South Dakota

Suggest a Resource
Achondroplasia
Contact: Shannon Ciardelli
Email: shannon@aspenelectricinc.com
Website: http://www.lpadistrict9.org

 

Angelman syndrome
Epilepsy Foundation
8301 Professional Place East, Suite 200
Landover, MD 20785-2353
Phone: (800) 322-1000
Email: contactus@efa.org
Website: http://www.epilepsy.com/

South Dakota Speech-Language-Hearing Association
PO Box 308
Sioux Falls, SD 57101-0803
Phone: (605) 274-2423
Website: http://www.sdslha.org/

Special Format Library
South Dakota State Library
MacKay Building
800 Governors Dr.
Pierre, SD 57501
Phone: (605) 773-3131,(800) 423-6665
Email: library@state.sd.us
Website: http://library.sd.gov/BTB/#.WNVxX1XytxA

 

Autism
Autism Awareness Auberdeen
37902 127th Street
Aberdeen, SD 57401
Phone: (605) 262-1055
Contact:Beth Schmitz-Biegler
Email: schaatz@hotmail.com
Website: http://www.facebook.com/pages/Autism-Awareness-Aberdeen-Wear-Blue-2012/311942402…#sthash.QxQhpfVf.dpuf

Autism Spectrum Disorder Program
Department of Pediatrics
Sanford School of Medicine of The University of South DakotaSioux
Falls
, SD 57105
Phone: (605) 357-1439
Email: cd@usd.edu
Website: http://www.usd.edu/cd#sthash.jOYuU8tq.dpuf

LifeScape
2501 W. 26th St.
Sioux Falls, SD 57105
Phone: (605) 444-9500
Email: Info@LifeScapeSD.org
Website: http://www.LifeScapeSD.org#sthash.1WKqZYJ1.dpuf

Support Groups:
Sibshop
3701 W. 49th Street Suite 102
Sioux Falls, SD 57106
Phone: (605) 361-3171, (800) 640-4553
Contact: Barb Beck
Email: sdpc@sdparent.org

South Dakota Parent Connection
Sioux Falls, SD 57106
Phone: (605) 361-3171
Email: sdpc@sdparent.org
Website: 
http://www.sdparent.org#sthash.O4hap0Om.dpuf

Additional Resources: http://www.autismspeaks.org/resource-guide/state/SD

 

Blind
Educational Services:
South Dakota Office of Educational Services and Supports
Special Education Programs
800 Governors Drive
Pierre, SD 57501-2291
Phone: (605) 773-3678
Fax: (605) 773-6139
TDD/TTY: (605) 773-6302
Website: http://doe.sd.gov/oess/specialed/index.asp

South Dakota School for the Blind and Visually Impaired
423 17th Avenue SE
Aberdeen, SD 57401-7699
Phone: (605) 626-2580
Fax: (605) 626-2607
Toll-Free: (888) 275-3814
Email: marje.kaiser@sdsbvi.northern.edu
Website: http://sdsbvi.northern.edu/default.htm

NLS Library:
South Dakota Braille and Talking Book Library
State Library Building
800 Governors Drive
Pierre, SD 57501-2294
Phone: (605) 773-3131
Fax: (605) 773-6962
Toll-Free: (800) 423-6665
Email: talkbkreq@state.sd.us
Website: http://library.sd.gov/BTB/index.aspx

Other Agencies:
South Dakota Birth to 3 Connections
800 Governors Drive
Pierre, SD 57501
Phone: (605) 773-3678
Website: http://www.doe.sd.gov/oess/Birthto3.aspx

 

Cleft Palate and/or Cleft Lip
Sanford Health Cleft Lip and Palate Team – CPT
1310 W 22nd St
Sioux Falls, SD 57105-1501
Phone: (605) 328-8200
Fax: (605) 328-8201
Patient Age Range: 0-18
Team Leader: Patrick D. Munson, MD
Coordinator: Erin Burtis, RN
Email: erin.burtis@sanfordhealth.org
Website: http://www.sanfordhealth.org

 

Developmental Disabilities
Grant County Arc
906 S. 7th St.
Milbank, SD 57252
Phone: (605) 432-6908
Email: dstewart@tnics.com

