Spinal Muscular Atrophy

Resources Near You

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National Resources

EveryLife Foundation for Rare Diseases

1012 14th Street, NW, Suite 500
Washington, DC 20005
Phone: (202) 697-7273
Contact: Lindsey
Email: lcundiff@everylifefoundation.org
Website: https://everylifefoundation.org/

SMA Foundation

PO Box 9214
Jackson, WY 83002
Phone: (646) 253-7100
Email: info@smafoundation.org
Website: https://smafoundation.org/

Online Resources

Cure SMA

925 Busse Road
Elk Grove Village, IL 60007
Phone: (800) 886-1762
Email: info@curesma.org
Website: https://www.curesma.org/

EveryLife Foundation for Rare Diseases

1012 14th Street, NW, Suite 500
Washington, DC 20005
Phone: (202) 697-7273
Contact: Lindsey
Email: lcundiff@everylifefoundation.org
Website: https://everylifefoundation.org/

Global Genes

28 Argonaut, Suite 150
Aliso Viejo, CA 92656
Phone: 1(941) 248-7273
Email: careaboutrare@globalgenes.org
Website: https://globalgenes.org/

Muscular Dystrophy Association

161 N. Clark, Suite 3550
Chicago, Illinois 60601
Phone: (800) 572-1717
Email: ResourceCenter@mdausa.org
Website: https://www.mda.org/

Never Give Up

27 W. Anapamu, Suite 177
Santa Barbara, CA 93101
Phone: (805) 203-0334
Email: info@nevergiveup.org
Website: https://nevergiveup.org/

SMA Foundation

PO Box 9214
Jackson, WY 83002
Phone: (646) 253-7100
Email: info@smafoundation.org
Website: https://smafoundation.org/

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