Dandy-Walker syndrome

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National Resources

Dandy Walker syndrome

National Organization for Rare Disorders: https://rarediseases.org/rare-diseases/dandy-walker-malformation/
Dandy-Walker Alliance: http://dandy-walker.org/

Online Resources

Mommies of Miracles

Website: http://mommiesofmiracles.com/

SADS Foundation

Sudden Arrhythmia Death Syndromes Foundation
4527 South 2300 East, Suite 104
Salt Lake City, UT 84117-4448
Phone: (801) 948-0654
Website: https://www.sads.org

Special Needs Moms for Moms

Website: http://specialneedsmomsformoms.com/

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