Orange Socks Community Stories

Alper

Alper

This is Alper. He has Cri Du Chat syndrome. Cri Du Chat is also known as Cat Cry syndrome. Infants born with CDC have a cry that sounds read more

Mason

Mason

Mason is one year old, and was diagnosed with Septo Optic Dysplasia (SOD). He was born blind, and we were told that he would never be ... read more

Evan

Evan

Evan’s diagnosis was given 2 days before his birth by using 3D and 4D ultrasounds. We had suspicious ultrasounds starting at 27 ... read more

Noonans

Noonans

5 months after she was born we got a diagnosis..Noonans. We had no idea what Noonans was and we had to deal with a baby who not only ... read more

Helianny

Helianny

When I was 4 months pregnant, doctors gave me the news that Helianny would be born with multiple malformations due to Amniotic Band ... read more

Kensley

Kensley

Kensley was born without eyes, a rare genetic condition called anophthalmia. I found out about it the day after she was born. We ... read more

Stronger than you think

Stronger than you think

We went in for a routine ultrasound at 34 weeks. This is where they discovered that my unborn baby had fluid on his brain and enlarged ... read more

Luke

Luke

When Luke turned one, he wasn’t gaining any weight and he lost his hair. After a year of doctors appointments and testing, we ... read more

Cenk

Cenk

My cousin was born with Angelman syndrome. After he was born, it took two years until he got a diagnosis. It was a really difficult ... read more

Deacon

Deacon

Deacon was born with ATR-X syndrome (Alpha Thalassemia Retardation syndrome), which explains his endrocrine problems, developmental ... read more

Mila

Mila

After an early prenatal ultrasound our excitement turned to fear and worry. The pocket of fluid at the back of her neck was measuring ... read more

Epilepsy

Epilepsy

In December 2015, I was going into the kitchen, and then suddenly face planted between the kitchen and the family room. Apparently I ... read more

Henry

Henry

My wife and I had our first child, Henry, on St. Patrick’s day in 2014. Little H was beautiful. This was OUR boy, made of the same ... read more

Lauren

Lauren

This is my gorgeous sister Lauren Wescott. Lauren has Cerebral Palsy, and Spastic Quadriplegia. She just turned 23! She is a gorgeous, ... read more

Microcephaly, GBS Meningitis, severe brain damage, hydrocephalus, hypertension and seizure disorder

Microcephaly, GBS Meningitis, severe brain damage, hydrocephalus, hypertension and seizure disorder

At 36 weeks pregnant, I was swabbed for GBS Meningitis -like every other pregnant woman does -and it came back negative. She was ... read more

Lily

Lily

Seven and a half years ago I was pregnant with our 10th baby. I went in for a routine ultrasound at 20 weeks, during which several ... read more

Autism

Autism

When i was two, my brother was born. By the time he was one he wasnt walking, wasn’t talking, and wouldn’t listen. He had ... read more

Valleria Elinor

Valleria Elinor

When Valleria Elinor Huang was born I thought the world was over. You always think it will not happen to you; but when it does that’s ... read more

Harrison

Harrison

Early January, we were sent to a perinatologist due to ultrasound findings that indicated concerns. The perinatologist confirmed the ... read more

Isabella

Isabella

Isabella was diagnosed at 16 weeks in-utero with hydrocephalus. She is an identical twin as well. As soon as we delivered, they ... read more

Benny

Benny

In the middle of the red desert in Southern Utah is a tiny Gypsum mine where my kids like to explore and dig for the pure white ... read more

Limb difference

Limb difference

We found out about our daughters differences at the 18 week ultrasound, but they had no idea what it meant. Since Limb Differences can ... read more

Madelyn Grace

Madelyn Grace

We went in for our 20 week anatomy scan having had previous ultrasounds during the pregnancy. We were told we were having a girl and ... read more

Lua

Lua

At the 12weeks scan my partner and I were so excited to see our baby and hear her heartbeat.. We were both healthy and young and no one read more

Parker

Parker

We found out when I was 15 weeks pregnant that there was a 99.7% chance that he would have Down syndrome. At first, it was so ... read more

Lucy

Lucy

At our 20 week ultrasound; the tech seemed to be struggling with something. She said she couldn’t get good angles on some of the ... read more

