Cornelia De Lange syndrome

National Resources

CdLS Foundation

Website: http://www.cdlsusa.org/

Genetic and Rare Disease Information Center

Website: https://rarediseases.info.nih.gov/diseases/10109/cornelia-de-lange-syndrome

Local Resources

Online Resources

Mommies of Miracles

Website: http://mommiesofmiracles.com/

SADS Foundation

Sudden Arrhythmia Death Syndromes Foundation
4527 South 2300 East, Suite 104
Salt Lake City, UT 84117-4448
Phone: (801) 948-0654
Website: https://www.sads.org

Special Needs Moms for Moms

Website: http://specialneedsmomsformoms.com/

Support Groups

Facebook: Cornelia De Lange Syndrome

World Federation of CdLS Support Groups: http://www.cdlsworld.org

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