Cockayne Syndrome
National Resources
Human Growth Foundation
997 Glencove Ave, Suite 5
Glenhead, NY 11545
Phone: (800) 451-6434
Email: hgf1@hgfound.org
Website: http://hgfound.org
Local Resources
Online Resources
Share and Care Cockayne Syndrome Network
Share and Care
P.O. Box 282
Waterford, VA 20197
Phone: (703) 727-0404
Contact: Jackie Clark, President and Executive Director
Email: cockaynesyndrome@gmail.com
Website: http://cockaynesyndrome.org
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Find or submit local and national resources for this or other diagnoses.