Pierre Robin Sequence
Resources Near You
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National Resources
Pierre Robin Sequence
National Organization for Rare Disorders: https://rarediseases.org/rare-diseases/pierre-robin-sequence/
Online Resources
Cleftopedia
Website: http://www.cleftopedia.com/
Exclusively Pumping
Website: https://kellymom.com/mother2mother/exclusive-pumping/
Mommies of Miracles
Website: http://mommiesofmiracles.com/
Personal Stories
Ava June and Mommy Too: A Pierre Robin Sequence Story: http://www.facebook.com/AvaJuneandMommytoo/
Charlotte Lousie Taylor- Daisy's Story: www.youtube.com/watch?v=pHbBXo3C4d4&list=PLoUu0DSv1cu5nHGjk-jXQ1JbpA2J67dcj
Raising Arrows: https://www.raisingarrows.net/pierre-robin-sequence-stickler-syndrome/
Ella's PRS Journey: http://www.facebook.com/ellasprsjourney
Zadie's Journey: www.facebook.com/ZadiesJourney
Support Groups for Pierre Robin Sequence
Facebook:
Pierre Robin Sequence
Pierre Robin Sequence Support, Awareness & Research
Pierre Robin Sequence Foundation
Pierre Robin Sequence - Speech Challenges