Jun 5, 2018 | Chromosomal Deletion 7 Q
Kenai came five weeks early and was diagnosed five days after birth. Kassy and her husband Darren had no idea that he would be born with 7 Q Chromosome Deletion. Though the news was unexpected for them and their families, they love Kenai the way he is. In fact, they...
May 29, 2018 | Spina Bifida
Nicole found out that her daughter had Spina Bifida when she was 16 weeks pregnant. After a lot of research, Nicole decided surgery in utero would give her daughter a head start at beating this diagnosis. Years later her baby, Piper, has overcome overwhelming odds,...
May 22, 2018 | Spinal Muscular Atrophy
Caitlin and Dallin’s daughter, Auni, was 4 months old when they realized she wasn’t developing typically. When Auni was 7 months old, she was diagnosed with Type 1 Spinal Muscular Atrophy, or SMA, which is a terminal diagnosis. Auni lived 21 months before she passed...
May 8, 2018 | Albinism, Anencephaly, Asperger's syndrome
Tyler and Alie are the parents of three children who were each diagnosed with different disabilities: Asperger’s syndrome, Anencephaly, and Albinism. And even though their daughter with Anencephaly did not survive more than a couple days after birth, each of these...
May 1, 2018 | Down syndrome- Trisomy 21
Immediately after Tiffany and TJ’s son Austin was born, Tiffany noticed Austin’s almond shaped eyes, and she knew this was a sign of having Down syndrome. She immediately knew he was born with Ds, but they got the official diagnosis from their doctor a...
