Resources

Please find links to various national associations below, including the following common and rare diagnoses:

National Down Syndrome Association

Spina Bifida Association

Trisomy 18 Support Organization

Trisomy 13 Support Organization

The American Association for Klinefelter Syndrome Information and Support

National Organization for Rare Disorders

National Organization for Rare Disorders

National Organization for Rare Disorders

National Organization for Rare Disorders

United Cerebral Palsy

Foundation for Children with Mirocephaly

National Association of the Deaf

American Foundation for the Blind

International Cri Du Chat

National Organization on Disability

Band Back Together

Angelman Syndrome Foundation

Williams Syndrome Association

Turner Syndrome Society of the United States

National Organization for Rare Disorders

Smith-Magenis Syndrome Research Foundation

Prader-Willi Syndrome Association

National Fragile X Foundation

Rett Syndrome Association

CMV – Cytomegalovirus