Faith

Faith

Our baby Faith had Full Trisomy 13. Trisomy is a genetic disorder in which a person has three copies of a chromosome instead of two. ... read more

Maddux

Maddux

When we received the news that Maddux would be born with the birth defect spina bifida, our worlds were turned upside down. And just ... read more

Bastian

Bastian

Bastian has ABS [Amniotic Band syndrome] on all four limbs, his hands each have a thumb (hence his two thumbs up) and the rest of his ... read more

22q.11 deletion syndrome

22q.11 deletion syndrome

We found out at 18 weeks during our anatomy scan that the heart looked a little too vertical and there looked to be some blood flow ... read more

Malakye

Malakye

I was told at my 28 week ultrasound that my baby would be born missing his right hand and forearm. Having previously had a son ... read more

Brody

Brody

We knew from our first ultrasound that Brody had #dwarfism, and unfortunately we received conflicting opinions throughout the ... read more

Cameron

Cameron

During my perfectly healthy pregnancy it never crossed my mind that our child would be born with special needs. Cameron would be smart ... read more

Indy

Indy

We did not do any genetic screening during my pregnancy. We had done invitro, so felt confident about having a “healthy” ... read more

Brody

Brody

I received the phone call from the genetic counselor while I was at work. I walked into a private room, and just listened. She revealed read more

Jordan Grace

Jordan Grace

What would I tell my scared, worried, pregnant self about what life would be like today? I would tell her, everything will be ok! Life ... read more

Giselle

Giselle

At 20 weeks pregnant, they noticed ventriculomegaly on the left side of her brain. They assured me that it was mild and there was ... read more

Dwarfism

Dwarfism

We faced two (different) terminal diagnoses and encouragement to terminate with my second daughter. Doctor’s were 99.9% sure she ... read more

King

King

At 32 weeks King was born via c section due to placenta eruption. He was pronounced dead after 7 minutes of trying to revive him. He ... read more

Josephine

Josephine

Our story began with an ultrasound. Like any other parent we were so excited to see a glimpse of our baby. The scan took longer than ... read more

Treq

Treq

Treg is my only child, I was 23 when I got pregnant, even after I got back a positive on the genetic quad screening the doctor told me ... read more

Finn

Finn

My husband Michael and I have been married for 8 years and we have two children together. Our oldest son, Mason just turned 3 and our ... read more

Luca

Luca

I vividly remember the first time the doctors said ‘dwarfism’, the same day Luca was born and while he was in the NICU for ... read more

Ellie

Ellie

When Ellie was born, I tried my hardest to keep it together. I did pretty good for the most part. There were some times that were just ... read more

Elin

Elin

The moment you slid silently into the world, marble white and flanked, by the gasps of the midwives and the sound of the emergency ... read more

Foster

Foster

Foster has a very rare condition, caused by a genetic mutation to his SCN8A gene but the larger umbrella diagnosis is Epilepsy. Raising read more

Charlee’s Journey

Charlee’s Journey

This is Charlee Lynn. She is my 1%. At my 12 week scan our doctor noticed something was wrong. Our little baby had a cystic hygroma on ... read more

Passing On A Genetic Condition

Passing On A Genetic Condition

During both of my pregnancies I wondered if my baby would be born with Ichthyosis. After all, I have it and it’s a 50% chance for it to read more

Behind it all, her journey

Behind it all, her journey

The years have been both kind and unfavorable to me, but none the less I have overcome all odds against me. I am Sanshegay Peart a ... read more

THIS is the face of invisible illness

THIS is the face of invisible illness

You wouldn’t think it to look at him-he doesn’t look sick. In this picture you see a perfectly normal, happy and healthy 4 ... read more

Jay

Jay

“Exactly one year ago today we were told there was something “wrong” with our baby. We were told his hands ... read more

Spina Bifida

Spina Bifida

“This, my friends, is what spina bifida looks like in my house. I became a single, expectant mother at age 28. I found out that ... read more

BerkLee

BerkLee

“At 5 days old we finally got discharged from the hospital. BerkLee was only 4 lbs 13 oz and was taken c-section at about 6 weeks read more

