Pierre Robin Sequence

National Resources

Pierre Robin Sequence

National Organization for Rare Disorders: https://rarediseases.org/rare-diseases/pierre-robin-sequence/

Pierre Robin Sequence Foundation

Website: http://pierrerobin.org.za/

Local Resources

Online Resources


Website: http://www.cleftopedia.com/

Mommies of Miracles

Website: http://mommiesofmiracles.com/

Special Needs Moms for Moms

Website: http://specialneedsmomsformoms.com/

Suggest a Resource

Find or submit local and national resources for this or other diagnoses.

Submit Resource

Pin It on Pinterest