Diagnosis: Latest Post

Christie and Eric: Epilepsy, Autism, Mood Disorder, Developmental Disability.

Christie and Eric: Epilepsy, Autism, Mood Disorder, Developmental Disability.

As soon as the neurologist saw Elie, he knew she had a serious condition and soon after diagnosed Elie with infantile spasms, which is considered a medically catastrophic seizure disorder. “It was heartbreaking,” Eric said. “I remember thinking that I didn’t know what to think. I didn’t know what to expect. It was a whole road that we couldn’t see in front of us.”

Diagnosis

Kristin and Chris: Full Trisomy 9

Kristin and Chris: Full Trisomy 9

Ethan lived for 93 minutes.  He is one of the only babies to be born alive with full Trisomy 9.  His parents, Kristin and Chris were offered several times to abort Ethan.  They decided to carry to term and are happy they chose life and got to meet him.  His life has...

Sariah and David: CHARGE Syndrome

Sariah and David: CHARGE Syndrome

When Spencer was less than 24-hours old, he had surgery to fix an issue with his esophagus.  It was the beginning of a medical journey that would eventually lead to the diagnosis of CHARGE syndrome. Now at 17 he is attending high school and taking concurrent...

Terah and Brian: Down Syndrome

Terah and Brian: Down Syndrome

After unsuccessfully trying for five years to get pregnant, Terah and Brian turned to in vitro fertilization.  During their second round, they found out Terah was pregnant. An hour after Indy was born, she was diagnosed with Down syndrome.  They were devastated.  They...

Erika: Microcephaly

Erika: Microcephaly

Erika was given a very grim diagnosis when she was six months pregnant.  Her daughter, Erilyn was diagnosed with microcephaly.  She was very pressured to abort Erilyn.  Now eight years later, Erika is grateful she chose life and can see that Erilyn is a blessing and...

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