Silas

Silas

“During our 20 week ultrasound, we found out that Silas’s stomach was not very big and they were having trouble seeing it. After ... read more

Valerie

Valerie

“We, Daniel and Jeanette, are parents to an amazing two-year-old named Valerie. Valerie has had a rough start to her life; she ... read more

He Does All of These Things

He Does All of These Things

“On October 26th of 2016 we welcomed our 4th baby, a son to our family. He is our tie breaker making it 2 girls & now 2 boys. read more

Expect Happiness

Expect Happiness

“My sweet baby girl. If I had know the wonder and joy you would bring me I never would have cried, I wouldn’t have felt ... read more

Quinnlee

Quinnlee

“This is Quinnlee. We found out at a 13 week private ultrasound we were having a baby girl, but that there was something ... read more

Choose Life

Choose Life

“We chose LIFE! This is a picture of Finneas at 14 weeks. They showed us these pictures, told us our baby likely had a trisomy ... read more

Mikey

Mikey

“We found out that Mikey has Down syndrome the day after he was born. At first I was scared and didn’t known what to ... read more

Jackson

Jackson

“I worried throughout my entire pregnancy. Our testing and ultrasounds showed a perfectly healthy baby. At our last ultrasound, ... read more

Jackie

Jackie

“We were happy to be expecting our second child, and learned through early blood testing that it was a baby girl. We were ... read more

Zoey

Zoey

“In the spring of 2009 we found out we were expecting our fourth child. When we were told we would have a baby girl -I was ... read more

The Most Rewarding Experience

The Most Rewarding Experience

“We went in for a routine ultrasound at 34 weeks. This is where they discovered that my unborn baby had fluid on his brain and ... read more

Hatty

Hatty

“Hatty was born at 38+6 weeks being induced after no movement…she was taken away to intensive care after 12 hours as she ... read more

Harlow

Harlow

“During pregnancy they had noticed complications with fluid on her brain. I was asked multiple times to terminate the pregnancy ... read more

Anonymous

Anonymous

“We could’ve missed this. Prayerfully this precious little love will be joining our family very soon. When we decided to ... read more

Down syndrome

Down syndrome

“My pregnancy was uneventful with the exception of a small scare…[after a second ultrasound, they said] My little one was ... read more

Marie-Claire

Marie-Claire

“The day Marie-Claire was diagnosed with Williams syndrome was a dark day. I wish I could go back in time and tell that terrified read more

Nora

Nora

“Norah has potentially developed a few things that will require the care of multiple specialists: Spina Bifida, Microcephaly, ... read more

Faith

Faith

“We had three boys biologically and even though they do not have Down syndrome, two of our boys have special needs. It was our ... read more

Owen

Owen

Owen has Lissencephaly, spastic quadriplegic cerebral palsy, cortical vision impairment, epilepsy tendencies and global development ... read more

Anderson’s journey has been quite the adventure

Anderson’s journey has been quite the adventure

After a grueling labor I knew something was wrong. Anderson’s breathing was labored and too fast. He was rushed off to the NICU where ... read more

Down syndrome

Down syndrome

“I knew I loved her through [my] whole journey of pregnancy and being a fighter for her life while others tried to disvalue her ... read more

Chiara

Chiara

“What began as a simple treatment for her clubfoot, to an unfolding of a more serious diagnosis, thought to impede her ability to read more

Ansley

Ansley

“Ansley is diagnosed with Lissencephaly, Microcephaly, Cerebral Palsy, Epilepsy, Failure to Thrive, Optic Nerve Hypoplasia, ... read more

Karen

Karen

“Caleb was definitely a “caboose” baby, arriving some 17+ years after his sister. We looked forward to life with a little boy, ... read more

Worth It

Worth It

“When we got a prenatal diagnosis for Down syndrome, I thought it was the biggest thing in the world and that I’d be ... read more

Lacey

Lacey

“If I could tell you one thing that would stick with you forever about raising a child with special needs, I would tell you this: read more

Amy

Amy

“I can’t wait to kiss this little face. This was her 20 week ultrasound where we got to see her perfectly healthy anatomy. ... read more

Sarah

Sarah

“My mother was actually told by doctors that I would die or be born with deformities and she would die as well. ⠀ ⠀ She was ... read more

