Orange Socks Community Stories

Jay

Jay

“Exactly one year ago today we were told there was something “wrong” with our baby. We were told his hands ... read more

Spina Bifida

Spina Bifida

“This, my friends, is what spina bifida looks like in my house. I became a single, expectant mother at age 28. I found out that ... read more

BerkLee

BerkLee

“At 5 days old we finally got discharged from the hospital. BerkLee was only 4 lbs 13 oz and was taken c-section at about 6 weeks read more

Silas

Silas

“During our 20 week ultrasound, we found out that Silas’s stomach was not very big and they were having trouble seeing it. After ... read more

Valerie

Valerie

“We, Daniel and Jeanette, are parents to an amazing two-year-old named Valerie. Valerie has had a rough start to her life; she ... read more

He Does All of These Things

He Does All of These Things

“On October 26th of 2016 we welcomed our 4th baby, a son to our family. He is our tie breaker making it 2 girls & now 2 boys. read more

Expect Happiness

Expect Happiness

“My sweet baby girl. If I had know the wonder and joy you would bring me I never would have cried, I wouldn’t have felt ... read more

Quinnlee

Quinnlee

“This is Quinnlee. We found out at a 13 week private ultrasound we were having a baby girl, but that there was something ... read more

Choose Life

Choose Life

“We chose LIFE! This is a picture of Finneas at 14 weeks. They showed us these pictures, told us our baby likely had a trisomy ... read more

Mikey

Mikey

“We found out that Mikey has Down syndrome the day after he was born. At first I was scared and didn’t known what to ... read more

Jackson

Jackson

“I worried throughout my entire pregnancy. Our testing and ultrasounds showed a perfectly healthy baby. At our last ultrasound, ... read more

Jackie

Jackie

“We were happy to be expecting our second child, and learned through early blood testing that it was a baby girl. We were ... read more

Zoey

Zoey

“In the spring of 2009 we found out we were expecting our fourth child. When we were told we would have a baby girl -I was ... read more

The Most Rewarding Experience

The Most Rewarding Experience

“We went in for a routine ultrasound at 34 weeks. This is where they discovered that my unborn baby had fluid on his brain and ... read more

Hatty

Hatty

“Hatty was born at 38+6 weeks being induced after no movement…she was taken away to intensive care after 12 hours as she ... read more

Harlow

Harlow

“During pregnancy they had noticed complications with fluid on her brain. I was asked multiple times to terminate the pregnancy ... read more

Anonymous

Anonymous

“We could’ve missed this. Prayerfully this precious little love will be joining our family very soon. When we decided to ... read more

Down syndrome

Down syndrome

“My pregnancy was uneventful with the exception of a small scare…[after a second ultrasound, they said] My little one was ... read more

Marie-Claire

Marie-Claire

“The day Marie-Claire was diagnosed with Williams syndrome was a dark day. I wish I could go back in time and tell that terrified read more

Nora

Nora

“Norah has potentially developed a few things that will require the care of multiple specialists: Spina Bifida, Microcephaly, ... read more

Faith

Faith

“We had three boys biologically and even though they do not have Down syndrome, two of our boys have special needs. It was our ... read more

Owen

Owen

Owen has Lissencephaly, spastic quadriplegic cerebral palsy, cortical vision impairment, epilepsy tendencies and global development ... read more

Anderson’s journey has been quite the adventure

Anderson’s journey has been quite the adventure

After a grueling labor I knew something was wrong. Anderson’s breathing was labored and too fast. He was rushed off to the NICU where ... read more

Down syndrome

Down syndrome

“I knew I loved her through [my] whole journey of pregnancy and being a fighter for her life while others tried to disvalue her ... read more

Chiara

Chiara

“What began as a simple treatment for her clubfoot, to an unfolding of a more serious diagnosis, thought to impede her ability to read more

Ansley

Ansley

“Ansley is diagnosed with Lissencephaly, Microcephaly, Cerebral Palsy, Epilepsy, Failure to Thrive, Optic Nerve Hypoplasia, ... read more

Karen

Karen

“Caleb was definitely a “caboose” baby, arriving some 17+ years after his sister. We looked forward to life with a little boy, ... read more

Worth It

Worth It

“When we got a prenatal diagnosis for Down syndrome, I thought it was the biggest thing in the world and that I’d be ... read more

Lacey

Lacey

“If I could tell you one thing that would stick with you forever about raising a child with special needs, I would tell you this: read more