Oahe Arc
PO Box 503
Pierre, SD 57501-0503
Phone: (605) 224-4501
Email: cquinn@oaheinc.com

 

Diaphragmatic Hernia
Contact: Donna Stolz, State Representative
Phone: (612) 709-1238
Email: SouthDakota@cherubs.org

 

Down syndrome
New Directions Down Syndrome Association
Sioux Falls, SD
Phone: 605-610-8026
Email: info@newdirectionsdsa.com
Website: http://www.newdirectionsdsa.com

 

Dwarfism
Contact: Shannon Ciardelli
Email: shannon@aspenelectricinc.com
Website: http://www.lpadistrict9.org

 

Edwards syndrome
Waubay, SD
Phone: (605) 947-4752
Contact: Gloria Jorgenson
Email: Gloriajayne1957@gmail.com

 

Epilepsy
Epilepsy Foundation
Phone: (301) 459-3700
Toll Free: (800) 332-1000

 

Intellectual Disabilities
Grant County Arc
906 S. 7th St.
Milbank, SD 57252
Phone: (605) 432-6908
Email: dstewart@tnics.com

Oahe Arc
PO Box 503
Pierre, SD 57501-0503
Phone: (605) 224-4501
Email: cquinn@oaheinc.com

 

Patau syndrome
Waubay, SD
Phone: (605) 947-4752
Contact: Gloria Jorgenson
Website: Gloriajayne1957@gmail.com

 

Pierre Robin Sequence
Sanford Health Cleft Lip and Palate Team – CPT
1310 W 22nd St
Sioux Falls, SD 57105-1501
Phone: (605) 328-8200
Fax: (605) 328-8201
Patient Age Range: 0-18
Team Leader: Patrick D. Munson, MD
Coordinator: Erin Burtis, RN
Email: erin.burtis@sanfordhealth.org
Website: http://www.sanfordhealth.org

 

Prader-Willi syndrome
Phone: (800) 926-4797
Email: chapters@pwsausa.org

 

Tessier Cleft
Sanford Health Cleft Lip and Palate Team – CPT
1310 W 22nd St
Sioux Falls, SD 57105-1501
Phone: (605) 328-8200
Fax: (605) 328-8201
Patient Age Range: 0-18
Team Leader: Patrick D. Munson, MD
Coordinator: Erin Burtis, RN
Email: erin.burtis@sanfordhealth.org
Website: http://www.sanfordhealth.org

 

Trisomy 9
Waubay, SD
Phone: (605) 947-4752
Contact: Gloria Jorgenson
Email: Gloriajayne1957@gmail.com

 

