Jun 13, 2018 | Down syndrome- Trisomy 21, Sibling Stories
Sharmi was born with Down syndrome and ever since that day she brought happiness in her wake. Sharmi has since passed away, but even now her life continues to inspire her family members and others to serve. Raising a child with Down Syndrome When Sharmi was born, the...
Jun 7, 2018 | Asparagine Synthetase Deficiency or ASNS, Cerebral Palsy, Cortical Visual Impairment or CVI, Dwarfism, Epilepsy, Microcephaly, Prenatal diagnosis
Gwen is the mother of Claire and Lola, teenagers with Asparagine Synthetase Deficiency or ASNS. Both Claire and Lola have microcephaly as a result of ASNS. Despite this, they have filled their family and community with love. Finding happiness and Joy The unexpected...
Jun 5, 2018 | Chromosomal Deletion 7 Q
Kenai is truly one of a kind. With only a handful of people in the world diagnosed with 7Q deletion he is paving the way and proving doctors wrong. His parents, Kassy and Darren, share what a joy he’s been to their family and how they are helping him grow and learn....
May 29, 2018 | Spina Bifida
Piper is a vivacious little girl with Spina Bifida. She surpassed the doctors’ expectations even before she was born in an in utero surgery. High-Risk Surgery “I had a feeling that something wasn’t right” During her 16 week ultrasound, Nicole noticed the technician...
May 22, 2018 | Spinal Muscular Atrophy
Auni had Spinal Muscular Atrophy or SMA. A rare fatal disease that is characterized by progressive loss of muscle. While she only lived for 21 months, her parents remember the joy and happiness she brought to their lives and their community. The Fog Will Lift Worst...
