Courtney had a typical, uneventful pregnancy. But, immediately after she gave birth to her daughter,   Brenna, there was a shocked silence in the hospital room. Shortly after, Brenna was diagnosed with Harlequin Ichthyosis, which is the rarest most severe form of Ichthyosis. In the beginning, Courtney and her husband were fearful for Brenna’s future; but Brenna’s determination and confidence has shown her parents that nothing will hold her back. Brenna is now 5 years old, and her parents feel privileged and honored to be her parents.

Looking for Resources?

Find or submit local and national resources for this diagnosis.

Find Resources

Do You Have A Story To Tell?

If you or someone you know has a story to share, we would love to hear it. You may even be featured on Orange Socks.

Share Your Story