Amy

Amy

“I can’t wait to kiss this little face. This was her 20 week ultrasound where we got to see her perfectly healthy anatomy. ... read more

Sarah

Sarah

“My mother was actually told by doctors that I would die or be born with deformities and she would die as well. ⠀ ⠀ She was ... read more

Josiah

Josiah

“Two months with my brave boy! You still love to eat more than anything and also taking night walks. Daddy walks you around the ... read more

Jude

Jude

“My pregnancy definitely had it’s scares and challenges but it was also so beautiful and wonderful. I will forever cherish ... read more

Zach

Zach

“Our thoughts quickly moved through the meaning of the word wonder to then…”desire to be curious to know ... read more

Mellie

Mellie

“If I could describe [having a child with a disability] in one word, it would be perfection. Mellie is my dream come true.” -Amy read more

Only the Lucky Ones

Only the Lucky Ones

“Annie is my sister, and has lived with me since she was 16. I had my first baby when Annie was 18 and she has been the best ... read more

Spina Bifida

Spina Bifida

“I kiss this scar every day. I know every line, every bump, and it’s perfect. I’ll forever be grateful for his ... read more

Robyn Ott

Robyn Ott

I was born in 1979, the youngest of six girls. My parents had no idea there was anything amiss with the pregnancy. When I was born, my ... read more

Joshua

Joshua

This is my baby Joshua he is 1. When we were pregnant, at our 20-week scan, we found out that he had clubbed feet and a horseshoe ... read more

Layllahs life

Layllahs life

This is layllah she is almost 2 years old. She was diagnosed 2 months ago with a super rare dwarfism. No more than 20 people in the ... read more

Kleefstra syndrome

Kleefstra syndrome

If you want to share Azies story… A’zLynn or Azie was born March 2017. We knew at her 20 week ultrasound that she had a problem ... read more

Unbreakable Hadley

Unbreakable Hadley

Hadley Larsen is 6 She was born on Nov. 15, 2012.  Hadley was diagnosed with a rare genetic disorder called Osteogenesis Imperfecta, or read more

Learning about Microdeletion Syndrome

Learning about Microdeletion Syndrome

Finding out we were expecting was the most exciting news. 2 years prior to this pregnancy we lost our daughter. She was born at 24 ... read more

Melanie Strong

Melanie Strong

❤️ Melanie thrived for three month’s and three day’s having Complete Trisimy 22…Trisomy 22 is a ... read more

One step closer for Natalie !

One step closer for Natalie !

Natalie was born at 35 weeks, my water broke around 10pm on March 11th. We were so excited but also so nervous ! We hopped in the car ... read more

My Precious Destiny ❤️

My Precious Destiny ❤️

My husband and I wanted to have a baby. Even way before our baby was conceived, my husband said to me if I ever have a girl I’m going ... read more

what “H.I.” means to us! A baby born with very a rare skin condition.

what “H.I.” means to us! A baby born with very a rare skin condition.

Every routine pregnancy check up had gone well. Our baby had a strong heartbeat, 10 fingers, 10 toes and a cute button nose. There was ... read more

Nevertheless, She Persisted!

Nevertheless, She Persisted!

Haddie came into the world on September 5th 2014! Things were difficult for her from the first day earth side- starting with ... read more

The CP fighter

The CP fighter

I feel so blessed to be having this angel with me! I was an active pregnant with no complaints or complications. Oct 8, 2017 was the ... read more

no cons, only PROS.

no cons, only PROS.

Following my anatomy scan at 22 weeks, Emerson was diagnosed with hemimegalencephaly (the left side of her brain was growing faster and read more

Noelle’s Light

Noelle’s Light

In June, 2016, my husband and I found out that we were expecting our first child. We were so excited to become a family of three. At 20 read more

Vicente Journey

Vicente Journey

We found out at our 20 week rountine anatomy scan that Jr had Tetralogy Of fallot, we also found out he had “ A genetic condition” but ... read more

My Angel Mia

My Angel Mia

Mia was my second baby. During my 4 month of pregnancy I got the best news I was going to have a baby girl I was really excited but ... read more

Sawyer’s lethal dwarfism

Sawyer’s lethal dwarfism

We went in for our routine anatomy scan at the end of May 2018 for our 4th child. During the scan, we noticed that the sonographer was ... read more

Update on Massimo

Update on Massimo

Massimo is now 6 years old. Will be 7 in December. Massimo is in a mainstreamed classroom. He is in special ed first grade. Massimo ... read more

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