Online Support:
Achondroplasia: LPA District 9
Aicardi syndrome: Aicardi syndrome
Alobar Holoprosencephaly: Alobar Holoprosencephaly
Amniotic Band syndrome: Amniotic band syndrome (ABS)
Angelman syndrome: Angelman Syndrome Foundation
Apert syndrome: Apert International (Apert USA)
Aplasia Cutis Congenita: Aplasia Cutis Congenita Support Group
Arthrogryposis: Arthrogryposis
Asparagine Synthetase Deficiency: Asparagine Synthetase Deficiency (ASNS gene)
Ataxic Cerebral Palsy: Families with children who have Ataxic Cerebral Palsy
Autism: SPD, ADHD, Autism etc. Parents In South Dakota, Autism Support Group of Central South Dakota
Bi-lateral Renal Agenesis: Bi-lateral Renal Agenesis (Potters Syndrome)
Blind: Family ConnectBlind and visually impaired support group
Bohring-Optiz syndrome: Bohring-Optiz Syndrome Connection
Cerebral Palsy: Cerebral Palsy Awareness
CHARGE syndrome: CHARGE Syndrome
Congenital Heart Defect: Children with congenital heart defects, Breastfeeding Children with Congenital Heart Defects, Congenital Heart Defect Healthy Eating Group, Adults with Congenital Heart Defects 
Cleft Lip/Palate: Support Group for Adults born with Cleft Lip and Palates, Cleft Lip and Palate Foundation of Smiles, Cleft Lip & Palate Association
Clubbed Feet: Clubbed Foot support group, Club Feet Support Group for Parents
Cornelia De Lange syndrome: Cornelia De Lange Syndrome
Cortical Visual Impairment: Cortical Visual Impairment (CVI) Awareness
Crouzon syndrome: Crouzon Syndrome
Cystic Hygroma: Cystic Hygroma
Cytomegalovirus (CMV): CMV Family Support
Dandy Walker syndrome: Dandy-Walker Syndrome, Dandy Walker parents,
Deaf: Community for the Deaf and Hard of Hearing, Parents of Hearing Impaired Children
Dubowitz syndrome: Dubowitz Syndrome Network
Developmental Disabilities: Developmental Disabilities Support Page 
Diaphragmatic Hernia: South Dakota Cherubs- Congenital diaphragmatic Hernia
DiGeorge syndrome: DiGeorge Syndrome, 22q11.2 Deletion, DiGeorge, VCFS etc
Down syndrome: National Down Syndrome Society
Dwarfism: Dwarfism, Little People of the World Organization,
Edwards syndrome: Edwards syndrome (trisomy18), Edwards Syndrome Families & Support – Trisomy 18, Trisomy 18 Foundation Parents Connect
Encephalocele: Encephalocele Parent Support, Encephalocele Support
Epilepsy: Epilepsy Support Group
Hydrocephalus:Hydrocephalus Association
Hydrops Fetalis: Hydrops Fetalis Support Group, Hydrops Fetalis Parents Support Group
Intellectual Disability: Intellectual Disabilities Support Group
Koolen de Vries syndrome: Koolen de Vries Syndrome – 17q21.31 Microdeletion Syndrome Support Group
Limb Difference: Beautiful Limb Differences, limb difference makes no difference
Lissencephaly: Lissencephaly,  Lissencephaly Network
McCune-Albright syndrome: MAS/FD McCune-Albright Syndrome/Fibrous Dysplasia- The MAGIC Foundation, McCune Albright Syndrome and Fibrous Dysplasia
Microcephaly: Microcephaly Support Group,  Foundation for Children with Microcephaly- Official Group, Microcephaly
Moebius syndrome: Many Faces of Moebius Syndrome, Moebius syndrome Technology
Nager syndrome: Nager Syndrome
Patau syndrome: Trisomy 13 Life- Living with Patau Syndrome
Pierre Robin Sequence: Pierre Robin Sequence, Pierre Robin Sequence Support, Awareness & Research,
Polymicrogyria: Polymicrogyria (PMG) Support, PMG Awareness Organization’s Group Page (polymicrogyria)
Potocki-Shaffer syndrome: Potocki Shaffer syndrome Family Group
PPP2R5D: PPP2R5D Families
Prader-Willi syndrome: Prader Willi Syndrome Open Forum, Prader-Willi Support
Renal Agenesis: Born With A Single Kidney
Rhizomelic Chondrodysplasia Punctata (RCDP): RCDP/Rhizomelic Chondrodysplasia Punctata
Sanfilippo syndrome: Sanfilippo syndrome Support Group
Semi-lobar Holoprosencephaly: Our Olive Grace-  Semi-lobar Holoprosencephaly
Spina Bifida: Spina Bifida Association of the Intermountain Region
Symbrachydactyly: Symbrachydactyly, Helping Hands (Symbrachydactyly)
Tessier cleft: Tessier Clefts
Trisomy 9: Trisomy 9 Family 
Turner syndrome: Turner syndrome,  Turner Syndrome Connections 
VACTERL/VATER Association: VATER and VACTERL Association Awareness, Vacterl and vater Association group for parents and families
Ventriculomegaly:  Ventriculomegaly, Babies with ventriculomegaly

Our whole mission at Orange Socks is to be there for you.

Our whole intent is to guide you from a resources page to a forum for parents…from the links to national organizations to providing you with support where the expectant parent can be linked with a parent who has a similar situation and diagnosis. We are there to support and encourage you.

Orange Socks knows that there is no greater pain in your heart than the knowledge that your child will be born with a disability or lifelong condition, or diagnosed with one at a very young age. And it is with tremendous humility that we look forward to helping you face this challenge. Even as your heart is heavy, there’s light at the end of every tunnel. Getting to it is our job.

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