Potocki-Shaffer syndrome

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National Resources

Potocki-Shaffer syndrome

Genetic and Rare Diseases Information Center: https://rarediseases.info.nih.gov/diseases/9762/potocki-shaffer-syndrome
Potocki-Shaffer syndrome: http://www.potockishaffersyndrome.org/

Online Resources

Mommies of Miracles

Website: http://mommiesofmiracles.com/

Special Needs Moms for Moms

Website: http://specialneedsmomsformoms.com/

Support Groups for Potocki-Shaffer syndrome

Facebook:
Potocki Shaffer Syndrome Family Page
Potocki Shaffer Syndrome Family Group

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