South Carolina

Suggest a Resource
Achondroplasia
Contact: Stephanie Brandon
Email: sbrandon@d3lpa.org
Website: http://www.d3lpa.org/

 

Angelman syndrome
South Carolina Advocates for Epilepsy
PO Box 943
Goose Creek, SC 29445
Phone: (843) 991-7144
Email: karent@scepilepsy.org
Website: https://www.scepilepsy.org/

Early Intervention
South Carolina First Steps/BabyNet
Concord Building
1300 Sumpter Street, Ste 100
Columbia, SC, 29201
Website: http://www.scfirststeps.org/babynet

Parent Training and Information Center (PTI)
PRO-Parents of South Carolina
652 Bush River Road, Suite 203
Columbia, SC, 29210
Website: http://www.proparents.org

 

Autism
Autism Advocate Foundation
PO Box 7061
Myrtle Beach, SC 29572
Contact: Cheryl Bauerle
Phone: (843) 213-0217
Email: cheryl@autismadvocatefoundation.com
Website: http://www.autismadvocatefoundation.com

A Program of Project HOPE Foundation, Inc.
2258 Woodruff Road, Suite 2100-358
Simpsonville, SC 29681
Contact: Lisa Lane
Email: administration@projecthopesc.org
Website: http://www.projecthopesc.org/hope-link

Darlington Country Support Group
2300 East Home Avenue
Hartsville, SC 29550
Phone: (843) 307-3386, (843) 307-4179
Contact: Coretta Bailey
Email: coretta.bailey@yahoo.com

Early Autism Project (EAP) Inc.
2460 India Hook Road
Rock Hill, SC 29732
Phone: (888) 227-7212
Contact Name: Anna Bullard
Email: abullard@earlyautismproject.com
Website: http://www.earlyautismproject.com
Carolina Family Services
301 Anderson Street
Greenville, SC 29601
Phone: (864) 283-0638
Contact: Irene Shockley
Email: irene@carolinafamily.org
Website: http://www.carolinafamily.org
Blind
Educational Services:
South Carolina Department of Education: Office of Exceptional Children
Rutledge Office Building
1429 Senate Street
Columbia, SC 29201
Phone: (803) 734-8222
Fax: (803) 734-4605
TDD/TTY: (803) 734-8408
Website: http://www.myscschools.com

South Carolina School for the Deaf and the Blind
355 Cedar Springs Road
Spartanburg, SC 29302
Phone: (864) 585-7711
Fax: (864) 585-3555
Toll-Free: (888) 447-2732
Email: info@scsdb.org
Website: http://www.scsdb.k12.sc.us

South Carolina School for the Deaf and the Blind
355 Cedar Springs Road
Spartanburg, SC 29302
Phone: (864) 577-7731
Fax: (864) 577-7742
Email: IRC@scsdb.org
Website: http://www.scsdb.org/Page/276

NLS Library:
Talking Book Services, South Carolina State Library
1500 Senate Street
Columbia, SC 29201
Phone: (803) 734-4611
Fax: (803) 734-4610
Toll-Free: (800) 922-7818
TDD/TTY: (803) 734-7298
Email: tbsbooks@statelibrary.sc.gov
Website: http://sctalkingbook.org/

Other Agencies:
ACB of South Carolina
121 Saratoga Rd.
Irmo, SC 29063
Phone: (803) 732-3277
Email: http://www.acb.org/southcarolina

Described and Captioned Media Program
1447 E. Main Street
Spartanburg, SC 29307
Phone: (864) 585-1778
Fax: (800) 538-5836
Email: info@dcmp.org
Website: http://www.dcmp.org

South Carolina Commission for the Blind
1430 Confederate Avenue
Columbia, SC 29201
Phone: (803) 898-8764
Fax: (803) 898-8731
Toll-Free: (888) 835-5951
Email: publicinfo@sccb.sc.gov
Website: http://www.sccb.state.sc.us/

South Carolina Commission for the Blind
1430 Confederate Avenue
Columbia, SC 29201
Phone: (803) 898-8764
Fax: (803) 898-8731
Toll-Free: (888) 835-5951
Email: publicinfo@sccb.sc.gov
Website: http://www.sccb.state.sc.us/

