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Janalen and Rocky: Prader-Willis Syndrome, Cystic Fibrosis, Adoption, and Down Syndrome

Janalen and Rocky: Prader-Willis Syndrome, Cystic Fibrosis, Adoption, and Down Syndrome

Rocky admits that at first he had worries and concerns about raising a child with special needs, but these concerns quickly dissolved. He tells us “The joy that comes when you sacrifice for other people and other things…It helps you to focus on the things that really matter in this life and to take joy in the simple things that we often take for granted.”

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Shirell and Danny: Prader-Willi Syndrome

Shirell and Danny: Prader-Willi Syndrome

Shirell and Danny have a 15 year old boy named Sam, who has Prader-Willi syndrome. When Sam was first born, Shirell and Danny noticed that he was floppy and looked lifeless, and the doctors discovered his issues right away. For Shirell and Danny the joys  have...

Lisa and Steven: Epilepsy and Developmental Delay

Lisa and Steven: Epilepsy and Developmental Delay

Lisa and Steven have a son named Matt who has Epilepsy and and a developmental delay. When Matt was six, he had his first Grand Mal seizure; his parents took him to the doctor where he was then diagnosed with Epilepsy.  Lisa and Steven describe Matt as a loving...

Emily and Bryson: Lissencephaly

Emily and Bryson: Lissencephaly

Bryson and Emily were thrilled to welcome their first child Hunter.  They started noticing that Hunter was falling behind in some of his development.  When Hunter started having seizures, they knew something was wrong. He was diagnosed with...

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