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National Resources


National Organization for Rare Disorders: https://rarediseases.org/rare-diseases/encephalocele/

Online Resources

Mommies of Miracles

Website: http://mommiesofmiracles.com/

Special Needs Moms for Moms

Website: http://specialneedsmomsformoms.com/

Support Groups for Encephalocele

Encephalocele Parent Support
Encephalocele Support

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