Vision Institute of South Carolina
P.O. Box 1923
Irmo, SC 29063
Phone: (803) 627-8847
Fax: (803) 335-5153
Email: info@TVISC.org
Website: http://www.tvisc.org/Default.aspx

 

Cerebral Palsy
UCP of South Carolina
1101 Harbor Dr.
West Columbia, SC 29169
Phone: (803) 926-8878
Twitter: @UCPofSC
Website: http://www.ucpsc.org

 

CHARGE syndrome
Contact: Minnie Lambert
Email: mllambert123@yahoo.com

 

Congenital Heart Defect
GHS Teen and Adult Congenital Heart Disease Clinic
Greer Memorial Hospital
Greenville, SC
Phone: (864) 797-9912
Medical Director: Manisha S. Patel, MD

Medical University of South Carolina Adult Congenital Heart Disease Program
Medical University of South Carolina
Charleston, SC
Phone: (843) 876-4788
Medical Director: David Gregg, MD

 

Cleft Palate and/or Cleft Lip
Craniofacial Anomalies and Cleft Lip and Palate Team – CPT, CFT
Medical University of South Carolina
135 Rutledge Ave
Msc 550
Charleston, SC 29425-8908
Phone: (843) 792-3251
Fax: (843) 876-0423
Patient Age Range: 0-21
Team Leader: Christopher M. Discolo, MD
Email: poinsetd@musc.edu
Website: http://www.musckids.org/our-services/cleft-palate-program

Columbia Cleft Team – CPT, CFT
2 Medical Park Rd Ste 302
Columbia, SC 29203-6839
Phone: (803) 545-5800
Fax: (803) 254-0821
Patient Age Range: 0-21
Team Leader: Elliott H. Chen, MD
Coordinator: Jody Peake, RN
Email: Jody.Peake@uscmed.sc.edu

 

Crouzon syndrome
Craniofacial Anomalies and Cleft Lip and Palate Team at the
Medical University of South Carolina
173 Ashley Avenue
Charleston, SC 29425
Director: Christopher Discolo, MD
Coordinator: Sherry Cannon
Phone: (843) 792-3251
Email: cannonss@musc.edu
Website: http://www.musckids.org

 

Dubowitz syndrome
The Midlands Chapter
Still Hopes Retirement Community (Event Room)
1 Still Hopes Dr.
Columbia, SC 29169
Contact: David A. Bitters
Phone: (803) 250-7839
Email: dabitters@gmail.com
Website: http://www.hlaamidlandssc.com

 

Developmental Disabilities
The Arc of South Carolina
1202 12th Street
Cayce, SC  29033
Phone: (803) 748-5020
Email: thearc@arcsc.org
Website: http://www.arcsc.org

 

Diaphragmatic Hernia
Contact: Lynne Brogden
Phone: (864) 906-0886
Email: SouthCarolina@cherubs.org

 

Down syndrome
Upside of Downs of Aiken
Aiken, SC
Email: info@aikenupsidedowns.org
Website: http://www.aikenupsidedowns.org

Family Connections
Columbia, SC
Phone: (822) 578-8750
Email: info@familyconnectionsc.org

Down Syndrome Association of Lowcountry
Mt. Pleasant, SC
Phone: (843) 553-3725
Email: dsalowcountry@gmail.com
Website: http://www.dsalowcountry.org

The Grand Strand Down Syndrome Society
Myrtle Beach, SC
Phone: (843) 283-0890
Email: grandstranddss@hotmail.com
Website: http://www.grandstrandds.org/

 

Dwarfism
Contact: Stephanie Brandon
Email: sbrandon@d3lpa.org
Website: http://www.d3lpa.org/

 

Edwards syndrome
Contact: Josh and Renea Bradley
Woodruff, SC
Phone: (864) 607-0287
Email: bradleyrenae@gmail.com

Michael and Susan Budd
Simpsonville, SC
Phone: (864) 991-7009
Email: buddzoo@yahoo.com

 

Epilepsy
Epilepsy Foundation
Phone: (301) 459-3700
Toll Free: (800) 332-1000

 

Hydrocephalus
Contact: Hannah Dill
Email: SouthCarolinaCommunity@hydroassoc.org

 

Intellectual Disabilities
The Arc of South Carolina
1202 12th Street
Cayce, SC  29033
Phone: (803) 748-5020
Email: thearc@arcsc.org
Website: http://www.arcsc.org

 

