those who could not otherwise afford a doll.

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Sock Talk: Go Shout Love

Sock Talk: Go Shout Love

In this episode, Gerald talks with Josh Veach, the co-director for Go Shout Love. A cause-driven for-profit  business that raises funds and awareness for families on unique medical journeys.  Go Shout Love The Formation of Go Shout Love Go Should Love...

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Newsletter

Good news in your inbox

Every four and a half minutes a child is born or diagnosed with a condition parents never dreamed would be their reality. If this is you, you’re in the right place. You’re not alone.

May 2020 Newsletter

We often talk about what we can do for people with disabilities, but what about what they can do for us and those in their community? Volunteering isn’t limited by a person’s disability, and a school district that serves Bergen County in New Jersey has found a way to...

April 2020 Newsletter

I really appreciate the many followers of Orange Socks. One of them sent me an article from the Mirror, a newspaper in England. The headline reads, “Coronavirus: People with Down’s [sic] syndrome could be left to die to ‘save’ medical supplies.” I thought, “how...

March 2020 Newsletter

At times throughout the challenges of raising a child with a disability, it can feel as though we are alone. It's easy to think no one understands. However, although each family's path is unique, there are many who are sharing the same struggles and grief. Instead of...

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