Jennifer: Down Syndrome

Jennifer: Down Syndrome

Jennifer was 10 years old when her sister Vanessa was born with Down syndrome. Having a sister with Down syndrome has had a profound impact in Jennifer’s life for good. A Sister’s View of Down Syndrome: She’s Amazing! Not understanding what Down...
Stephanie: Autism

Stephanie: Autism

Stephanie has an older brother named Mick.  Mick has autism and epilepsy that requires him to be under constant supervision.  Stephanie opened up and shared some of the struggles she felt growing up having a sibling with a disability.  She has come to...
Valorie: Cockayne Syndrome

Valorie: Cockayne Syndrome

Jace was seven years old when he was diagnosed with Cockayne syndrome type one, which is a very rare genetic condition, and is fatal. His mother, Valorie, became his champion and has started a non-profit organization called Team Jace to help other families walking the...
Celeste: Fragile X Syndrome

Celeste: Fragile X Syndrome

Tyson is the youngest of three children and has Fragile X syndrome. His mother, Celeste shares her experiences in raising Tyson who also has an intellectual disability. Fragile X: A Joyful Journey Finding out during pregnancy your child has Fragile X syndrome Celeste...
Nathan: MPS II

Nathan: MPS II

Nathan has a twin brother, Nick, who has MPS or mucopolysaccharidoses, type 2. He shares his story as a sibling with a brother who has a disability. A Sibling Story What is MPS? “My brother Nick has something called MPS or mucopolysaccharidoses, type 2. MPS is a...
Summer: Anencephaly

Summer: Anencephaly

Summer found out during an ultrasound at 20 weeks gestation that her son, Aires, had anencephaly and if he made it to term and was born, he would only live a few hours. Summer and her husband opted to have their son and to cherish him for as long as he lived.  ...

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