Josiah

Josiah

“Two months with my brave boy! You still love to eat more than anything and also taking night walks. Daddy walks you around the ... read more

Jude

Jude

“My pregnancy definitely had it’s scares and challenges but it was also so beautiful and wonderful. I will forever cherish ... read more

Zach

Zach

“Our thoughts quickly moved through the meaning of the word wonder to then…”desire to be curious to know ... read more

Mellie

Mellie

“If I could describe [having a child with a disability] in one word, it would be perfection. Mellie is my dream come true.” -Amy read more

Only the Lucky Ones

Only the Lucky Ones

“Annie is my sister, and has lived with me since she was 16. I had my first baby when Annie was 18 and she has been the best ... read more

Spina Bifida

Spina Bifida

“I kiss this scar every day. I know every line, every bump, and it’s perfect. I’ll forever be grateful for his ... read more

Robyn Ott

Robyn Ott

I was born in 1979, the youngest of six girls. My parents had no idea there was anything amiss with the pregnancy. When I was born, my ... read more

Joshua

Joshua

This is my baby Joshua he is 1. When we were pregnant, at our 20-week scan, we found out that he had clubbed feet and a horseshoe ... read more

Layllahs life

Layllahs life

This is layllah she is almost 2 years old. She was diagnosed 2 months ago with a super rare dwarfism. No more than 20 people in the ... read more

Kleefstra syndrome

Kleefstra syndrome

If you want to share Azies story… A’zLynn or Azie was born March 2017. We knew at her 20 week ultrasound that she had a problem ... read more

Unbreakable Hadley

Unbreakable Hadley

Hadley Larsen is 6 She was born on Nov. 15, 2012.  Hadley was diagnosed with a rare genetic disorder called Osteogenesis Imperfecta, or read more

Learning about Microdeletion Syndrome

Learning about Microdeletion Syndrome

Finding out we were expecting was the most exciting news. 2 years prior to this pregnancy we lost our daughter. She was born at 24 ... read more

Melanie Strong

Melanie Strong

❤️ Melanie thrived for three month’s and three day’s having Complete Trisimy 22…Trisomy 22 is a ... read more

One step closer for Natalie !

One step closer for Natalie !

Natalie was born at 35 weeks, my water broke around 10pm on March 11th. We were so excited but also so nervous ! We hopped in the car ... read more

My Precious Destiny ❤️

My Precious Destiny ❤️

My husband and I wanted to have a baby. Even way before our baby was conceived, my husband said to me if I ever have a girl I’m going ... read more

what “H.I.” means to us! A baby born with very a rare skin condition.

what “H.I.” means to us! A baby born with very a rare skin condition.

Every routine pregnancy check up had gone well. Our baby had a strong heartbeat, 10 fingers, 10 toes and a cute button nose. There was ... read more

Nevertheless, She Persisted!

Nevertheless, She Persisted!

Haddie came into the world on September 5th 2014! Things were difficult for her from the first day earth side- starting with ... read more

The CP fighter

The CP fighter

I feel so blessed to be having this angel with me! I was an active pregnant with no complaints or complications. Oct 8, 2017 was the ... read more

no cons, only PROS.

no cons, only PROS.

Following my anatomy scan at 22 weeks, Emerson was diagnosed with hemimegalencephaly (the left side of her brain was growing faster and read more

Noelle’s Light

Noelle’s Light

In June, 2016, my husband and I found out that we were expecting our first child. We were so excited to become a family of three. At 20 read more

Vicente Journey

Vicente Journey

We found out at our 20 week rountine anatomy scan that Jr had Tetralogy Of fallot, we also found out he had “ A genetic condition” but ... read more

My Angel Mia

My Angel Mia

Mia was my second baby. During my 4 month of pregnancy I got the best news I was going to have a baby girl I was really excited but ... read more

Sawyer’s lethal dwarfism

Sawyer’s lethal dwarfism

We went in for our routine anatomy scan at the end of May 2018 for our 4th child. During the scan, we noticed that the sonographer was ... read more

Update on Massimo

Update on Massimo

Massimo is now 6 years old. Will be 7 in December. Massimo is in a mainstreamed classroom. He is in special ed first grade. Massimo ... read more

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