When Luke turned one, he wasn’t gaining any weight and he lost his hair. After a year of doctors appointments and testing, we found out he had a genetic mutation called Progeria.
We felt the world would end. Having Progeria is a 1:8 million chance. We thought, “why our son?”
People with Progeria live between 2-20 years old, and that’s the only thing we really know.
Now we try to make everyday a special one for Luke, because nobody knows how much time we’ve got with him.