Microcephaly
Contact: Pam Albers
Email: palbers@childrenwithmicro.org

 

Patau syndrome
Josh and Renea Bradley
Woodruff, SC
Phone: (864) 607-0287
Email: bradleyrenae@gmail.com

Michael and Susan Budd
Simpsonville, SC
Phone: (864) 991-7009
Email: buddzoo@yahoo.com

 

Pierre Robin Sequence
Craniofacial Anomalies and Cleft Lip and Palate Team – CPT, CFT
Medical University of South Carolina
135 Rutledge Ave
Msc 550
Charleston, SC 29425-8908
Phone: (843) 792-3251
Fax: (843) 876-0423
Patient Age Range: 0-21
Team Leader: Christopher M. Discolo, MD
Email: poinsetd@musc.edu
Website: http://www.musckids.org/our-services/cleft-palate-program

Columbia Cleft Team – CPT, CFT
2 Medical Park Rd Ste 302
Columbia, SC 29203-6839
Phone: (803) 545-5800
Fax: (803) 254-0821
Patient Age Range: 0-21
Team Leader: Elliott H. Chen, MD
Coordinator: Jody Peake, RN
Email: Jody.Peake@uscmed.sc.edu

 

Prader-Willi syndrome
PWSA of The Carolina’s
9532 Treymore Drive
Raleigh NC 27617
Phone: (919) 332-0621
Contact: Becky Smith
Email: bsmith@mattshome.com

 

Spina Bifida
SBA of the Carolinas
1600 Wilson Blvd, Suite 800
Arlington, VA 22209
Phone: (800)621-3141 x20
Email: mnethercutt@sbaa.org
Web: http://www.sbancsc.org

 

Tessier Cleft
Craniofacial Anomalies and Cleft Lip and Palate Team – CPT, CFT
Medical University of South Carolina
135 Rutledge Ave
Msc 550
Charleston, SC 29425-8908
Phone: (843) 792-3251
Fax: (843) 876-0423
Team Leader: Christopher M. Discolo, MD
Patient Age Range: 0-21
Email: poinsetd@musc.edu
Website: http://www.musckids.org/our-services/cleft-palate-program

Columbia Cleft Team – CPT, CFT
2 Medical Park Rd Ste 302
Columbia, SC 29203-6839
Phone: (803) 545-5800
Fax: (803) 254-0821
Patient Age Range: 0-21
Team Leader: Elliott H. Chen, MD
Coordinator(s): Jody Peake, RN
Email: Jody.Peake@uscmed.sc.edu

 

Trisomy 9
Contact: Josh Bradley
Woodruff, SC
Phone: (864) 607-0287
Email: bradleyrenae@gmail.com

Contact: Susan Budd
Simpsonville, SC
Phone: (864) 991-7009
Email: buddzoo@yahoo.com

 

