“We went in for a routine ultrasound at 34 weeks. This is where they discovered that my unborn baby had fluid on his brain and enlarged ventricles. We were referred and saw a specialist every 2 weeks until he was born via c-section at 39 weeks.
He had an MRI done at 2 weeks old to see what caused everything and what was actually going on. This is where we were told the words that would forever change our life. “Your baby had a stroke in utero and a brain hemmorage.” We were told that everything was absolved. Long term effects would be his coordination. Which little did we know at the time is that coordination has to do with everything in the human body.
In the very beginning I honestly thought it was the end of the absolute world. I didn’t know what we were going to do? How we were going to handle it? How would it be like? The unknown drove me crazy. The first few months of their life you are in denial because everything seems so normal. For us it was between the 4th-6th month mark. You end up being just fine. You learn how to cope. You learn how to deal. You learn how to do things your way based on your child’s needs.
It changes your entire life, but it changes you as a person. It changed my way of thinking. It changed the way I viewed things. It set my priorities straight etc. It makes you a better person overall for your child.
You are stronger than you think you are…that the inner strength and fight that you have within yourself will surprise you. You were meant to have this child. That is why this child is in your life. You wouldn’t have it if God didn’t think you could handle it.
This is the most rewarding experience. As much as this experience can suck, it’s amazing to see their progress and what their tiny little brains can actually do a achieve. We are lucky enough to be able to witness that and help them out along the way. There is no greater feeling in the world.
I hope to help someone who is new to this like we were. I was searching for support and it took months before I found a blog that lead me to become apart of the CHASA group that I am in now.”