Crouzon syndrome

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National Resources

Crouzon syndrome

National Organization for Rare Disorders: https://rarediseases.org/rare-diseases/crouzon-syndrome/
FACES: https://www.faces-cranio.org/crouzon

World Craniofacial Foundation

7777 Forest Lane
Suite C-616
Dallas, Texas 75230 USA
Phone: +1 (972) 566-6669
Toll Free: (800) 533-3315
Email: info@worldcf.org
Website: http://worldcf.org/index.html

Online Resources

AmeriFace

Post Office Box 751112
Las Vegas, NV 89136
Phone: (702) 769-9264
Toll Free: (888) 486-1209
Contact: Debbie Oliver, Executive Director
Email: info@ameriface.org
Website: http://www.ameriface.org/index.html

Mommies of Miracles

Website: http://mommiesofmiracles.com/

Support Groups for Crouzon syndrome

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Crouzon syndrome
CROUZON SYNDROME (Craniofacial Dysostosis)

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