Diagnosis: Latest Post

Maria Update: From a Fatal Diagnosis to Thriving

Maria Update: From a Fatal Diagnosis to Thriving

All Maria wanted was to be able to get the chance to tell Serenity how much she was loved. She said, “I just prayed and I asked God if he could just give me fifteen minutes to love her. To tell her how much I loved her.

Diagnosis

Camille and Martin: Seizure Disorder

Camille and Martin: Seizure Disorder

Martin and Camille have four children.  Three of which have a seizure disorder. Camille and Martin were pioneers in getting appropriate services for their children.  Camille and Martin were candid about first learning about their children’s seizure disorder...

Cindy, Mike and Evan: Spina Bifida

Cindy, Mike and Evan: Spina Bifida

Cindy and Mike were devastated when they learned that their fifth child was going to be born with spina bifida.  They were strongly encouraged to terminate the pregnancy.  30 years later they are grateful they didn’t. Evan, their son is happy his parents...

Shirell and Danny: Prader-Willi Syndrome

Shirell and Danny: Prader-Willi Syndrome

Shirell and Danny have a 15 year old boy named Sam, who has Prader-Willi syndrome. When Sam was first born, Shirell and Danny noticed that he was floppy and looked lifeless, and the doctors discovered his issues right away. For Shirell and Danny the joys  have...

Lisa and Steven: Epilepsy and Developmental Delay

Lisa and Steven: Epilepsy and Developmental Delay

Lisa and Steven have a son named Matt who has Epilepsy and and a developmental delay. When Matt was six, he had his first Grand Mal seizure; his parents took him to the doctor where he was then diagnosed with Epilepsy.  Lisa and Steven describe Matt as a loving...

Janeen- A Grandma’s Perspective: Lissencephaly

Janeen- A Grandma’s Perspective: Lissencephaly

Janeen is the proud grandparent of Hunter, a 10 year old boy who was diagnosed with lissencephaly.  Janeen was candid about her experience with Hunter and the joy he has brought into her life and his family’s life.   A Grandma's Love Four-month-old diagnosed with...

Pin It on Pinterest