Dwarfism: Latest Post

Katherine and Jeff: Ellis-Van Creveld Syndrome- Update

Katherine and Jeff: Ellis-Van Creveld Syndrome- Update

Both of their daughters were diagnosed in utero with a fatal form of Dwarfism. They chose to continue with the pregnancy, and doctors couldn’t give them statistics, because everyone else they knew that received the same diagnosis chose to abort.

Dwarfism

Rebekah and Chris: Achondroplasia (Dwarfism)

Rebekah and Chris: Achondroplasia (Dwarfism)

Rebekah and Chris have Achondroplasia, a form of Dwarfism. They have 2 children, one that has Dwarfism, and one that does not. Rebekah and Chris open up about what it’s like living as a little person, and how they feel now that they have a daughter with the same condition. Rebekah is a great resource to parents who receive a Dwarfism diagnosis for their child.

Katherine and Jeff: Ellis-Van Creveld syndrome

Katherine and Jeff: Ellis-Van Creveld syndrome

A routine prenatal ultrasound showed Katherine’s baby had shorter limbs than was typical.  Baby Arabella was misdiagnosed with fatal disorders twice while in utero. Katherine and Jeff refused to terminate the pregnancy. It wasn’t until she was born that they got...

Leslie: Achondroplasia

Leslie: Achondroplasia

When doctors first told Leslie that her daughter was measuring small, she didn’t put too much thought into it.  She was told the same thing with her son, who was born perfectly healthy. However, after seeing a different doctor, he told her that her daughter would be...

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