Amanda: Pfeiffer Syndrome

Amanda: Pfeiffer Syndrome

Emmy is an incredible little girl with Pfeiffer syndrome.  She’s already overcome many obstacles in her short 5 months of being alive.   Exceeding Expectations 20 Week Scan Reveals Abnormalities Amanda found out that Emmy had some abnormalities at the 20 week...
Kassy and Darren: 7 Q Chromosome Deletion

Kassy and Darren: 7 Q Chromosome Deletion

Kenai is truly one of a kind.  With only a handful of people in the world diagnosed with 7Q deletion, he is paving the way and proving doctors wrong.  His parents, Kassy and Darren, share what a joy he’s been to their family and how they are helping him grow and...
Nicole and Adam: Spina Bifida

Nicole and Adam: Spina Bifida

Piper is a vivacious little girl with spina bifida.  She surpassed the doctors’ expectations even before she was born in an in utero surgery.   High-Risk Surgery Before She Was Born “I Had a Feeling that Something Wasn’t Right” During her 16 week ultrasound, Nicole...
Caitlin and Dallin: Spinal Muscular Atrophy

Caitlin and Dallin: Spinal Muscular Atrophy

Auni had spinal muscular atrophy or SMA.  A rare fatal disease that is characterized by progressive loss of muscle.  While she only lived for 21 months, her parents remember the joy and happiness she brought to their lives and their community. The Fog Will Lift Worst...

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