Bardet-Biedl Syndrome

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National Resources

Foundation Fighting Blindness

7168 Columbia Gateway Drive, Suite 100
Columbia, MD 21046
Phone: (800) 683-5555
Email: info@FightBlindness.org
Website: https://www.blindness.org/

National Organization for Rare Disorders

55 Kenosia Avenue
Danbury, CT 06810
Phone: (203) 744-0100
Website: https://rarediseases.org/rare-diseases/bardet-biedl-syndrome/

Online Resources

Mommies of Miracles

Website: http://mommiesofmiracles.com/

Special Needs Moms for Moms

Website: http://specialneedsmomsformoms.com/

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