Online Support:
Achondroplasia: LPA District 3 
Aicardi syndrome: Aicardi syndrome
Alobar Holoprosencephaly: Alobar Holoprosencephaly
Amniotic Band syndrome: Amniotic band syndrome (ABS)
Angelman syndrome: Angelman Syndrome Foundation
Apert syndrome: Apert International (Apert USA)
Aplasia Cutis Congenita: Aplasia Cutis Congenita Support Group
Arthrogryposis: Arthrogryposis
Asparagine Synthetase Deficiency: Asparagine Synthetase Deficiency (ASNS gene)
Ataxic Cerebral Palsy: Families with children who have Ataxic Cerebral Palsy
Autism: South Carolina Autism Society , Autism Families Waiting for ABA in South Carolina
Bi-lateral Renal Agenesis: Bi-lateral Renal Agenesis (Potters Syndrome)
Blind: Family ConnectBlind and visually impaired support group
Bohring-Optiz syndrome: Bohring-Optiz Syndrome Connection
Cerebral Palsy: United Cerebral Palsy of South Carolina
CHARGE syndrome: CHARGE Syndrome
Congenital Heart Defect: Children with congenital heart defects, Breastfeeding Children with Congenital Heart Defects, Congenital Heart Defect Healthy Eating Group, Adults with Congenital Heart Defects 
Cleft Lip/Palate: Support Group for Adults born with Cleft Lip and Palates, Cleft Lip and Palate Foundation of Smiles, Cleft Lip & Palate Association
Clubbed Feet: Clubbed Foot support group, Club Feet Support Group for Parents
Cornelia De Lange syndrome: Cornelia De Lange Syndrome
Cortical Visual Impairment: Cortical Visual Impairment (CVI) Awareness
Crouzon syndrome: Crouzon Syndrome
Cystic Hygroma: Cystic Hygroma
Cytomegalovirus (CMV): CMV Family Support
Dandy Walker syndrome: Dandy-Walker Syndrome, Dandy Walker parents,
Deaf: Community for the Deaf and Hard of Hearing, Parents of Hearing Impaired Children
Dubowitz syndrome: Dubowitz Syndrome Network
Developmental Disabilities: Developmental Disabilities Support Page , The Arc of South Carolina
Diaphragmatic Hernia: South Carolina Cherubs – Congenital Diaphragmatic Hernia Charity
DiGeorge syndrome: Di George Syndrome, 22q11.2 Deletion, Digeorge, VCFS etc
Down syndrome: Down Syndrome Family Alliance of Greenville, SC 
Dwarfism: Dwarfism, Little People of the World Organization,
Edwards syndrome: edwards syndrome (trisomy18), Edwards Syndrome Families & Support – Trisomy 18, Trisomy 18 Foundation Parents Connect
Encephalocele: Encephalocele Parent Support, Encephalocele Support
Epilepsy: Epilepsy Foundation of Alabama
Hydrocephalus: State of South Carolina Hydrocephalus Association Community Network
Hydrops Fetalis: Hydrops Fetalis Support Group, Hydrops Fetalis Parents Support Group
Intellectual Disability: Intellectual Disabilities Support Group
Koolen de Vries syndrome: Koolen de Vries Syndrome – 17q21.31 Microdeletion Syndrome Support Group
Limb Difference: Beautiful Limb Differences, limb difference makes no difference
Lissencephaly: Lissencephaly,  Lissencephaly Network
McCune-Albright syndrome: MAS/FD McCune-Albright Syndrome/Fibrous Dysplasia- The MAGIC Foundation, McCune Albright Syndrome and Fibrous Dysplasia
Microcephaly: Microcephaly Support Group,  Foundation for Children with Microcephaly- Official Group, Microcephaly
Moebius syndrome: Many Faces of Moebius Syndrome, Moebius syndrome Technology
Nager syndrome: Nager Syndrome
Patau syndrome: Trisomy 13 Life- Living with Patau Syndrome
Pierre Robin Sequence: Pierre Robin Sequence, Pierre Robin Sequence Support, Awareness & Research,
Polymicrogyria: Polymicrogyria (PMG) Support, PMG Awareness Organization’s Group Page (polymicrogyria)
Potocki-Shaffer syndrome: Potocki Shaffer syndrome Family Group
PPP2R5D: PPP2R5D Families
Prader-Willi syndrome: Prader Willi Syndrome Open Forum, Prader-Willi Support
Renal Agenesis: Born With A Single Kidney
Rhizomelic Chondrodysplasia Punctata (RCDP): RCDP/Rhizomelic Chondrodysplasia Punctata
Sanfilippo syndrome: Sanfilippo syndrome Support Group
Semi-lobar Holoprosencephaly: Our Olive Grace-  Semi-lobar Holoprosencephaly
Spina Bifida: The Spina Bifida Association of the Carolinas
Symbrachydactyly: Symbrachydactyly, Helping Hands (Symbrachydactyly)
Tessier cleft: Tessier Clefts
Trisomy 9: Trisomy 9 Family 
Turner syndrome: Turner syndrome,  Turner Syndrome Connections 
VACTERL/VATER Association: VATER and VACTERL Association Awareness, Vacterl and vater Association group for parents and families
Ventriculomegaly:  Ventriculomegaly, Babies with ventriculomegaly

 

Our whole mission at Orange Socks is to be there for you.

Our whole intent is to guide you from a resources page to a forum for parents…from the links to national organizations to providing you with support where the expectant parent can be linked with a parent who has a similar situation and diagnosis. We are there to support and encourage you.

Orange Socks knows that there is no greater pain in your heart than the knowledge that your child will be born with a disability or lifelong condition, or diagnosed with one at a very young age. And it is with tremendous humility that we look forward to helping you face this challenge. Even as your heart is heavy, there’s light at the end of every tunnel. Getting to it is our job.

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