Diagnosis: Latest Post

3 Things to do When You Find Out Your Child has a Disability

Finding out that your child has a disability can be one of the most heart wrenching experiences a parent can face in their lifetime.  However, there are three main things that can help you process and start accepting your child’s diagnosis 3 Things You Can Do When You Find Out Your Child Has A Disability Finding a Support Group One of the...

Diagnosis

The Trip Of A Lifetime: Buddy

The Trip Of A Lifetime: Buddy

Orange Socks is an initiative of RISE Inc. RISE supports people with intellectual and developmental disabilities. Recently we had the opportunity is bring one of our clients, Buddy, on the trip of a lifetime. Buddy has an adventurous spirit and during his growing up...

Stacy and Terry: Cri Du Chat syndrome

Stacy and Terry: Cri Du Chat syndrome

Stacy said that her daughters have been a blessing from the beginning but that she had to adjust her thinking to a different path than what she had expected. Now they are just “Sydney and Logan. Stacy tells us, “They are actually easier to raise than my other two daughters who are non-delayed.” Despite the challenges they know it is worth it. “Everyone has problems, you just have to adjust…They are worth it. I wouldn’t give up anything. I love coming home…,” said Terry. He loves that his twin daughters still live at home and he gets about 20 hugs a day from them.

Cathy and Brian: Down Syndrome

Cathy and Brian: Down Syndrome

Cathy McMorris Rodgers and her husband Brian Rodgers found out their son Cole had Down syndrome at his birth. “It was tough. The doctors laid out a lot of things and it was very difficult. The fear of the unknown is what is overwhelming in that moment. Go talk to other people, don’t make an isolated decision. Educate yourself, I remember when we go the news about Cole, that so much of it was focused on the negative. It was focused on what health issues he may have or other challenges. Rather than really being told what the potential was.”

Jessica and Chewy: Traumatic Brain Injury (TBI)

Jessica and Chewy: Traumatic Brain Injury (TBI)

 Jessica is a single mom and the parent of two boys, Britton and Chewy. Britton was born at 28 weeks gestation weighing only two pounds and 14 ounces. He is 13 years old now and has had many health challenges, including a stroke and brain bleed which has resulted in Traumatic Brain Injury (TBI).

Nikki and Sean: OI- Brittle Bones

Nikki and Sean: OI- Brittle Bones

They told us they thought he had a form of dwarfism based on his femur length. His femurs are shortened and curved, which is a marker for other conditions. At 32 weeks we got the results back that it was Osteogenesis Imperfecta- also known as brittle bones.

Natalie: Rett Syndrome and Facial Differences

Natalie: Rett Syndrome and Facial Differences

“I held her and I cried and the nurse held me and from that moment on I said “I don’t care about anything else other than protecting her and doing whatever it takes to keep her happy and safe and loved.”

Jori and Dan: Autosomal Recessive Centronuclear Myopathy

Jori and Dan: Autosomal Recessive Centronuclear Myopathy

Jori and Dan have a very unique son named Luxton.  He is one of three cases in the world that has autosomal recessive centronuclear myopathy type 5. Luxton however is the only one in the world that has two mutated genes. Autosomal Recessive Centronuclear Myopathy...

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