Author Posts: Collaborative Corner

Erick: Down syndrome

Immediately following his daughter’s birth, the doctor told them she suspected their baby girl had Down syndrome.

Daniel: Menkes Disease

After Lucas missed milestones around nine months old, they sought help.  They were told to see a geneticist who thought because of Lucas’ unique hair texture that he had a copper related disorder.  

Brittney and Derik

Brittney and Derik share what SHINE syndrome is and how it has made an impact in their life.  Their daughter has been a joy in their life despite some of the difficulties that come when having a child with SHINE syndrome.

Wendy and Matt: Down syndrome

When Matt was only 3 hours old, Wendy was told he had Down syndrome. When we asked her how she felt receiving that news she told us, “I think I every emotion known, I was going through. I experienced shock, fear, trauma, devastation, anger. I thought, what did I do? Why me? I was afraid that my life had just been ruined’

Madison and Ty: Expecting a Terminal Baby

During a routine ultrasound, Madison and Ty found there was something was wrong with their baby boy. When they went to the specialist, they were told their baby’s bladder was large, and his kidneys were covered in cysts and had little to no function- a condition that...

TRAK

TRAK is a specialized ranch that helps connect people with animals and their community.  They are located in Tucson Arizona and have been operating for 15 years.  Jill and Scott, the founders of TRAK shared their inspiration for starting TRAK.  Gerald also was able to talk to a few employees as well as a few parents of kids who have benefited from TRAK’s unique program.

Keeping Children with Exceptional Needs Safe at Home with Child Senior Safety

When you have little ones, the most important step you can take to keep them safe at home is baby-proofing. As inconvenient as electric outlet plugs, cabinet latches, and baby gates can be for adults, these safety measures are musts as babies develop into curious toddlers.

The IEP Process

The IEP Process

If you suspect that your child’s 504 Plan is not accommodating their needs within their educational environment, it might be time to seek an Individualized Education Plan. Children with 504 Plans do not require specialized instruction, however a child with an IEP does. An Individualized Education Plan is “a document under United States law that is developed for each public school child in the U.S who needs special education.”

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Toe Walking

Toe Walking

Often this pattern of walking becomes an “engrained motor pattern” or habit that needs to be broken. If stretching isn’t helping, they may require stretching braces for night time or Ankle Foot Orthoses (AFOs) braces for the daytime to help break the habit. Some orthopedic physicians or neurologists use a series of casts called serial casting to stretch the tight muscles and tendons.

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What Is Tummy Time and Why Is It Important?

What Is Tummy Time and Why Is It Important?

Tummy time helps prevent flat spots on their head, strengthen head control, and develop the strength and coordination required to meet new milestones. It is a foundation for the skills required for rolling over, crawling and playing. Most babies can begin tummy time as newborns, but it is important to check with your baby’s pediatrician for specific recommendations for your baby.

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Collaborative Corner

Collaborative Corner

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We believe it shouldn’t be as challenging as it is to gather professional and accurate information about your child’s diagnosis. At Collaborative Corner, our core value is to offer families the assistance they need to help their exceptional children. We strongly feel that you should not have to spend countless hours researching for answers that our panel of experts can answer very quickly and accurately. We are passionate in that the exceptional needs community is one not to be feared, but to be embraced and accepted. It is our pleasure to be that place of support for your exceptional family.

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