Cockayne Syndrome

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National Resources

Human Growth Foundation

997 Glencove Ave, Suite 5
Glenhead, NY 11545
Phone: (800) 451-6434
Email: hgf1@hgfound.org
Website: http://hgfound.org

Online Resources

Amy and Friends

Website: https://www.amyandfriends.org/contacts

Share and Care Cockayne Syndrome Network

Share and Care
P.O. Box 282
Waterford, VA 20197
Phone: (703) 727-0404
Contact: Jackie Clark, President and Executive Director
Email: cockaynesyndrome@gmail.com
Website: http://cockaynesyndrome.org

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