Alobar Holoprosencephaly

National Resources

Genetic and Rare Disease Information Center: https://rarediseases.info.nih.gov/diseases/6665/holoprosencephaly/cases/27877
National Organization for Rare Disorders: https://rarediseases.org/rare-diseases/holoprosencephaly/

Alobar Holoprosencephaly

Genetic and Rare Disease Information Center: https://rarediseases.info.nih.gov/diseases/6665/holoprosencephaly/cases/27877
National Organization for Rare Disorders: https://rarediseases.org/rare-diseases/holoprosencephaly/

Local Resources

Online Resources

Mommies of Miracles

Website: http://mommiesofmiracles.com/

Special Needs Moms for Moms

Website: http://specialneedsmomsformoms.com/

The Carter Centers for Brain Research

Texas Scottish Rite Hospital for Children
2222 Welborn Street
Dallas, Texas 75219
Contacts: Debbie Baldwin for information about The Carter Centers and Dr. Nancy Clegg for clinical questions
Debbie Phone: (214) 559-7614
Nancy Phone: (214) 559-8411
Debbie Email: Debbie.Baldwin@tsrh.org
Nancy Email: Nancy.Clegg@tsrh.org
Website: http://www.hperesearch.org/index.html

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