Parenting a Child with Spina Bifida

Parenting a Child with Spina Bifida

Nicole found out that her daughter had Spina Bifida when she was 16 weeks pregnant. After a lot of research, Nicole decided surgery in utero would give her daughter a head start at beating this diagnosis. Years later her baby, Piper, has overcome overwhelming odds,...
Spinal Muscular Atrophy-A Parent’s Experience

Spinal Muscular Atrophy-A Parent’s Experience

Caitlin and Dallin’s daughter, Auni, was 4 months old when they realized she wasn’t developing typically. When Auni was 7 months old, she was diagnosed with Type 1 Spinal Muscular Atrophy, or SMA, which is a terminal diagnosis. Auni lived 21 months before she passed...

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