Patau syndrome (Trisomy 13)

Resources Near You

Select Location >

National Resources

Hope for Trisomy 13 & 18

Website: https://www.hopefortrisomy13and18.org/

SOFT

Website: http://trisomy.org/

Trisomy 13 syndrome

National Organization for Rare Disorders: https://rarediseases.org/rare-diseases/trisomy-13-syndrome/

Online Resources

Mommies of Miracles

Website: http://mommiesofmiracles.com/

SADS Foundation

Sudden Arrhythmia Death Syndromes Foundation
4527 South 2300 East, Suite 104
Salt Lake City, UT 84117-4448
Phone: (801) 948-0654
Website: https://www.sads.org

Support Groups for Patau syndrome

Facebook:
Trisomy 13 LIFE - Living with Patau Syndrome
Patau Syndrome/Trisomy 13 - raising awareness
Treasured Memories - Trisomy 13 Patau Syndrome LWT13 Grief Support
Rare Trisomy Parents (was T18 Mommies)

Pin It on Pinterest