Valorie: Cockayne Syndrome

Valorie: Cockayne Syndrome

Valorie’s son Jace was a typical infant. Around 12 months, his head measurements were falling behind, and he was diagnosed with Microcephaly. He also had a severe sensitivity to the sun. Hearing there was a correlation with the two, Valorie sent a skin biopsy to...
Angie: Stromme Syndrome

Angie: Stromme Syndrome

During Angie’s first prenatal ultrasound, Doctor’s found her baby Ruby wasn’t developing properly. After Ruby was born doctor’s found Ruby had Microcephaly, vision impairment, and a bowel obstruction. Ruby has been diagnosed with Stromme...
Erika: Microcephaly

Erika: Microcephaly

Erika was six months pregnant when during an ultrasound it was discovered that her baby Erilyn had Microcephaly. Erika was put under a lot of pressure to abort Erilyn even though she was so far into her pregnancy. Erika decided to continue the pregnancy, despite the...

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