Apert syndrome

National Resources

Apert Syndrome

National Organization for Rare Disorders: https://rarediseases.org/rare-diseases/apert-syndrome/

Apert syndrome

National Organization for Rare Disorders: https://rarediseases.org/rare-diseases/apert-syndrome/

Children’s Craniofacial Association

Website: http://www.ccakidsblog.org/

World Craniofacial Foundation

7777 Forest Lane
Suite C-616
Dallas, Texas 75230 USA
Phone: +1 (972) 566-6669
Toll Free: (800) 533-3315
Email: info@worldcf.org
Website: http://worldcf.org/index.html

Local Resources

Online Resources

AmeriFace

Post Office Box 751112
Las Vegas, NV 89136
Phone: (702) 769-9264
Toll Free: (888) 486-1209
Contact: Debbie Oliver, Executive Director
Email: info@ameriface.org
Website: http://www.ameriface.org/index.html

Children’s Craniofacial Association

13140 Coit Road
Suite 517
Dallas, TX 75240
Phone: (800) 535-3643
Email: contactCCA@ccakids.com
Website: https://ccakids.org/

Mommies of Miracles

Website: http://mommiesofmiracles.com/

Special Needs Moms for Moms

Website: http://specialneedsmomsformoms.com/

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